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  1. #961
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    Welcome @Rhino.

    You mentioned the World Egg Bank, so just letting you know that I believe that hasn't been very successful for people here and it's very expensive. I do know one person it's worked for but I've not heard of any others.

    I agree with others that it's well worth having immune testing done. But, you'll probably need to find a FS here that actually believes in it.

    I have a quick question for others here....Does anyone know if donors are tested for Cystic Fibrosis gene before donating? I'm assuming not, but obstetrician asked me about it today.

  2. The Following 4 Users Say Thank You to MrsErinR For This Useful Post:

    ECM1981  (28-04-2016),midnite01  (29-04-2016),Miss Sagi  (28-04-2016),Rhino  (29-04-2016)

  3. #962
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    Miss erin, they have started testing for the common D508 gene in some of the agencies but its not standard as yet i dont think. In greece and spain i think it is tested for all donors and i think its quite thorough. I am a D508 carrier and my husband carries another less common one, it would not have been picked up had we not requested the full cf genes test-there are loads of them- here in Australia when we started ivf. We have to get our donor screened for all cf gene mutations because he is a carrier. It took about 7 weeks for the results and i think ot was around $400. CfC said if she had of turned out to be a carrier she would not have been allowed to donate to anyone again by law. Does your partner have the cf gene?

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  5. #963
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    @JulieMalooley, thank u for the information and congratulations on your twins I am considering going to CFC for egg donor, but before reserving my donor that I like- I want to carry out immune testing first since reading on previous thread. I was wondering can FS here in Australia prescribe medication as advised by CFC? and also does CFC transplant 5 day embryos? Kind regards Avei
    Last edited by Aquinos77; 28-04-2016 at 22:40.

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  7. #964
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    Oh miss erin i just read your little history thing at the bottom that says baby due oct ☺ your donor may have been tested, do you still have her notes from the donor agency, it should be in the medical section of those

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    Quote Originally Posted by ECM1981 View Post
    Miss erin, they have started testing for the common D508 gene in some of the agencies but its not standard as yet i dont think. In greece and spain i think it is tested for all donors and i think its quite thorough. I am a D508 carrier and my husband carries another less common one, it would not have been picked up had we not requested the full cf genes test-there are loads of them- here in Australia when we started ivf. We have to get our donor screened for all cf gene mutations because he is a carrier. It took about 7 weeks for the results and i think ot was around $400. CfC said if she had of turned out to be a carrier she would not have been allowed to donate to anyone again by law. Does your partner have the cf gene?
    Thanks for the info. My DH is not a carrier as far as we know. I'm just curious really as I have started with a new OB this week and he asked if we'd ever considered testing for that. I didn't even know that we could, as previous OB hadn't mentioned it.

    I don't think we'll have testing as we have no reason to think there is an issue, plus I'm16 weeks pregnant now so if we found he was a carrier it wouldn't prevent us going ahead with the pregnancy now.

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  10. #966
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    @MrsErinR, congratulations with your pregnancy. I was wondering whether u went through CFC in SA?

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    @MisserinR I'm sure all will be ok did you do any immune treatment for your success? Congrats and wishing you a happy healthy pregnancy xx

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  13. #968
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    Quote Originally Posted by Aquinos77 View Post
    @JulieMalooley, thank u for the information and congratulations on your twins I am considering going to CFC for egg donor, but before reserving my donor that I like- I want to carry out immune testing first since reading on previous thread. I was wondering can FS here in Australia prescribe medication as advised by CFC? and also does CFC transplant 5 day embryos? Kind regards Avei
    Aquinos my FS didn't want to support me in prescribing meds needed because we were using overseas egg donor and I think it was against their protocol, so I found an ob/gynae who specialised in fertility and also believes in immune issues. Also my gp is very helpful and has written out most of the medications and bloods that CFC wanted me on. I think CFC is the most popular clinic for women on this thread but a few have used different ones but I don't know the names of the other clinics. Good luck x

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    @ECM1981, thank you for your post. I was going to contact Dr Ong to prescribe my medication, but since you've mentioned GP, might get him to prescribe. And also am am planning to see Dr M to test any immune issues, as Ive suffered from arthritis, endo, cysts, and have had laporoscopy x3 and hysteroscopy. x2 I have had 9IVF cycles and have not fallen pregnant. So was thinking of trying Dr M's medication protocol in addition with CFC medication protocol as well. All the best with your journey and I believe our dream to be moms will happen soon xo

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  16. #970
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    Quote Originally Posted by Aquinos77 View Post
    @JulieMalooley, thank u for the information and congratulations on your twins I am considering going to CFC for egg donor, but before reserving my donor that I like- I want to carry out immune testing first since reading on previous thread. I was wondering can FS here in Australia prescribe medication as advised by CFC? and also does CFC transplant 5 day embryos? Kind regards Avei
    Hi @Aquinos77 CFC don't seem to prescribe much out of the ordinary drug wise imo. I just presented the medication list to my FS and asked if he would supply it all and he had no problem with that. He was a bit more cagey about the immune drugs (as he was yet another who didn't believe in it) but still prescribed them as it was low dose. CFC seem to prefer to do only 5 day transfers and would probably only do 3 day if you had a particularly poor response from your donor and had few embies I think.


 

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