We applied for Qld's Helping Children with Autism package for our other child and are still waiting. I applied when I got to Qld some months back and despite queries, it's still in the queue. Nothing I can do, really, except wait. Our eldest is not eligible for Qld funding as he is under NDIS. With the new dates we will lose NDIS if we don't get back to SA by the end of the year. This is massive for us and something that we are seriously going over and over because I love the house I'm in now and enjoying the town and things are just starting to smooth out and hum over....and now this.
As a Qldr yourself you will probably know that they are also getting rid of the EDCP programme in Qld but with the new deadline of 2020, it's envisaged the Qld govt will negotiate with the feds to ensure funding for this continues via NDIS. But in the meantime, parents are going stupid with worry trying to work out what is going on because a few mums have taken it upon themselves to assume that the govt will do nothing and whipping up a frenzy with Facebook pages and petitions...all without facts. Plus, as you will probably have picked up, Qld parents are stressing themselves out listening to all sorts of stories and doomsday predictions which is just ridiculous as NDIS in of itself is very easy to manage. But the hysteria is unreal. I've had to step right back from forums because the bullsheet is just too infuriating. People are just spinning stories with no truth in them, winding everyone up. I have enough to stretch my nerves without that! Lol.
Meanwhile, I have absolutely no idea what to do about my eldest child. And it's hurting. We are waiting for entry into EDCP again (have to go through the whole rigmarole of sitting out the weeks and weeks it takes in Qld to get an enrolment approved) because despite visiting several schools, none are equipped to educate a child like mine. And I'm not alone. There are other parents out there who are in the same position so I'm not writing woe-is-me although I admit I'm crying a lot more in the shower these days You know, it's funny, I'm not a religious person but I find myself mentally asking Lord, what is it you're trying to teach me? As though this entire run is somehow a lesson in something. That's the feeling I have and it's what keeps me afloat I think. xx