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  1. #211
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    Quote Originally Posted by ECM1981 View Post
    Hi @SophJ I think diabex would be ok to use if he has prescribed it to you without telling you to stop. He has prescribed it to me also and I assumed I would take all the meds he prescribed until he tells me otherwise if I got a bfp.

    i have a question for anyone on neupogen- one pharmacy told me to get it on an authority script. Does anyone know if this is possible? I know someone else posted about neupogen a week or two ago and I think the rough price range is 900-1500. I have found a chemist that has quoted 1000 but he also recommended I try to get an authority script. Can anyone offer advice?
    Also,interested to hear if you can get neupogen on authority script my fs said you can't as its not classed as an IVF drug & is used by cancer patients
    Last edited by skye76; 13-04-2016 at 08:20.

  2. #212
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    Girls, just to let you know that I called Dr M's office, they said you can either continue melatonin or stop it once you get a BFP. It does not really matter. Thought I would let you know in case anyone else has the same question

  3. The Following 3 Users Say Thank You to SophJ For This Useful Post:

    ange1111  (13-04-2016),Caesardust  (14-04-2016),ECM1981  (13-04-2016)

  4. #213
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    Hi ladies,

    It's been a long time since I've posted on here after seeing dr M last year. I've had another consult with him and he's explained that my NKC's are some of the highest he's seen. Around 47% or something. Has anyone ever had this amount of natural killer cells? We also have a DQ alpha match type thing (I'm not sure what he called it) and I also need to be on clexane.

    Dr M has recommended Neupogen and LIT for us, It's a lot to do and pay for but at least it's something. I'm just worried my NK cells are too high to do anything about.

    Also, do any of you lovely ladies know where the best chemist in sydney or online would be to buy Neupogen and how much it may cost?

    Thank you as always for all of your insightful help and advice xx

  5. #214
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    Quote Originally Posted by ECM1981 View Post
    Hi @SophJ I think diabex would be ok to use if he has prescribed it to you without telling you to stop. He has prescribed it to me also and I assumed I would take all the meds he prescribed until he tells me otherwise if I got a bfp.

    i have a question for anyone on neupogen- one pharmacy told me to get it on an authority script. Does anyone know if this is possible? I know someone else posted about neupogen a week or two ago and I think the rough price range is 900-1500. I have found a chemist that has quoted 1000 but he also recommended I try to get an authority script. Can anyone offer advice?
    Hi @ECM1981 Dr M prescribed me Neupogen as well and when we were ringing around for prices they also asked if it was an authority script. My understanding is I couldn't get it under authority script as it is not being used as part of cancer treatment. I sourced it from my compounding chemist for $955.55, he gave me the insulin syringes for free where another chemist charged me $1 per syringe.

  6. The Following 3 Users Say Thank You to Olive79 For This Useful Post:

    ange1111  (15-04-2016),ECM1981  (14-04-2016),skye76  (18-04-2016)

  7. #215
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    Quote Originally Posted by eveclo View Post
    Hi ladies,

    It's been a long time since I've posted on here after seeing dr M last year. I've had another consult with him and he's explained that my NKC's are some of the highest he's seen. Around 47% or something. Has anyone ever had this amount of natural killer cells? We also have a DQ alpha match type thing (I'm not sure what he called it) and I also need to be on clexane.

    Dr M has recommended Neupogen and LIT for us, It's a lot to do and pay for but at least it's something. I'm just worried my NK cells are too high to do anything about.

    Also, do any of you lovely ladies know where the best chemist in sydney or online would be to buy Neupogen and how much it may cost?

    Thank you as always for all of your insightful help and advice xx
    Hi @eveclo. I got my Neupogen from Kingswood Compunding Chemist for 955.55.
    When is your LIT treatment? I have booked in for a top up on 9th May and then I should cycle a week later. Are you doing IVF as well?
    Best of luck with your treatment.

  8. #216
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    Quote Originally Posted by Majeen View Post
    I am not sure I will be much help to be honest. I am 6 weeks pregnant on the second protocol by Dr M. It is costing me a fortune as I have him plus a seperate FS and an OB. I won't be having him as an OB but that is mainly due to the fact I am moving out of Sydney. Communication is not a strong point of Dr M and his receptionist so that would frustrate me.

    No much is known about NK cells at this point but I lost my son at 34 weeks and it is probably related. I will be monitored my entire pregnancy in the hopes this doesn't happen again and doing intralipids every 4 weeks.
    Congratulations on your pregnancy!

    I hear you about cost.. What are your NK cell levels at? With your last pregnancy were you being treated by DR M the whole time?

  9. #217
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    Quote Originally Posted by Olive79 View Post
    Hi @eveclo. I got my Neupogen from Kingswood Compunding Chemist for 955.55.
    When is your LIT treatment? I have booked in for a top up on 9th May and then I should cycle a week later. Are you doing IVF as well?
    Best of luck with your treatment.
    Thank you so much, that's really helpful. Much better than up to $3000 like Gwyneth suggested it could be! I almost had a heart attack!

    Well, basically our plan is to first have a laparoscopy with dr M, before doing a stim cycle of IVF and doing genetic testing and then freezing our embryos. From then we will probably do the LIT in preparation for a transfer. I think dr M wanted me to do the LIT before I cycle but I'm not sure if it would be all doable considering we might not transfer until later in the year.

    I'm just hoping that something will work. I am still super worried about the amount of natural killer cells but I guess there's no point in worrying!

    Thank you so much for your reply x

  10. The Following 2 Users Say Thank You to eveclo For This Useful Post:

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  11. #218
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    Quote Originally Posted by eveclo View Post
    Thank you so much, that's really helpful. Much better than up to $3000 like Gwyneth suggested it could be! I almost had a heart attack!

    Well, basically our plan is to first have a laparoscopy with dr M, before doing a stim cycle of IVF and doing genetic testing and then freezing our embryos. From then we will probably do the LIT in preparation for a transfer. I think dr M wanted me to do the LIT before I cycle but I'm not sure if it would be all doable considering we might not transfer until later in the year.

    I'm just hoping that something will work. I am still super worried about the amount of natural killer cells but I guess there's no point in worrying!

    Thank you so much for your reply x

    Dr M told me rhat some pharmacies can charge up to $3000 so to shop around.

    I have decided against the genetic testing as my last 2 embryos were tested after MC and turned out to be chromosonally normal little girls
    I had 1 of those MC while on treatment, so this time we added Neupogen to the mix and I get a BFN! So now I have to go for my 6tg Stim cycle to collect more eggs. Hopefully this is the last cos after 9 transfers, 7 MC I am almost over it.
    I do believe my new treatment plan will give us our take home baby. Fingers crossed for both of us! Xx

  12. The Following User Says Thank You to Olive79 For This Useful Post:

    ange1111  (15-04-2016)

  13. #219
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    I hope you have good luck this time @Olive79
    I am doing donor egg in South Africa. I just received my treatment protocol from them and they want me to go "back to basics" after 3 failed transfers last year. I have not told them i am with Dr M here in Oz and of course this is our most intensive protocol yet as Dr M has me on neupogen, LIT, prednisolone and clexane plus intralipids. Do i tell my clinic in SA or not? Im not sure whether my Dr there is for or against reproductive immunology. Not sure how i will explain my clexane bruises if i dont tell them. Anyone who has been with CFC have any opinions? X

  14. The Following 2 Users Say Thank You to ECM1981 For This Useful Post:

    ange1111  (21-04-2016),Olive79  (15-04-2016)

  15. #220
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    Are you allowed to find out the second when u do genetic testing? I thought that was illegal?


 

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