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  1. #1
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    Default Sensory issues

    Bit of a background. My daughter is 16 months, has had silent reflux and failure to thrive as well as mild development delays and constant feeding issues.

    We have been seeing a public paed every 3 months through a big children's hospital. She sent us to the feeding clinic/speech therapist today. They have said that she sounds like she has sensory issues to do with feeding, her hands and mouth. They will be sending info/activities to do to help her.

    My question is (before I get the info letter), who has been through this, what can I do and does it get easier/better?

  2. #2
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    Just posting to come back and reply. ..because I keep losing your thread!

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    Mamasupial  (04-02-2016)

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    My 5 year old DS has sensory issues with food due to having ASD.

    He was a bit slow to pick up on solids as a baby. We found he ate pretty well from about 12 months - 2 years (quite a good range of foods actually), then gradually he'd start refusing to eat foods he'd once enjoyed.

    At age 5 the list of different foods he eats is less than 15. We are working on expanding his range with the help of his OT/ST doing food play sessions.

    I think that it's good that you are aware of this issue whilst your DD is still quite young, you'll hopefully have a good chance of improving things with the help of your specialists.

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    Mamasupial  (04-02-2016)

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    My Ds1 (to some degree) and my DS2 have sensory issues due to ASD also.

    They both used to eat everything put in front of them until about 2ish. However Ds1 displayed issues with vegetables and fruit that had skin since the day they were introduced. Like Corn, Grapes, and Peas. These things he still doesn't really eat.

    DS2 however has a very BIG list of things he doesn't eat, and has got me thinking about going forward to seeing a dietician. And bringing it up with his O.T.

    Does not like vibrant coloured vegetables. Anything Orange, Green or Red is generally a no no.
    Does not like consistancies similar to yoghurt and runny eggs. (will eat an omelette or scrambled eggs)
    Does not like puree.
    Does not like mashed.
    Does not like pasta or rice, for different reasons. Pasta for it's strange feel on his fingers, and rice because they are tiny.

    Will eat potato as long as it is a chip or gem.
    Eats bread forever.
    Eats chicken or fish as long as it is crumbed. Wont eat meat like steak or roast.
    Eats cereal, but likes it warm and soggy.
    Likes Ice cream, but struggles to eat it and spits it out in his hand and will continue to eat it that way. He struggles with holding a spoon.

    Fruit he will eat - oranges, strawberries and sometimes bananas. But those have taken some serious convincing.

    So as you can see he eats a lot of fibre. For about 3 weeks at the end of last year, he had no2s that was just water, and was frequent. One day we counting 10 poos, and I thought he was beginning to become intolerant to what he was eating and I was beginning to freak. But it looked like he just was eating to much fibre.

    I am often freaking out on what to make him, especially now that I have to pack lunches for him for Preschool. But I am seeing more these days as, as long as he eats, it's a good thing.

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    Hmmm how can I tell the difference between asd and just sensory issues? We have had the food issues since she was born.

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    Have you had genetic testing done @Mamasupial?
    Only that sometimes there are genetic issues present that cause failure to thrive and sensory stuff.

    As you know my daughter has a genetic condition. And we've battled food issues since body along with sensory stuff. Our OT called her 'sensory defensive '... in that she didn't present with SPD... or ASD typical symptoms. She would shy away. .often crawl away from me things. ..be it a scarf or a new food. But over time she would get over it. Sometimes really quick. .eg... hated playdough for a few weeks. .loves it now. Sand...took way long but now doesn't mind it

    An OT can definitely help you work on it. And devise a plan and goals to help.

  9. #7
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    We haven't had genetic testing done. She's doing ok with her weight. They put the failure to thrive down as being from her silent reflux and adversion to bottles. She was born in the 91% for weight, dropped to the 6th and has been between 10 and 20 since. ImageUploadedByThe Bub Hub1454579377.531736.jpg Her height also dropped down the chart. Right now they aren't concerned about her growth, just that she really doesn't eat a good variety of food. Only fruit she eats is bananas and today her educator said she's been refusing that too.

    With whatever activities they give us to do, how much improvement should I expect to see and how quickly? Do I give it a time limit before thinking it's something else/more?

  10. #8
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    Quote Originally Posted by Mamasupial View Post
    We haven't had genetic testing done. She's doing ok with her weight. They put the failure to thrive down as being from her silent reflux and adversion to bottles. She was born in the 91% for weight, dropped to the 6th and has been between 10 and 20 since. Attachment 78098 Her height also dropped down the chart. Right now they aren't concerned about her growth, just that she really doesn't eat a good variety of food. Only fruit she eats is bananas and today her educator said she's been refusing that too.

    With whatever activities they give us to do, how much improvement should I expect to see and how quickly? Do I give it a time limit before thinking it's something else/more?
    That is really variable. Look on pinterest and you'll find heaps too. One thing we did with sensory issues in the mouth was introduce an electric toothbrush.
    Also drinking bubbly water.
    Others with hands are playing with
    Water
    Rice (not cooked. .you can colour it and stuff)
    Playdough plus other putty stuff
    Those cheap rubbery type toys grin cheap shops
    Shaving cream
    Plus putting stuff in the shaving cream to find
    Paints

    I can't think of anymore right now!

    You've seen a paed though if i remember so I would think of there were any other markers for genetic testing they would have done that. I have two friends (not related or anything) and both their kids had feeding issues from the start. They are small. Eg...one of their daughters is about the size of an average 3 year old but she's 5. She's a problem eater plus with reflux etc. But she's perfect. ..
    She's growing on her own curve and stuff so you must be doing lots of things right! !

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    Mamasupial  (04-02-2016)

  12. #9
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    Thank you. We have been seeing our paed for quite a while. I am happy with how possum is going and growing. I just wish food time wasn't such a nightmare. I feel like hitting my head on the wall repeatedly every time lol.

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    Quote Originally Posted by Mamasupial View Post
    Thank you. We have been seeing our paed for quite a while. I am happy with how possum is going and growing. I just wish food time wasn't such a nightmare. I feel like hitting my head on the wall repeatedly every time lol.
    I feel you. I'm pretty good at just surrendering to it. Usually. But even tonight and last night DD flatly refused anything I offered. Pretty much a disaster.
    It really sucks. I wish there was an easy answer but perseverance is really the only option.


 

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