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  1. #31
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    Quote Originally Posted by nh2489 View Post
    My gp sent a faecal sample off for my ds2 who I suspect has cmpi and whilst it had a lot of obvious mucous the result was "negative" as they are just looking for bacteria etc. As far as I am aware traces of blood can be an indication of an allergy but it's only showing inflammation rather than a specific allergy diagnosis. I think the faecal sample is mainly to rule out other infectious causes of diarrhoea before considering allergies.
    They actually tested mine, the report states elevated stool alpha 1 antitrypsin 3.0 mg/g

  2. #32
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    Quote Originally Posted by nh2489 View Post
    My gp sent a faecal sample off for my ds2 who I suspect has cmpi and whilst it had a lot of obvious mucous the result was "negative" as they are just looking for bacteria etc. As far as I am aware traces of blood can be an indication of an allergy but it's only showing inflammation rather than a specific allergy diagnosis. I think the faecal sample is mainly to rule out other infectious causes of diarrhoea before considering allergies.
    They actually tested mine, the report states elevated stool alpha 1 antitrypsin 3.0 mg/g

  3. #33
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    Quote Originally Posted by maternidade View Post
    They actually tested mine, the report states elevated stool alpha 1 antitrypsin 3.0 mg/g
    That would have been useful. Like pp I didn't get any phone calls etc, I only found out the results after going to a diff gp for a second opinion a few weeks later when ds2 started passing clumps of bloody jelly mucus and my go surgery was closed for 2 weeks over Xmas! The new doctor phones around all the labs she could until we eventually found the one it had been sent to and it was just negative. I didn't ask about the alpha 1 antitrypsin but have a feeling it wasn't tested.

  4. #34
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    It takes about 3-4 weeks for baby to get used to formula too remember please xx

  5. #35
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    Yes, DS has been on the new HA formula about a month now. He still has a lot of gas. No sign of improvement. If he has allergy, HA formula should show improvement which isn't. We feel like the prescription formula might not be the answer. Kinda lost of what to do next.

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    Someone suggests us to try soy formula. What do you think? Goat milk doesn't help if he has milk protein allergy.

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    Quote Originally Posted by bbhope View Post
    Someone suggests us to try soy formula. What do you think? Goat milk doesn't help if he has milk protein allergy.
    There are a small number of MPA sufferers who also cant have soy ( we are one of them )
    I suspect I too had the allergy as an infant and apparently my symptoms cleared up when I was swapped to soy

  8. #38
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    The appt with the gastroenterologist wasn't as constructive today. We were rushed off as usual. 5 mins in and out appointment. I didn't think he was running behind at all. In fact, i didn't see anyone seeing him after us. Kinda annoyed.

    The stool test comes back normal so we were told again to wait it out. The dr didn't think it is necessary for us to get DS on neocate. We can just stay on the aptamil HA or switch it back to nan comfort. Starting DS on solid was suggested. If nothing improves, we will go back in two months time. Honestly, i feel like we better off seeing a good general paed. It costs so much to see a specialist and getting an appt has been a pain. I don't see why a good general paed can't do what the gastroenterologist had done for us -- stool test and switch formula. Of course, it is hard to find a good paed!!!

    Someone mentioned tongue tie to me so i asked. The gastroenterologist isn't familiar with it so referred us to the surgeon next door. Luckily, we were able to talk to him straight away for 5 mins. No surprise, we had to pay the first full consultation fee. Guess what? DS has a severe one and the surgeon was a bit surprised that it wasn't diagnosed until now. This might explain why DS is gulfing so much air. He is making clicking sound with the bottle. We just thought that he is fussing as usual due to reflux or gas problem. I wish someone would tell me that when he wasn't draining my breasts well and gave me sore nipples. I gave up breastfeeding because fed up with his fussiness.

  9. #39
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    If possible also get him checked for a lip tie. Both of my daughters had them (and one had a tongue tie too). Once they were corrected we had a lot of difference. Both of my daughters had mucous and blood in their stools. One was dairy and soy intolerant, the other dairy, soy and egg. (Soy and dairy have a very similar protein structure, so often if they are allergic to one they are also allergic to the other). I had to go off any trace whatsoever in all food with my bubs as I was breastfeeding. Once I did that, had their ties fixed and also medicated for reflux (absolutely awful reflux in both) it was like I had different babies. Both of mine have grown out of their allergies now, but it was very hard for a while. Sorry if I have repeated what others have said, I haven't read all responses.

  10. #40
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    And there is no testing for CMPA (cows milk protein intolerance) except for an elimination diet. It takes 3 weeks to leave your system and can take the same amount again to leave bubs. So it takes a lot of patience and can be frustrating. But it's worth it if you get to see a happy baby by the end of it.


 

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