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  1. #1
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    Default Severe eczema- had enough

    Dd has very bad eczema. It NEVER seems to clear up.

    We use advantan, elecon, bleach baths, humidifier, never over dressed, no heating in her room and put her through the trauma of moisturising her atleast 3 times a day. She hates this and often screams and hides. We use sticker rewards and sometimes even bribes.

    We've seen countless gps, peads x 2 and a dermatologist. She isn't allergic to anything. They all say it's just eczema.

    The thing is on a good day it's still there, it never ever clears up. It won't be 'raging' in a good day but the redness will still be there. Her face is the worst and I think my heart broke for her when a little girl pointed at her and said "ooh, what happened to your yucky face?" Dd is shy and nervous around others anyway. Now she has started to hide her face. She's only 3

    I woke up this morning in a lovely mood and then she got up with one of the worst flare ups on her face I've seen. It depresses me that I am simply unable to change it. We have no idea what causes it.

    DH and I had a huge row tonight because I accused him of not caring about it. I'm the one that always seems to be coaxing her into having her cream applied. I'm just so fed up. I know there is much worse out there but she has been through enough. My other children have perfect skin, I don't get why her?

    I don't know what the point of this is. Part vent I guess. Maybe someone can reassure me that she will grow out of it or recommend a cream that will actually work. I'm a mug and ill try anything.

  2. #2
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    My DS2 had/has severe eczema, including on his face. We went to an allergist who found out he was badly allergic to dustmites and cats. So I had to try and decrease these things in our environment, which is fairly difficult with dust.
    But the cream/medication regime she put him on did the trick. It was so unbelievable. When she told me to do this "until his skin felt normal" I laughed at her. lol. I told her that would be forever. But it wasn't. So, this is what we did-

    - Eleuphrat ointment, it's a strong steroid, this is the generic brand, I think the brand name is Diprosone. Always always get the fatty ointments, not the creams. They provide a barrier for the skin so that it doesn't continue to dry. She told us to apply this generously 3+ times a day, until his skin felt normal. Which we did. do NOT listen to the GP's when they say to apply steroid creams sparingly for 5 days. This is NOT going to work.

    - Dermeze Ointment, 3-5 times a day. Yep, your DD needs to get used to the creams! You'll be forever applying creams, but geez it works. Be warned though, it does get everywhere as you need to slather it on.

    - Antihistamines! If they are scratching, it's like an endless cycle. I gave DS Phernergan at night which is when he used to scratch the most. If he didn't need that one, I'd give him Aerius in the day.

    There may have been a few other bits of instructions she gave us, especially regarding the dustmites, but those three things made SO much difference. His eczema is mostly all gone now, he just gets small patches once a week or so but I just slap some Eleuphrat on them and they go away so quickly.

    Good luck. I feel your pain! It's heartbreaking to see them not only so uncomfortable all day and all night, but yes, so unsightly as well. Especially when it's on the face.

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  4. #3
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    Just a thought- why doesn't she like the creams? Is it because they sting? When I was trying all those weird and wonderful creams on DS (including all the natural rubbish), they would really sting all the many broken areas on his skin, and he would scream and cry when I was applying them.
    But the great thing about the fatty ointments is that they don't sting at all, they are really soothing. So hopefully you may find she'll be ok with having the ointments applied. I had to convince DS to try them, but I just kept telling him they are nice creams that feel nice. And the steroid is "the special cream". He's happy with that.

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  6. #4
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    I should've said, the advantan we use is actually advantan fatty ointment.

    As soon as she knows its time for cream she starts playing up. Her face is always the hardest to get on and it takes so much coaxing to stop her from screaming and crying and thrashing around. When she starts crying she rubs the cream in to her eyes and gets even more upset.

    This morning I literally said to her "I will take you to the shops today and buy you anything you want if you try to be a good girl and let me put this cream on". I know, awesome mother I am! Pretty much broke one of the biggest rules I'd set myself as a parent. So she stood there squirming but I managed to get it on. No tears just whinging. I use aveeno and nutraplus to moisturise and she did the same, stood still and chatted about what she wanted from the shops.



    I am trying to teach my DD's that their body is for them, about boundaries etc and here I am forcing her to have this cream applied! I've tried to encourage her to help or even do it herself but she has zero interest.

    I know some creams have stung her in the past, and I've stopped using them straight away.. so I'm not sure if it's the anticipation of them stinging her again or if she's just fed up with it?!

    I'm going to look for some kind of pink sticker chart today. I can't bribe x3 times a day
    Last edited by yadot; 01-09-2015 at 09:33.

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    Has she been tested for allergies? That's what tends to be the cause for a lot of people who suffer from eczema. It can be caused from detergents, fragrances, cleaning products, dust mites, grass, wool, citrus, etc.

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    Quote Originally Posted by hopeful1986 View Post
    Has she been tested for allergies? That's what tends to be the cause for a lot of people who suffer from eczema. It can be caused from detergents, fragrances, cleaning products, dust mites, grass, wool, citrus, etc.
    I agree with this. A friend of mine has extremely severe contact dermatitis caused by fragrance used in things like perfume, deodorant, spray n wipe, air freshener etc basically anything aerosol or fragrant will set her off. Even if she gives someone a hug who is wearing perfume immediately her face sets off. Someone sprayed spray n wipe at work one day and she had to go home immediately it was awful to see. Took a while for her to find out what the allergen was and it's very difficult to control but at least she knows what it is and can control her own environment.

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    Default Severe eczema- had enough

    My heart breaks for your poor daughter as a fellow sufferer of severe eczema. I am 35 and have only seen improvement in my skin in the last 3-4 years. It knocks your confidence terribly and the comments made by others are heartbreaking. In the end I discovered I was zinc deficient. Once that was addressed my skin improved greatly. I spent years having allergy testing, trying every cream and lotion under the sun and even been hospitalised in Sydney for treatment.

    I hope you can find something that helps soon xxx

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    Does she react to food at all? I see you've had her tested but I have what's called a sulphite intolerance and it brings on severe eczema. It doesn't show up in allergy tests either but I was lucky to have a gp who specializes in allergies pick it up straight away.

    Just a thought anyway

    Feel so sorry for your little one, even I used to cry applying the lotion out of pain and dread so I can only imagine how shes feeling

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    Just a suggestion, but maybe see a naturopath. She may be lacking a certain vitamin or mineral in her diet. Zinc assists the skin to heal, and fish oil helps with dryness. I suffered from eczema as a child and these two things helped me immensely.

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    Does she have dairy? I have a 3 year old that had fairly bad flare ups, not as severe as your little girl though & it was suggested by a naturopath & ent that we stop all dairy. I thought they were nuts but it's worked!! She now only needs steroid cream if she has things like cake frosting. I can't believe the difference it made. Yoghurt was a particularly bad trigger. Her dad gave her a squeezy yoghurt when he took her out a few weeks ago & she flared up horribly. We now use lactose free milk, cheese & yoghurt. It's definitely worth trying if you have already done so.

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