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  1. #1
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    Default Low upper body tone/strength; gross motor delayed

    Hi
    Not really sure anyone can help me with this; but I guess I'm just looking for anyone who may have been through something similar. .. and to vent :-)
    My bub is now 13 months old. Back at her 6 month check they raised her low muscle tone as a reason she wasn't moving (crawling or pushing herself up). Saw a physio bi-weekly for some time but tbh I'm not sure how much it helped
    Anyway; she's 13 months and still only commando crawling (which she started about 10 months). She can't pull herself up to stand; although she loves standing and is very steady and lets go once she's up.
    I know there's a large range of normal but I can't help stressing slightly.
    She's otherwise normal; clapping, waving, pointing, "speaking", able to use a spoon to feed herself, etc and engages with us but she just can't get herself moving
    Anyone with a similar story I'd love to hear what you did and how you got your bub moving more
    Thanks

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    BlondeinBrisvegas  (19-10-2015)

  3. #2
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    @KT8 My DD is 13.5 months old and has Hypotonia (low muscle tone). This has only recently been identified. When we were at her 12 month check/immunisations, I asked my GP to refer her to the Child Development Service as she had delays in her gross motor skills/some in her fine motor skills.

    At 12 months she couldn't even commando crawl properly let alone pull herself up!! She couldn't get up into a seated position from either her back or stomach, wasn't rolling the ball back to me nor holding things up for me to take (though she'd reach out and take things from me).

    She wasn't pointing, waving or clapping though her comprehension is fine and she knows what/who things are. Language-wise she's fine thankfully. After our 12 month appointment, I got onto the internet and researched excercises I could do here at home to help develop these areas. Watched some Youtube clips of PT excercises, did a lot of reading etc and then started to implement them here at home in the lead up to our PT appoint late last week where the therapist confirmed the Hypotonia.

    DD is now commando crawling properly everywhere, gets up on her hands and knees and rocks/bunny hops a little here and there or moves her knees and "crawls" a few paces before resuming the commando crawling. She's just off getting herself into a sitting position from her back, can stand up assisted for a little while before having to sit back down & rolls the ball back to me.She now sticks her index finger out to point but doesn't lift her arm yet. Sometimes she'll move her fingers a little to wave "bye bye" but no clapping as yet

    She was also having major issues with eating finger foods at her 12 month check but I've been working really hard in that area and now she'll eat almost everything I put onto her highchair tray!! Consequently, she won't have a bar or either her Dad or I trying to spoon feed her anything (as she's can't do it yet herself, though she'll pick up the spoon and stick it in her mouth) other than jelly with fruit & either yoghurt/custard

    The P.T. told me last week that the low muscle tone (which is affecting the trunk area of my DD) can affect other areas of her development like fine motor skills/language and would've contributed to the finger foods issue and also the constipation issue my daughter has and has had for quite some time. She also said that DD will eventually catch up to her peers but not until she's 5-7 yrs old and until then, she'll always be slower than the others in her gross development skills etc as it will take that bit longer for her to accomplish/master those skills.

    She thinks her Hypotonia is "Congenital Benign Hypotonia"...so basically the "unexplained" variety as she wasn't born with it...i.e... "floppy baby" and it's something that's only been recently identified though DD's always been slower in her gross motor skills development since around 6 months or so, but not majorly slower (rolling, sitting, crawling etc) hence my GP and other health professionals not red flagging the delays (despite my bringing it to their attention) until 12 months.

    The P.T. also gave me photocopies of about 15 or so different excercises to help get her crawling properly, into the seated position off the floor and standing up which I've been doing a few a day since as it's too many to do all in one day plus she said DD will tire easily in the beginning using/strengthening those core muscles takes a lot of energy . I asked the P.T via email about referring DD on for a Paed assessment through the Service (though she told me at our assessment appointment last week she didn't feel DD needed one atm) as Hypotonia isn't a diagnosis, it's a symptom of something underlying.

    I'm going back to my GP today to get her to do the same as I want to rule out any other causes for it. Quite often a cause is never identified for the low muscle tone despite testing which DP and I can accept but not until all other know causes have been investigated and dismissed.

    I think with your DD it will be just a matter of time Luv. I don't have any other advice at this stage as I'm new to the whole thing myself but just wanted you to know you're not alone
    Last edited by BlondeinBrisvegas; 19-10-2015 at 07:06.

  4. #3
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    My possum is the same. Only started crawling at almost 11 months. She can't pull herself up yet and hates standing when we try to stand her up.

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    BlondeinBrisvegas  (19-10-2015)

  6. #4
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    Thanks both! @BlondeinBrisvegas That sounds tough, but looks like you're doing everything you can to support her. It must be rewarding to see the improvements she's already made so far - well done!
    My bub only started being able to get from lying to sitting a couple of weeks ago; after her 12 month check as I raised that too then. She can now push herself up to sit but still does it all on her forearms and uses her knees (she has never pushed herself up on her hands/arms straight).
    We have the referral to the local physical ability unit booked for this Thursday so I'll update with any exercises. Great point to just look them up myself; I use google for so many things but hadn't thought about it for this!
    @Mamasupial did possum pull herself up in the bath recently? If she's done it once she'll hopefully do it again more regularly soon. Our little Sept logs will just be the genius' instead ;-)
    Thanks again ladies; *good* to know I'm not alone! *good* as obv don't want any bub or mum to have these issues
    Last edited by KT8; 19-10-2015 at 13:25.

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  8. #5
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    @KT8 Good luck with Thurs appointment Luv😊

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    KT8  (19-10-2015)

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    My DS has hypotonia low muscle tone also Mecp2 duplication which makes walking hard for him although he seems heaps stronger each day. Physio helps to a certain extent, the leg cycling thing is a good activity to help strengthen legs. Just holding hands and pulling into a standing position and walking along with him 5 mins or 10 mins each day has helped him considerably I'd say. So trying that might help also about 5 to 10 minutes of leg cycling each day. I've noticed a difference doing that for the last few months in my DS, he seems stronger and more confident on his feet.
    Last edited by zoz; 19-10-2015 at 17:54.

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    BlondeinBrisvegas  (20-10-2015)

  12. #7
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    Yes she did pull herself up using the side of the tub. She won't do it more yet though. We see our paed again next week. We have been on a public list for a physio for 3 months! We only just saw the dietician last week after being on the wait list for almost 3 months.

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    @Mamasupial the waiting is tough! I was really surprised I was able to get this appt 5 weeks after I rang to book; esp as I'm restricted to the one day a week due to work. Good luck with the paed
    Glad to hear the exercises help @zoz Drs said my bubs low muscle tone is upper body/arms but I'm on the hunt for similar exercises for there! Shame as she loves it when I pedal her legs to wheels on the bus :-)
    I'll have to work with her daycare too and make sure they're supporting where they can as she's there 4 days a week :-(
    Thanks again for sharing your stories and support!

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  16. #9
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    Just to update from our appt on Thursday. It went well; the lady was lovely. She confirmed again she has low upper body/arm muscle tone but she was happy with the progress she's been making (now able to get from lying to sitting and in the last week being able to pull up onto her knees).
    She said she should get there albeit more slowly than most bubs and gave us some exercises to do. These included introducing cushions for her to try to crawl over as well as small steps for her to try to pull herself up on so we'll keep doing that
    Also using a big couch seat cushion and getting her to crawl off that (so she has to put pressure on her arms)..... she just slid like a seal and face planted the first time
    She said her legs were strong though and bub proved that yesterday by taking a teeny tiny step while pushing her walker
    Thanks for your support; it was good to get more information and know that although she'll be a bit behind she will get there!

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  18. #10
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    Quote Originally Posted by KT8 View Post
    Just to update from our appt on Thursday. It went well; the lady was lovely. She confirmed again she has low upper body/arm muscle tone but she was happy with the progress she's been making (now able to get from lying to sitting and in the last week being able to pull up onto her knees).
    She said she should get there albeit more slowly than most bubs and gave us some exercises to do. These included introducing cushions for her to try to crawl over as well as small steps for her to try to pull herself up on so we'll keep doing that
    Also using a big couch seat cushion and getting her to crawl off that (so she has to put pressure on her arms)..... she just slid like a seal and face planted the first time
    She said her legs were strong though and bub proved that yesterday by taking a teeny tiny step while pushing her walker
    Thanks for your support; it was good to get more information and know that although she'll be a bit behind she will get there!
    Glad you are feeling better about it all and have some support xx

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    KT8  (25-10-2015)


 

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