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  1. #821
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    Quote Originally Posted by pingc383 View Post
    My appointment with Dr M is not long now.. Just two more weeks!! I've bee waiting 2 years, so 2 more weeks isn't going to kill me!! My appointment with Dr Alison Gee at Genea is on 2 more weeks too!! I'm dying for this next week to go by ever so quickly!!

    Yes, I have read that Dr Sacks is quite blunt and not that friendly. I'm sure my friend found him ok because she's only 32... I'm 40!!!! I'm not sure he'd have much hope for me!!

    I'm truly so excited to start Dr M's protocol! I seriously cannot wait!!!!!!

    So glad everything is going well, but so sorry to hear you've been a bit sick. Hopefully it was just a cold?

    Just wondering. Does Dr M suggest you continue on the protocol of meds (dosages reduced) as a preventative for immune issues? I wouldn't mind being on preventative immunity meds to ward off potential problems in the future..
    Not sure whether the meds he gave were preventative. I just did whatever the hell he said, ha!

  2. #822
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    Just a side note

    I didn't have egg quality issues

    But dr m thought cause of fert results could have been better

    And he medicated me for my eggs between phone consult 1 and 2
    And i fell naturally in that time

    So on phone consult 2 (found out i was pregnant the Thursday and was alreddy booked with him friday)

    He medicated to keep baby alive (which at a guess.we thought we werr 5-6 weeks along)

    So it had survived well on its own for a week or more

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    pingc383  (04-09-2016)

  4. #823
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    Im 33
    Started ivf at 27 i think (started trying for baby around 26

    I literally found out i was pregnant in the ivf specialist office

    I thought i was just late cause of ivf haha

    So i was on nothing, except vitamins and meds gave me for eggs

    I only went on immune protocol at 6 weeks pregnant..

    Keep in mind i had, had chemical pregnancies but never been that pregnant before

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    pingc383  (04-09-2016)

  6. #824
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    Im only sharing as dr.m looks at the whole picture

    Of eggs and auto immune ect ect

    As no one will have the same story or . issues

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    pingc383  (04-09-2016)

  8. #825
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    Quote Originally Posted by pingc383 View Post
    Thank you so much for your post @Mink.

    Dr Reid quoted me between $3,300 and $1,300 (out of pocket) for a laprascopy and biopsy for NKCs. His quote varies and I won't know what quote he'll charge me until after the procedure. If he finds silent endo and has to remove it, it's $3,300. If he doesn't find anything, it's $1,300.

    I was recommended to Dr Reid by one of the girls who used to frequent this thread. She said he would let her try all of Dr M's protocols.

    So anyway, I went in there and told him I was waiting to see Dr M. He said he has many patients who are also seeing Dr M, but that he too does immune testing, but if I wanted to wait for Dr M, that's was fine. I got the sense that he was a bit jealous of him and that he thought he knew more than him, but I dunno, that could have just been me being wrong. There was something about that comment that was a bit flippant.

    He believes in NKC and he suggested the biopsy, but he also suggested that we should do a lap to check for any silent endo. I'm very symptomatic. Not a single symptom of anything whatsoever, but he said that a German doctor did a study and found over 60% of women struggling with infertility had silent endo....

    I'm just not sure what to do.. He said he has to do the laprascopy and NKC biopsy no later than CD12. I'm not sure if he'll test for all the things Dr M tests for, so that's my first concern.

    But then, maybe I should get it done so that when I have my telephone consult in 2 weeks, Dr M has the results and I don't have to waste time waiting for my next cycle to do the biopsy and waste valuable time. But then if Dr Reid doesn't test for everything, then I may have to do another biopsy and I don't want to keep having surgical procedures done up there.

    Maybe I just do a laprascopy, without the biopsy, just because I hear he's the specialist for silent endo.. I dunno what to do. I called up G and she said Dr M does laprascopies.

    What are the chances I have silent endo?

    What would you do? I'm so confused!

    I'm getting older and don't want to waste two cycles.. I need to keep cycling before I turn 40......

    I'm seeing Dr Alison Gee in about 2 weeks....

    Will you move to another FS that believes in Dr M, @Mink?
    I recently had a laparoscopy (last week) by Dr Gee and Dr Reid (they worked together) that was great. I had no symptoms of endo really except for painful periods and they found it on my bladder and in my pouch of Douglas and they removed it. The fee was $1200 and then about $800 for anaesthetic and nothing for hospital but I have PHI. If you have an appointment with dr gee consider discussing costs with her as they did work together on me and apparently they do this often. I am so happy I went with Allison for my lap as the scars are teeny tiny and the pain was minimal. She also came and explained everything straight after the surgery so I wasn't left wondering what they found.
    Good luck!

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    pingc383  (04-09-2016)

  10. #826
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    Quote Originally Posted by pingc383 View Post
    How old are you @bbhope?
    I am in my 30s. We have to do ivf due to severe male factor. I don't know if i have egg issue or not. I have always been a poor responder! My FS said not my egg problem after our second round of fresh cycle given how many were fertilised with good sperms. We looked into the immune issue because of chemical pregnancies. To this date, i don't know if the immune drug actually helped because the cycle i fell pregnant, the circumstance was very different.

    Having high ANA and anti thyroglobulin antibodie don't mean you have high NK cell. NK cell is a different thing. Everyone has NK cell. It just depends how strong they are. If it will see the embryo as a foreign object in the body and kill it off.

    Good luck.

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    pingc383  (05-09-2016)

  12. #827
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    Ladies I need your help I am unsure where to go next. A bit of history...

    32 now, started trying for a baby in 2010, started IVF in 2012.
    - mild endo removed twice and third surgery found none (this year)
    - MTHFR - hetero a1298c - doctors say this shouldn't cause an issue
    - DH has low sperm morph but above average numbers and mobility so doctor's say all good
    - AMH 40 so all good here
    - regular 28 day cycles with chinese herbs (although progesterone seems to drop real quick)
    - NK cells normal
    - Low T cells
    - no sperm fragmentation issues
    - no DQ Alpha matches
    - two early (<5 weeks) chemical pregnancies from IVF (first one I believe is due to progesterone, 2nd have no idea), no other pregnancies
    - IVF never yields good eggs:

    2012 MARCH IVF ICSI 13 eggs, 7 mature, 4 fertilised, 2 grade A - TFR #1 Chemical, TFR #2 BFN + MILD OHSS
    2013 MAY IVF ICSI + PGS (DAY 3) 16 eggs, 6 mature, 6 fertilised, 6 grade A, 1 normal PGS BFN+ MILD OHSS
    2016 AUGUST IVF ICSI (new clinic - long protocol) 6 eggs, 2 mature, 1 fertilised Chemical

    I saw Dr M previously and we tried entrepalids (sp?) clomid with clexane and dex as at that stage NK cells in blood were high (later on had biopsy done by Dr Reid and found to be ok). But basically doctor's now are baffled and we are in the unexplained category. I just don't know what to do, I am close to giving up but I want to be a mum. I just feel like the chances of success of IVF are like winning the lottery and I would be better off spending my money and time on other things to be happy.. I have also had three different FS now....

    Can anyone give their opinions as doctors seem to fail me...
    Last edited by nattie84; 05-09-2016 at 13:54.

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    Summer  (05-09-2016)

  14. #828
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    Quote Originally Posted by pingc383 View Post
    If you had high NKC in blood, I'm surprised they didn't find anything in the biopsy? I would get Dr M to re do the biopsy, as he may do it at a different time in the cycle to Dr Reid.

    Hetero A1298C is not a problem. It's only an issue if you have homo a1298c like me.

    I've read day 3 PGD testing is unreliable, so I think if you try to do it again, best to use day 5 embies for PGD testing.

    You're getting chemicals, so there's no implantation issues.. There's something else going on..

    Your AMH is excellent for IVF, but high LH can cause a deleterious effect on egg quality. In this instance, I think protocol is very important. Stims such as menopaur is probably not ideal, because it could possibly increase LH even more to the detriment of your eggs.

    Have you tried Gonal f?

    If I were you, I'd ring up Dr Warren De Ambrosis in Qld. If you do not find any success after a couple of stims with him, then at least you did everything to could.

    You know, sometimes you have to do many cycles to find that golden egg. You should have one there hun, your age is a good indicator of that, but it might be that you have to do a few more rounds to find it.

    Try Dr Warren De Ambrosis. He had a 12 month waiting list, but ask to go on his, or his colleague Charlotte's, waiting list. Also, go back to Dr M and ask for a more aggressive protocol. I have spoken to many women on this thread who got a bfn after a Dr M protocol, but went on to get a BFP after he revised their protocol. I would ask him to redo the biopsy, in case Dr Reid didn't do it at the right time..

    Dr Reid is a lovely man, but he seemed clueless when i quizzed him about protocols. You need someone who can give you the right protocol, not someone who wants to experiment.
    Thanks for your response. Chemicals before 5 weeks can indicate an implantation problem ie progesterone, NK cells, clotting etc.

    We have used Gonal F on all stim and FET cycles.

    PGD didn't help this time as we only got one embryo so we decided to put it in fresh to save on another cycle.

    I think I will get Dr M to review the NK cells testing and everything else.

  15. #829
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    Ladies I found this link which makes sense: It says

    Blood tests can only measure the circulating NK cells in the body and not the uterine killer cell activity, which can be the cause of recurrent miscarriage. So, if you have had a blood test, it is not measuring what is needed. Everyone will have circulating NK cells in their blood ******.

    http://shentherapies.com.au/if-you-r...read-this-one/

  16. #830
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    Quote Originally Posted by pingc383 View Post
    @nattie84 - Yep, but that's why they do the uterine NKC biopsy.

    I don't agree with everything the url has said... Dr Beer and Dr M have given BFPs to a lot of women who were never able to achieve this on their own or with numerous IVF treatments.
    What I am saying is that is maybe why my nk cells in the blood were elevated but normal in my uterus. I think I will go and have a re read of my Dr Beer book.


 

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