+ Reply to Thread
Page 1 of 6 123 ... LastLast
Results 1 to 10 of 57
  1. #1
    Join Date
    Mar 2009
    Location
    QLD
    Posts
    523
    Thanks
    76
    Thanked
    114
    Reviews
    2
    Achievements:Topaz Star - 500 posts

    Default Childhood leukaemia

    Hi,

    Can anyone please chat with me about your experiences with childhood leukaemia? My 2yo DD was admitted to Lady Cilento hospital in Brisbane yesterday and diagnosed with leukaemia found via blood tests - her only symptom was that she stopped weight bearing.
    We are currently waiting to find out what type of leukaemia she has.

    Anyone willing to share their story or experiences would be so greatly appreciated.
    I'm not sure what to expect, how processes of treatment works, I don't even know how to coordinate my own life now. We live 5 hours from Brisbane but both DH and myself are here with her. Luckily she is currently an only child so I don't have to juggle other children to look after.


    Thank you x

  2. #2
    Join Date
    Aug 2013
    Posts
    4,187
    Thanks
    1,270
    Thanked
    2,595
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Awards:
    100 Posts in a week
    Agree with the above. Also @Hollywood may be able to be of some support. Her DD is in the process of chemo and I'm sure can offer some insight into tips and tricks she has learnt along the way.

    I would also ask to speak to a social worker. They can help you find subsidized accommodation near the hospital so the financial burden isn't as great. On the upside, south bank is only a short walk away so you can take her out for some fresh air and a play if you're allowed to escape the hospital environment. Friends of mine who have had their kids admitted there have only had positive stories. I hope for your and your DDs sake that it isn't a "bad" leukaemia and she doesn't get too sick from all the drugs.

  3. #3
    Join Date
    Feb 2009
    Location
    Country WA
    Posts
    6,644
    Thanks
    3,135
    Thanked
    3,028
    Reviews
    13
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    I don't have any advice, I just wanted to send you all some big hugs. That is news no parent wants to hear. Will be thinking of you xx

  4. #4
    TheGooch's Avatar
    TheGooch is offline Winner 2014 - Newbie of the Year
    Join Date
    Jan 2014
    Posts
    4,791
    Thanks
    8,052
    Thanked
    4,143
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Awards:
    100 Posts in a week
    No advice just thinking of you x

  5. #5
    Join Date
    Sep 2011
    Posts
    7,160
    Thanks
    1,701
    Thanked
    3,395
    Reviews
    4
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Quote Originally Posted by meredithgrey View Post
    Can I suggest getting in touch with the Leukemia Foundation as well as speaking to your daughters nurses and doctors. They should be able to answer all of your questions about treatments and what to expect etc

    There should also be a social worker available to help you with other thing.

    There's also a Facebook page calling "breaking down barriers for rural patients" - it's a local Brisbane lady that helps out families that are transferred to Brisbane for medical care.

    Have a chat to the other parents in the ward as well
    Yes. Her name is Justine. She'll be very helpful if you need anything at LCCH. I'm there quite a lot with my daughter. If you need anything please don't hesitate to ask.
    Plus ask the nurse about the social worker. They can help you with parking stuff. ..short term accommodation etc. If you have any questions about places to stay please ask. Eg. Reg Leonard house is just behind the Mater. Small (not fancy) self contained units that are subsidized through the Patient travel scheme. They are a good place to be for rest/sleep and day leave etc. (There are other options too).
    I'm so sorry you're daughter has been diagnosed. You are in great hands with the doctors there.

  6. #6
    Join Date
    Aug 2012
    Posts
    1,105
    Thanks
    892
    Thanked
    630
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Awards:
    Bubhub Blogger
    I'm so sorry to hear this. I think there's a Ronald McDonald house close to Lady Cilento, perhaps if you contact them they could help with temporary accommodation.

  7. #7
    Join Date
    Oct 2015
    Posts
    1,008
    Thanks
    780
    Thanked
    774
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    No personal experience, but I do know that the leukaemia kids can be in hospital for a month at a time.

    Thinking of you. I hope everything is okay.
    Last edited by SSecret Squirrel; 01-11-2015 at 16:43.

  8. #8
    Join Date
    Feb 2012
    Location
    Brisbane North
    Posts
    4,460
    Thanks
    1,581
    Thanked
    1,802
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    Im so sorry to hear this, thinking of you.

  9. #9
    Join Date
    Mar 2009
    Location
    QLD
    Posts
    523
    Thanks
    76
    Thanked
    114
    Reviews
    2
    Achievements:Topaz Star - 500 posts
    Thank you so much guys, I just want to let you know that the replies are helping and I will re-read them properly again soon once DD goes to bed and I have some down time.
    And to any future posters, throw that advice my way.

    Xx

  10. The Following User Says Thank You to alexis243 For This Useful Post:

    TheGooch  (01-11-2015)

  11. #10
    Join Date
    Apr 2008
    Posts
    934
    Thanks
    303
    Thanked
    209
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    No advice, hugs thinking of you. xx


 

Similar Threads

  1. Trying to find a childhood book
    By deku in forum Movies / Music / Books / TV Chat
    Replies: 40
    Last Post: 05-05-2015, 13:46
  2. Childhood speech apraxia
    By Tamtam in forum General Child Health Issues
    Replies: 7
    Last Post: 01-02-2015, 19:58
  3. Childhood acne
    By LotusMum in forum Dry Skin and Eczema
    Replies: 8
    Last Post: 10-11-2014, 16:43

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
free weekly newsletters | sign up now!
who are these people who write great posts? meet our hubbub authors!
Learn how you can contribute to the hubbub!

reviews
learn how you can become a reviewer!

competitions

forum - chatting now
christmas gift guidesee all Red Stocking
Mother and Baby Shop
Save $$$ during our Christmas Sale Mother and Baby Shop
Great prices on Schoenhut kids pianos, toys, baby clothing as well as big brands like Pigeon, NUK, Cherub Baby and many more. Sale starts on 1 November 2016 and ends on the 27 December 2016. Hurry! Place your order today!
sales & new stuffsee all
True Fairies
True Fairies is the first interactive website where children can engage and speak with a real fairy through the unique webcam fairy portal. Each session is tailored to the child, and is filled with enchantment and magic.
Visit website to find out more!
featured supporter
Tribalance
TriBalance is a physio, yoga & pilates studio in Brisbane's inner north, offering specialised women's health physiotherapy services. Weekly pregnancy yoga classes are scheduled at the studio on Thursdays 1- 2pm and Saturdays 1-2:15pm.
gotcha
X

Pregnant for the first-time?

Not sure where to start? We can help!

Our Insider Programs for pregnancy first-timers will lead you step-by-step through the 14 Pregnancy Must Dos!