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  1. #141
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    Hello I think it's time for me join thread.

    We are just waiting for the second person to diagnose.

    I'm so stressed overall.

    Can I ask a few important questions which I know will vary between you all.

    -how do you discipline I'm having issues with H and he is very over stimulated etc
    - he bites etc and I need dd to feel safe too
    - school etc we have no idea what to look for etc.
    - he is angry and refuses to listen.
    - does anyone have an assistance dog.

    Much love tough mummas xx

  2. #142
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    @monnie24 welcome

    A lot of the behaviours you're being challenged by will be able to be worked on with the help of an OT & child psych. They have the experience and knowledge to provide strategies that really work. Kids like ours are wired differently, and in turn you'll need to change some of techniques you use to help him in everyday situations.

    If/when your DS is diagnosed, you will be able to access support services like the above. Do you know if the NDIS has been rolled out in your area?

    As for schooling, options are main****** class (ideally with funding for an aide), support class in a main****** school (this is my choice for my DS starting next year), or a special school.

    How old is your DS now? He's around 3 isn't he? It's a tough age regardless, but throw ASD into the mix and it's just terrible some days. Thankfully therapy is really helpful - my DS has come such a long way since he was 3.

    How are you coping with the diagnosis process? I found it very emotional when my concerns were confirmed. It's tough.

  3. The Following User Says Thank You to Mod-Degrassi For This Useful Post:

    White Mage  (24-07-2016)

  4. #143
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    I'm really depressed. I thought we were over our medical issues. Now I have this. Sounds ridiculous. I know he is going to be fine well I don't know but im just stressed. He is 2.5

    I have a lot of other stuff going on too. DH etc we are working our stuff out its very complicated.

  5. #144
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    Big hugs to you monnie.

    Schools can be hard work. When your DS is old enough he will go through some assessments which will help define which school he may prosper at.
    Once you know his IQ and what have you, it will narrow down your options on what school you will have available.
    Touring schools help a great deal to find one that you and your DS will be happy with.

    If you are not in an Early Intervention Service, I recommend you try and get him into one, they are there to help provide services and give you some information on where to go and educate you in more about how the disability stuff goes.

  6. #145
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    So it seems my DS1 has started noticing his differences amoungst his peers. I have never really brought the topic up of autism with him before. Mainly because I never knew where to start, and just how much of it he would understand..

    I bought a deep pressure singlet for him and put it on for the first time. He asked me if it was because his brain was 'broken.' I paused and my heart shattered. My DH heard it as well, and he just lost it. We explained that he wasn't broken, and he corrected himself by asking if it was more because his brain was connected differently. I told him that he is different just like everyone else. Some brains need glasses, some need hearing aids. And that we all have our strengths and weaknesses. Like he is good at numbers, and his friends maybe really good at colouring, things like that.
    I just went on a shopping spree on ebay and bought a vast array of kids books about autism, I am trying to get him to understand it all, before he learns from someone else the wrong way...

  7. #146
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    Welcome @monnie24 Sorry to hear you're struggling at the moment. I also found the diagnosis process really tough emotionally. It's alot to take in. My advice would be not to think about school just yet unless you have to. Start with finishing off the diagnostic process and linking him in with the appropriate services. As WhiteMage said, an early intervention service may be a great starting point. The autism service in your state (AMAZE in VIC, not sure what it's called elsewhere) is also a good starting point for resources.

    I think you'll find that once you're linked in with the right professionals (e.g. speech, psych, OT, paediatrician), you will start to get some support and ideas for the behavioural issues H is having. It must be super stressful for you trying to support H while ensuring your DD feels safe too. We don't have an assistance dog, but I have looked into training one and had a great chat to a mum at school recently about them (they are fostering one at the moment). They sound like they can be amazing when put with the right family.

  8. #147
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    double post
    Last edited by sajimum; 25-07-2016 at 13:33.

  9. #148
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    Oh my goodness White Mage, that must have been really difficult for you and DH to hear from your DS1. It sounds like you handled it perfectly. What books did you order? We aren't quite at that point with DD yet, but I have a stash of books and resources to look at with her too. How did DS1 respond to your explanation?

  10. #149
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    He told me he wasn't sad, but that he was happy.. I am not sure if I got what I was saying.

    I got 5 books.

    My Brother Charlie - Holly Robinson Peete
    The Way I feel - Janan Cain
    A friend like Simon - Kate Gaynor
    I see things differently: A First look at Autism - Pat Thomas
    All My Stripes: A Story for for Children with Autism - Shaina Rudolph

    I think they cover various things, like understanding siblings so it may help DS1 understand DS2. Classroom settings, and understanding his feelings and his self. We will see how this goes.

  11. #150
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    We had our second app today and this specialist didagrees with paed so now I need to wait she thinks Spd because he makes eye contact with me?? Do your kids make eye contact with you?

    I'm feeling overwhelmed and depressed. I could of paid for a $1200 assessment but didn't have the money so have gone cheaper way via hospital. But now need another opinion if I wish. She said revisit autism in 2 yrs. I don't know what to do.

    - he bites, spits, kicks, attacks dd, the dog, won't be left alone (can't even leave him at childcare they asked me pick him up), he loves bouncing, he doesn't eat still milk biscuits hot chips :/ train obsessed, I can't think right now as its late at night he attacks me too, he won't goto anyone but me if we goto playground he won't play he stands with me. I booked third opinion anyway as my mum told me too I'm just stressed. We did flash card things and he can't speak much but knows what things are

  12. The Following 2 Users Say Thank You to monnie24 For This Useful Post:

    Mod-Degrassi  (30-07-2016),White Mage  (30-07-2016)


 

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