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  1. #1
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    Default Failure to Thrive & CMPI

    Hi,

    My little boy is nearly 4 months old and has dropped of the charts for weight. He has only put on 1 kg since born. He is exclusively BF.

    He is on medication for silent reflux which has helped his unsettled ness and sleep but he is still not gaining weight.

    I'm wondering if he has a cows milk protein intolerance, but anyone I know who is managing it hasn't had weight gain issues. I tried introducing some formula through a line feeder yesterday but last night we had one of the worst nights so far.

    I have given up dairy and soy (started yesterday) to see if that helps but as we need to see some weight gain soon I was going to try Allerpro? Any advice, I am waiting on a referral for a Paed but I don't want to do nothing for 3/4 weeks whilst I wait?

    He does have fairly mucusy poos that have green threads in them and I have noticed tiny specs of blood although I wasn't sure if it was his medication as that is red too.

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    Leksie5000  (04-10-2015)

  3. #2
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    @A-Squared has two kids with CMPI and @Cue had kids with allergies. They would be the best to advise you.

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    MINIRoo  (25-09-2015)

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    My DD had cmpi and weight issues. But I think her weight and growth was more about her medical condition than the cmpi.
    That said... I had a baby that was really unsettled. ...had silent reflux and cmpi. The cmpi was mild and really only hit at 4 months when I stopped giving her EBM. We tried all the prescription formulas but she's accepted allerpro more readily than the others.
    And started to gain weight on it.
    It did take a while to settle down though.

    Can you call the paed and ask to go on a cancellation list? You might get in faster. Plus I'd start to keep a diary of feeds and the symptoms and pains plus bowel movements. ..and dare I even suggest. ..take a picture of it! Lol.
    Then when you get to the paed you've got a clear list of symptoms and a picture.
    In terms of formulas. .our paed suggested we start with soy first to see if it improved (disaster) and then he gave us samples of pepti junior, neocate, elecare.

    I'm guessing you do all the things that help reflux? Like keep elevated after a feed (bouncer or swing is good for this) a wedge in the cot to keep elevated.
    Another thing I used to do for tummy pains is heat up a small towel or blanket and wrap it round her tummy and cuddle. The warmth used to help settle.
    You can get a stool test done to check for calprotectin...but it really just points to inflammation so it's not a definitive answer.

    Good luck. I hope things improve.

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    MINIRoo  (25-09-2015)

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    My kids both have CMPI. I had a 4 month wait for the paed so I went to soy formula and she was better straight away. Green poos cleared up and small spotty rash went within a few days. She started gaining weight too. DS was also allergic to soy so he went on Allerpro. It helped with his tummy pain but it did cause green yucky poo so I switched to Goat formula which was excellent. It's trial and error. I would start on the Allerpro but it is still made from cow milk protein (just broken down) so depending on his severity it may not help. Good luck

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    MINIRoo  (25-09-2015)

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    My dd's poos were the same. We switched to a comfort formula. She still struggles with weight gain.

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    MINIRoo  (25-09-2015)

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    As mentioned above, I have some experience with this. Both my kids were CMPI babies. DD (my first) was soy protein intolerant too.

    DD was the more severe of my two. She had awful reflux and was classified as failure to thrive. Just like your bub, she took 4 months to gain a kilo. Her poo was like sludge, green with black streaks and full of mucous. It was awful. We were constantly dealing with a screaming baby. At 11 weeks old we went to the children's hospital emergency and insisted on being seen by a consultant paed. He diagnosed her with CMPI and wrote a script for Neocate. A few weeks later I gave up breastfeeding entirely and she did brilliantly on Neocate. She grew out of her CMPI around 1yo.


    DS was a slow gainer but it wasn't as big of an issue. His CMPI was less severe so I manager to breastfeed for 5 months with him, then he went on AllerPro. He's done well on it, but I feel I should warn you it's a massive pain to have a baby on AllerPro. It's really hard to get, I often have to call several pharmacies to track down a few tins. We usually get it online but it's hit and miss. So stock up when it's available so you don't get caught out. Karicare will swear blind that there's no supply problem but there are thousands of tins on backorder with some wholesalers.

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    MINIRoo  (25-09-2015)

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    Also, if you have a 4mo that is losing weight or dropping more than 2 percentile bands on the chart, it should really be considered urgent and you shouldn't have to wait too long to see a paed. Did you see a paed for the 6 week check up? If so, call and ask for an emergency appointment.

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    Wow I'm really surprised about the crazy long wait for you to see a Paed! We had some minor issues with CMPI - it initially caused a bit of weight gain issues but nothing like you're describing (went from 75th to 50th). We were referred to a specialist Paed gastro-interologist and got an appointment pretty quickly. Maybe we were just lucky... It certainly wasn't considered an emergency.

    For us goat's milk worked brilliantly but it doesn't work for everyone. Some babies can be allergic or intolerant to both. Doesn't hurt to try though - Karricare make a goat's milk formula.

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    My DD went from the 91st to the 6th and it didn't put us higher in the line. We ended up taking her to the emergency department as she was just getting so lethargic.


 

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