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  1. #31
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    Hi ATsydney. I replied to this thread a few months ago when I was recovering from my lap to remove endo and endometriomas on my ovaries. This is my 3rd surgery for endo and the last 2 times they have warned me it could damage my fertility more. Both times after my last 2 laps I have gotten my bfp 6 weeks later. First time ended in miscarriage but I'm now 11 weeks pregnant and all looks good so far. I have my fingers crossed that you will get the same outcome from your lap

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  3. #32
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    Hi @ATsydney. Sorry ur going thru this Pls get a second opinion before u make a decision on surgery. Once the surgery is done it can't be undone so don't rush into it before u've looked at all ur options. Go thru the ivf threads, there are lots of ladies going thru poor response also and their fertility specialists have tweaked their cycles or given them things to help. It can sometimes be improved. Maybe u can get a few ideas of things that worked for others and discuss trying some of them with ur doc. The threads are very inspiring. I have endo (12cm and 7cm cysts) but not low amh. I'm now 30 weeks pg after draining my cysts and ivf (cysts were 6cm and 3cms at transfer so I don't believe it plays a role in implantation but could just have been lucky?). I personally don't like the sound of ur doc and would see someone else. I also personally wouldn't go down the surgery route just yet due to risk of lowering ur amh further. I would try to improve ur response and if that didn't work last resort would be surgery. That's just my opinion tho. Pm me if u want more dets abt my treatment, I had to be very forceful and fight/compromise with my doc, he was keen to cut half my ovaries out, it was the only way apparently... Do lots of research and trust ur instincts x

  4. #33
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    ATsydney i was 23 and had an AMH of 3. I was told that the test isn't very accurate and if i wanted to test again i could but i didn't as i dont want to waste another $80 on something that isn't accurate.

    I have stage 3 endometriosis at the moment it doesn't seen to be active as I'm now one year pp but i do get lots of pain.

  5. #34
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    Quote Originally Posted by Just*Ace View Post
    Hi ATsydney. I replied to this thread a few months ago when I was recovering from my lap to remove endo and endometriomas on my ovaries. This is my 3rd surgery for endo and the last 2 times they have warned me it could damage my fertility more. Both times after my last 2 laps I have gotten my bfp 6 weeks later. First time ended in miscarriage but I'm now 11 weeks pregnant and all looks good so far. I have my fingers crossed that you will get the same outcome from your lap
    Hi just*ace
    That's amazing news! Congratulations! So happy for you. Who did your lap? Do you know what your AMH is? X

  6. #35
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    Quote Originally Posted by NizzleRizzle View Post
    Hi @ATsydney. Sorry ur going thru this Pls get a second opinion before u make a decision on surgery. Once the surgery is done it can't be undone so don't rush into it before u've looked at all ur options. Go thru the ivf threads, there are lots of ladies going thru poor response also and their fertility specialists have tweaked their cycles or given them things to help. It can sometimes be improved. Maybe u can get a few ideas of things that worked for others and discuss trying some of them with ur doc. The threads are very inspiring. I have endo (12cm and 7cm cysts) but not low amh. I'm now 30 weeks pg after draining my cysts and ivf (cysts were 6cm and 3cms at transfer so I don't believe it plays a role in implantation but could just have been lucky?). I personally don't like the sound of ur doc and would see someone else. I also personally wouldn't go down the surgery route just yet due to risk of lowering ur amh further. I would try to improve ur response and if that didn't work last resort would be surgery. That's just my opinion tho. Pm me if u want more dets abt my treatment, I had to be very forceful and fight/compromise with my doc, he was keen to cut half my ovaries out, it was the only way apparently... Do lots of research and trust ur instincts x
    Hi NizzleRizzle
    Congratulations on your BFP, so happy for you. I love hearing these stories.

    Having my cysts drained was never given to me as an option. Who treated you? Did they suggest that or you?

    On the last cycle they put me on growth hormones and LH injections to try and improve my response. They saw six follicles (improvement on the previous cycle where there were only 3) but only one dominant follicle so once again the cycle was cancelled and we just had timed intercourse 36 hours after the trigger.

    I was originally booked in for surgery in sept but freaked out and decided to delay it so I could try IVF one last time. IVF is so emotionally draining, I would be shaking and crying every time my phone rang and I saw it was Genea.

    The problem is that I've not just had a second opinion, I've had five! Two of them said avoid surgery. Three said for me to go straight ahead. Two of those even told me not to bother with IVF first. So it's very hard to make a decision.
    X

  7. #36
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    Quote Originally Posted by Miss.Glitter View Post
    ATsydney i was 23 and had an AMH of 3. I was told that the test isn't very accurate and if i wanted to test again i could but i didn't as i dont want to waste another $80 on something that isn't accurate.

    I have stage 3 endometriosis at the moment it doesn't seen to be active as I'm now one year pp but i do get lots of pain.
    Sorry to hear that Miss.Glitter. How old are you now? Are you trying to fall pregnant? Yes, I've heard the AMH test is bull**** too. In fact my friend sent me this today http://m.smh.com.au/national/unrelia...123-2y2s1.html

    So did you have surgery in the end? If so how long ago?

    X

  8. #37
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    Quote Originally Posted by ATsydney View Post
    I've already tried IVF now three times and never made it to egg collection because of low estrogen, one leading follicle with others way behind or too few follicles. So I feel like I don't have much choice but to try surgery. The only other option would be to delay surgery and try iui seeing as you only need the one egg/follicle for that. Apparently the endometromas zap up the stim drugs.

    So have you tried IVF yet? What's your AMH?

    X
    Oh okay, yeah my Amh was 3.1 however I believe if I did it again now it would be higher due to my supplements etc. but I don't want to waste my headspace thinking about it. Yes I've done one round IVF 8 follies. Second round IVF got me 1 cyst 1 follie so we converted to iui which didn't work. I'm changing specialists so hoping that might get me somewhere.

  9. #38
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    Quote Originally Posted by ATsydney View Post
    Sorry to hear that Miss.Glitter. How old are you now? Are you trying to fall pregnant? Yes, I've heard the AMH test is bull**** too. In fact my friend sent me this today http://m.smh.com.au/national/unrelia...123-2y2s1.html

    So did you have surgery in the end? If so how long ago?

    X
    I had no endometriosis then had my uterin reconstruction op as i have a two wombs then after that op i got endo due to the back flow of the blood. I found out i had endo 7 months after my op and had it removed and got pregnant in may 2014 and had lots of complications during pregnancy but that as due to an incompetent cervix.

    I recently had a lap and hyst to see if my endowas back but we couldn't see any active endo as my bodys immune system got rid of it but i have small creators from where my body attacked the endo and im still in lots of pain.

    We will ttc for #2 in August this year.in saying that i haven't been on bc since DD was born in January
    Quote Originally Posted by ATsydney View Post
    Sorry to hear that Miss.Glitter. How old are you now? Are you trying to fall pregnant? Yes, I've heard the AMH test is bull**** too. In fact my friend sent me this today http://m.smh.com.au/national/unrelia...123-2y2s1.html

    So did you have surgery in the end? If so how long ago?

    X
    I had no endometriosis then had my uterin reconstruction op as i have a two wombs then after that op i got endo due to the back flow of the blood. I found out i had endo 7 months after my op and had it removed and got pregnant in may 2014 and had lots of complications during pregnancy but that as due to an incompetent cervix.

    I recently had a lap and hyst to see if my endowas back but we couldn't see any active endo as my bodys immune system got rid of it but i have small creators from where my body attacked the endo and im still in lots of pain.

  10. #39
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    Default Low AMH with endo - should I have a laparoscopy straight away?

    Quote Originally Posted by ATsydney View Post
    Hi NizzleRizzle
    Congratulations on your BFP, so happy for you. I love hearing these stories.

    Having my cysts drained was never given to me as an option. Who treated you? Did they suggest that or you?

    On the last cycle they put me on growth hormones and LH injections to try and improve my response. They saw six follicles (improvement on the previous cycle where there were only 3) but only one dominant follicle so once again the cycle was cancelled and we just had timed intercourse 36 hours after the trigger.

    I was originally booked in for surgery in sept but freaked out and decided to delay it so I could try IVF one last time. IVF is so emotionally draining, I would be shaking and crying every time my phone rang and I saw it was Genea.

    The problem is that I've not just had a second opinion, I've had five! Two of them said avoid surgery. Three said for me to go straight ahead. Two of those even told me not to bother with IVF first. So it's very hard to make a decision.
    X
    Agggh how frustrating for u!! Good to hear u've sought diff opinions and tried some diff things with ur IVF. Sorry it still hasn't made anything clearer. Maybe u should consider surgery then? Ask ur doc to be super conservative and maybe not touch ur ovaries but just get rid of the surrounding endo (u should still be ok with small cysts? Mine were 6 and 4 cms during ivf and it worked but I could have just been lucky?). And at least they can see what's going on in there and that it's nothing else. I think ur cysts might be too small to drain, there is a minimum size but I can't remember what is was, maybe 6cms? U could always ask. It wasn't suggested to me, it was something I pushed for after reading how they treat it in Europe (we seem to be so behind and backward in Oz!! They are very conservative and more advanced in Europe). There is slight damage to ur ovary with draining but not as much as cutting or lasering the cysts out so it's a safer option. I had my surgery done in melb when I was living there so not sure abt surgeons in Sydney but a quick Google search should uncover the top docs. U def want a good surgeon to avoid unnecessary damage to those areas.

    Where are u at now regarding ur next step?
    Last edited by NizzleRizzle; 07-02-2016 at 09:45.

  11. #40
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    Quote Originally Posted by NizzleRizzle View Post
    Agggh how frustrating for u!! Good to hear u've sought diff opinions and tried some diff things with ur IVF. Sorry it still hasn't made anything clearer. Maybe u should consider surgery then? Ask ur doc to be super conservative and maybe not touch ur ovaries but just get rid of the surrounding endo (u should still be ok with small cysts? Mine were 6 and 4 cms during ivf and it worked but I could have just been lucky?). And at least they can see what's going on in there and that it's nothing else. I think ur cysts might be too small to drain, there is a minimum size but I can't remember what is was, maybe 6cms? U could always ask. It wasn't suggested to me, it was something I pushed for after reading how they treat it in Europe (we seem to be so behind and backward in Oz!! They are very conservative and more advanced in Europe). There is slight damage to ur ovary with draining but not as much as cutting or lasering the cysts out so it's a safer option. I had my surgery done in melb when I was living there so not sure abt surgeons in Sydney but a quick Google search should uncover the top docs. U def want a good surgeon to avoid unnecessary damage to those areas.

    Where are u at now regarding ur next step?
    Hi #NizzleRizzle
    So I canceled my surgery for Monday. I was just freaking out about it too much and had a really bad feeling - your message definitely influenced my decision too so thank you again. In the mean time I'm researching surgeons abroad that do a two stage technique (draining and using co2 laser) have you heard of it? No one is Australia seems to offer it so yes I agree, seems like we're a bit behind the times here. Could you still send me your surgeons details - if I'm considering traveling to Europe I'd definitely travel to Melbourne!

    We're going to try naturally and IUI (seeing as you only need one egg for that) for a few months and if that doesn't work then I'll have tried everything and we'll go ahead with the surgery around May time - unless I can find a doctor that can offer me an alternative as mentioned above.

    My question to you is why did you get your cysts drained before IVF? Had you tried IVF with the cysts there and it didn't work? I ask because, everywhere I've read has said that endometriomas do not effect your response to IVF and do not reduce the success rates. However, I've tried IVF three times now and each time it's been canceled due to poor response (or most recently one follicle being way ahead of the other five). So if it's not supposed to affect response, why do they advise us to have surgery before trying IVF and why didn't I respond to IVF! I've heard of women with a lower AMH than mine that get 10 eggs!

    I've seen 5 specialists and not one of them has suggested draining my cysts. And it seems like such a logical solution to me.

    One more question for you, were they able to drain your cysts vaginally or did they have to do it through laparoscopy? And if so, did you have endo elsewhere? And was this removed? They couldn't see endo elsewhere on my scans I had done but I was told that if you have it on your ovaries, you're 95% likely to have endometriosis elsewhere so just interested to see if this was the case with you.

    Thanks in advance x


 

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