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  1. #291
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    Quote Originally Posted by PreciousHeart View Post
    Ruby16 how great you are 25 weeks!!! Funny you have similar story re ML, I wish I'd switched to alison gee years ago as she is open to it all! You should try IPTAAS but check out the guidelines first, you might have to have a disability as it's run by enable nsw where I worked for 3 mths recently. Not sure but give the IPTAAS number a call. Good luck!
    Thanks @PreciousHeart! Yep it's interesting how some FS's are just so stuck in their ways!

    Also, don't think you have to have a disability as my rural Genea clinic gave me all the paperwork to send in to claim for my travel to and from Sydney for my cycles last year- have submitted that paperwork (and it didn't refer to or ask anything on the paperwork about disability), so will let you know how I go!

  2. #292
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    Quote Originally Posted by ange1111 View Post
    What is the best timing for intralipids ladies? Seems to be a bit vague, think Genevieve said something like 'anytime' prior to transfer... Does anyone know best time? And why would some do two lots of intralipids - is there a benefit do you think? And does anyone know if you do get a BFP when intralipids are next given (if at all?)
    Thanks
    Hi ange1111 re intralipid anytime before transfer is not right at all... If you google dr sher & dr Braverman you will see... I had IVIG on 7 Jan & transfer on 14 Jan... 7 to 10 days prior is optimal as IVIG & lipids need that long to take action in the uterus... That comment from his rooms makes me cross. After BFP I had it 3 weeks later & then every 4 weeks, switched to intralipid after 3 ivigs.

  3. The Following 2 Users Say Thank You to PreciousHeart For This Useful Post:

    ange1111  (22-04-2016),ECM1981  (22-04-2016)

  4. #293
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    Hi All
    My husband and I have just found out yesterday I have a "moderate" amount of natural killer cells, I am feeling overwhelmed and confused.

    My husband and I have been trying for 3 years and we started getting the help we need over a year ago which we had x2 failed IUI's and x1 Failed IVF, The doctor kept saying I have PCOS but cause I'm young it will eventually work. He had no interest in doing a laparoscopy and said we will look into that after more failed cycles. I had enough and went to another highly recommend gyno who straight away booked me in for a Lap.
    I have now found out I don't even have PCOS and I have NKC. He wants to put me on steroids and blood thinners? Would love some stories/information ect. Put my mind at ease

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    ange1111  (22-04-2016)

  6. #294
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    Brilliant- thanks @PreciousHeart! Knowledge is power and I need it on this journey!!

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    Jojosniss  (24-04-2016)

  8. #295
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    Quote Originally Posted by PreciousHeart View Post
    Hi Ange1111 – with my son who is now 4, I had blocked tubes so had to do IVF. I also had high FSH and only ever got 1 to 3 eggs. I now know I have way more issues than that!

    My FS then was Mark Livingstone at Genea Kent St. He did one fresh at day 5 – BFN. Then an FET – miscarriage at 7 weeks. Then I only got one egg and he transferred it at day 3 as it fertilised normally. Again miscarriage at 7 weeks. Was devastating.

    The next cycle (#3) I got 3 eggs, 2 fertilised and he put both in of his own accord, I didn’t ask and I’m so glad he did. His idea was that I was unlikely to have twins to full term based on my history at the time.

    Devora should do the same for you. I would ask her about it. Mark always read me the riot act about the risks of twins to both mother and bubs which always terrified me!

    If you are getting enough fertilised embryos to go to day 5 then that is why Devora is doing that - day 5 as you know is more viable…. Mark’s opinion with only a couple was better in than out in a petri dish. I wouldn’t switch to him though as he stonewalls anything to do with immune system except clexane and steroids - only if he really has to. He also ignored my adenomyosis on scans over 2 years when trying for our second bub. Very disappointing.

    How many mature eggs are you getting at collection? How old are you? I was 38 with my misses then 39 when I fell with my son, I turned 40 at 2 months pregnant. How amazing is that, so lucky. I took HEAPS of bioceuticals coq10 and loads of other supps etc, forced so much stuff down my hubby’s throat too

    If you are looking at getting more tests done, I wish I had had the DQ/HLA match test done 3 years ago. It’s expensive to do but well worth the money to find out. Cause if you need LIT, you need it, it’s that simple. If you need it and don’t know, then you are wasting your time and money. Having said that we did somehow have our own miracle genetic child at the beginning of IVF but after that it got worse, NK cells went mental with each failed transfer etc.

    My other issue unrelated to immune stuff I believe was adenomyosis. Sootymay on this thread told me to look into it and that she had had success with zoladex and a whole cocktail of immune stuff. So I did. I fired Mark and got my GP to write a referral for an MRI ($500) and sent the results to Prof Tremellen at Repromed in Adelaide and had a $100 phone consult with him at which he told me I had a severe case. He wrote a letter for any FS I wanted with a protocol etc which the FS agreed was right.

    I saw Alison Gee (amazing woman) but went with Nick Lolatgis in Melbourne due to donor reasons. Also IVIG with Nick is way cheaper than Dr M! I had to have IVIG 3 times. And do PGD. But ALLLL worth it. It worked! I had 4 donor egg blasties fail with ML in 2014 because I did not have matches diagnosed (why Dr M never did this I have NO idea) and adenomyosis was being untreated. For those 4 blasties I did IVIG, neupogen, steroids,clexane – had one chemical, the rest BFN although all but one showed a line on FRER.

    The only way to diagnose adenomyosis accurately is biopsy or MRI (no rebate on this). When I asked PRof Temellen which was better, what did he want me to do, he said MRI. I would have done whatever he recommended, he is the expert on this I am told, a firm believer in it whereas other FS dismiss it!!!!

    I did zoladex for 3 months prior to FET, did LIT before FET (twice per protocol), started neupogen, dex, clexane, progesterone, etc per Dr M before FET too. Had to have a booster LIT at around 9/10 weeks per Dr M surface markers, am now on intralipids hopefully only one more. I’m nearly 17 weeks. Weaning off prednisone and still on clexane until 32 weeks or so per Dr M. I live in Sydney by the way!

    Good luck, it’s so hard to work out your own puzzle, just make sure you have a FS who wants to do that, ML seemed to have no interest and I had to work it all out myself to the tune of tens of thousands of dollars, heartache and wasted time.

    Good luck!!!! xx
    OMG @PreciousHeart such awesome info to share thank you thank you thank you!!!! It's is such a journey- at every turn trying to work it all out. I am so pleased your hard work has paid off- YAY!!

    Quick question to clarify - did ML put back your two that fertilised earlier than Day 5?

    Im 41 Now !!! Have had two full stims, produce 7/8 mature eggs, just over half fertilise normally...had two survive to Day 5 first go but only compacting morulas (slow) both transferred on Day 5 -BFN (no signs of pregnancy); had one early blast Day 5 last time, and a couple survive but slow development (one compacting M on Day 6, one 9 cell)- they discarded them . AMH still ok at 8, FSH seems ok too...Have had no signs of pregnancy (except a termination age 26 with diff partner. My hubby has fathered kids before so he can get pregnant)

    Found out about NK cells now so will use the usual protocol steroids, clean, extra progesterone and intralipids.

    Ive shopped around FS's a bit, but going to look further again now as need someone who is willing to try everything. Im based northern NSW (regional, near Byron), but used to live in Sydney and have family there so easy to stay there. Ive heard good things about Alison Gee...We have frozen sperm at Genea which was a big process to get and want to use on next cycle (currently trying to convince them to use IMSI - thanks to @Lea7's advice/success) - may not be able to on frozen, so may need to do another fresh TESE (vasectomy)...And Dr Marren (from @Lea7) and maybe Dr Sterling in Brissie- but unsure).

    Ideally want to have something to do PDG on, but the challenge is seeing if something makes it to Day 5/6 thats good enough and maybe missing out the opportunity to transfer at all. I wonder if they can transfer something at Day 3 (maybe lower quality) and then see if one of the better ones makes it - partly as I think my body will cope better if can do a FET.

    Also, you mentioned going to NL because of donor reasons - why is that? Easier to get donor through Monash IVF?

    Thanks again babe sooooo soooo grateful XX
    Last edited by ange1111; 22-04-2016 at 11:24.

  9. #296
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    Quote Originally Posted by babypanda View Post
    Hi All
    My husband and I have just found out yesterday I have a "moderate" amount of natural killer cells, I am feeling overwhelmed and confused.

    My husband and I have been trying for 3 years and we started getting the help we need over a year ago which we had x2 failed IUI's and x1 Failed IVF, The doctor kept saying I have PCOS but cause I'm young it will eventually work. He had no interest in doing a laparoscopy and said we will look into that after more failed cycles. I had enough and went to another highly recommend gyno who straight away booked me in for a Lap.
    I have now found out I don't even have PCOS and I have NKC. He wants to put me on steroids and blood thinners? Would love some stories/information ect. Put my mind at ease
    Im going through same thing and don't have a success story to share as haven't done a cycle with immune meds yet. Who was your specialist. The best guy in the game here in Oz is Dr Matthias. You can take your results there and get him to handle your immune issues. Check back through this forum - stacks of useful info for ladies who have had success. Best of luck xx

  10. #297
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    Quote Originally Posted by babypanda View Post
    Hi All
    My husband and I have just found out yesterday I have a "moderate" amount of natural killer cells, I am feeling overwhelmed and confused.

    My husband and I have been trying for 3 years and we started getting the help we need over a year ago which we had x2 failed IUI's and x1 Failed IVF, The doctor kept saying I have PCOS but cause I'm young it will eventually work. He had no interest in doing a laparoscopy and said we will look into that after more failed cycles. I had enough and went to another highly recommend gyno who straight away booked me in for a Lap.
    I have now found out I don't even have PCOS and I have NKC. He wants to put me on steroids and blood thinners? Would love some stories/information ect. Put my mind at ease
    Sorry you have been through the rininger

    Read this thresd
    so many great positive stories

    With a diagnosis you have power xox

  11. #298
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    @Angel1111 I am Melbourne, doesn't look like he is in Melbourne Have you started the meds for NKC ? Do you know any side effects? Im worried I will put weight on with the steroids I have worked so hard to get 10kg off and still long way to go to be in "healthy weight range".
    @Velvet16 thanks I will have a read

  12. #299
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    Ps; @babypanda

    Im personally a success story

    I had done 4 transfers through ivf

    And everyone kept telling me i was unexplained infertility and it will happen eventually

    One day i was bored at home and googling stumbled into this forum and found out about dr m

    Who has successfully gotten me to 15.5 weeks pregnant, naturally

    My nkc were causing an imbalance with ny T cells.

    So i am extraordinary lucky and withoit dr m, i dont think it would have ever happened

  13. The Following 4 Users Say Thank You to Velvet16 For This Useful Post:

    ange1111  (24-04-2016),Jee Jee  (25-04-2016),Jojosniss  (24-04-2016),Kookii  (22-04-2016)

  14. #300
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    I have also gained alot of weight from steriods going from someone who had abs and crazy fit

    But its so worth it, pregnant at last

    Steriod weight is also often hust fluid

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    Hopeful59  (22-04-2016)


 

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