@Tahli when are you back over there love?
I arrive into CT and transfer on the same day, Fri 20th May. xx
Hello! I'm new here. First time poster, long time reader.
We just got back from SA last week from my first DE cycle, with a BFN
Would love to be part of the conversation here. Here's my story.
I have had autoimmune issues since childhood - managed relatively well with meds over the years, although I have had some painful times. I get to live a (mostly) normal life, have travelled extensively, which is awesome, and most people wouldn't know I have these issues.
We have been TTC for 4 years, I'm in my late 30s. I was diagnosed with endo 3 years ago - had the symptoms since my teens but like many, it was not diagnosed. Had the surgery, removed a bunch of scar tissue.
I fell pregnant a couple of months later, but I lost the baby.
About 6 months after that, we did two cycles of IVF. One of my ovaries doesn't function (possibly to do with the endo), so got few eggs and poor quality embies and none to blast.
Because of my history, it was an easy decision to seek DE. I'm not that attached to my genes. I don't want my kids to deal with this sh*t. I also think families are bigger than genes.... families are a shared story. Shared love.
I looked into Czech but felt more comfortable with the program in Cape Town. I also found a donor who was an excellent match to me which sealed the deal for me.
We flew over there in early April, stayed at the Vineyard Hotel and then an apartment in Camp's Bay for the final few days. We loved CT.
We got 4 blasts, transferred 2 and froze 2. I has a feeling from the day after the transfer that it wasn't going to work. We got home and got a BFN on Friday.
I wasn't all that impressed with CFC tbh - I found them a bit blase about it all. I'm not sure I was on the right protocol.
So anyway, feeling a bit heart sore at the moment. Would love to connect with some of you ladies in the same boat.
At this stage am planning to return to CT in July for the FET.
Last edited by fleetfox; 24-04-2016 at 12:58. Reason: post too long
Fleet, sorry it didn't work out. If you have auto immune issues you definitely need to consukt with Dr M. He is tge man in Aus that deals with immune issues parallel to IVF. There is an immunology thread on hear. As a start you could read the book Is your body baby friendly. I believe his treatment plan got me my twins, oh and younger eggs!
@fleetfox welcome to this thread. Im so sorry about your bfn. As the other ladies said yiu should definitely see Dr Matthias who based in Sydney. He does phone consults. I am in Perth so he can still treat you via phone and possibly request you to fly to sydney. I am going back in June for my 4th attempt. 3 bfn last year. I agree with you that i find CFC a bit blasè about some things. This time round my nurse is not very organised which is frustrating. So i am doing my protocol through Dr M and have not told CFC about all the meds he has me on. They want me to do a 'basics' cycle but im actually doing a full on cycle in my opinion. For me it is anyway. I am using a totally new donor. Are the grades of your final embryos good? I wish i had of tried a new donor for my third attempt instead of using the remaining 3 embryos i had left and doing a Frozen transfer. When we go over this time i will get my husband to leave a sperm collection there to freeze as a back up. This was suggested to me by another bubhuber. Then if we have another failed transfer DH wont have to fly over again if we chise a new donor. But tbh im not sure i will go back to CFC again if i get a bfn and will look into other countries or even surrogacy. Ask any questions, lots of girls here to help you xx
Thanks ladies for the responses and suggestions <3
I am on 10mg prednisone, which I need to manage my immune disease anyway, so was on that through the cycle. Have been on that for the 2 other IVFs as well. Thanks heaps for the suggestion on Dr M, I will get a referral. After a lifetime of medical issues, I do find a lot of docs have poor knowledge of immune issues unless they are specialists. I have an immune specialist here in Melb but she doesn't have the knowledge about fertility.
ECM - so sorry to hear about your 3bfn, and thanks for your insights. Would love to hear more of your story.
I felt that CFC didn't pay much, if any, attention to my medical history - they just put me on a standard protocol.
CFC Dr checked my lining on first appt and then gave us tourist tips for 15 mins. Was clear from his comments that he hadn't read my file (as we were walking out and I made a comment about IVF, he said "oh, you've done IVF before?") Then a week later we did the transfer - so all up 7k for less than half an hour of face time! Pretty standard for IVF I guess.
I had a couple of issues that concerned me on the cycle - first, when I started the synarel on CD1 to suppress my hormones, my period stopped - worried that this may have affected things, but they said not to worry. Also, at the first appointment in CT, my lining was 12mm after 14 days on progynova - we did the transfer a full week later - worried that the lining would then be too thick - again, they said it was all fine. Am concerned they are not really paying attention?
I was so excited to get any blasts at all tbh, as that's new for us. All 4 blasts were BB3AA which CFC said was good quality - would be interested to hear any thoughts on this. Plan is to transfer the final 2 in a couple of months.
I also question their success rate of 65% at CFC? Have seen previous posts here that show about 50/50 bfn/bfp for people on this forum.
Last edited by fleetfox; 24-04-2016 at 13:08. Reason: clarifying something
Yes theu are not really interested in your background or figuring out why it didnt work. I was told I had bad luck. When i requested to see Dr W before my 3rd transfer to discuss why i was not having any luck at all he seemed suprised that i wanted a consult with him. When i walked in he was like 'so what can i do for you?' Umm how about help me get pregnant??! Tell me why you think i am not getting pregnant, have you even read through my file, do you know who i am?! And our nurse in 2nd and 3rd attempt saw us in the waiting room and disnt say a word to us. Not even a 'hi how was the long flight?'. I guess they are there to provide us with young eggs and a transfer. The rest is up to us to look into unfortunately. If i got my bfp the first time i would have thought CFC were the bomb. Im not blaming them for the failures but i wish they were a bit more invested in me personally. I think they are too busy for that. But i am grateful that we have the option to access the generous egg donors through the clinic. That is a blessing.
But also i didnt really have much luck with my clinic here in perth either. They were not interested in finding out why it wasnt working and kept me on the same protocol each time, then after 4 Egg retrieval decided i had bad eggs and should move to Donor. Thinking back now they should have tried to improve my eggs. I was only 31 at the time. But it was easier for them to handball me i guess
Last edited by ECM1981; 24-04-2016 at 13:29.
I messaged Dr H to ask what options I have if my 1 frostie does not thaw... After coming such a long way. He said that 95% defrosted ok. In this instances he said I would have the option of an embryo from the egg bank, though he mentioned the bank was not very big. I am yet to find out more details about this. I am happy there is atleast this option, as I too filled out the form to say I was happy to donate any extras to the egg bank. I am a single lady.. So used donor sperm shipped from the U.S.. So no need to take a partners desire for a biological child into consideration. I was thinking.. That by donating.. Then there would be siblings out there for my child to meet if they wanted.
On a different note.. After having a reaction to Gestone last time...I am planning on using Dr WAz drug regime.. Anyone else told Dr H and used another Aussie dr protocol? I am getting WAz to monitor closely this time.. And having a lipoidal wash and endo scratched the month prior.
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