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  1. #1
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    Default Molluscum nightmare!

    Help please!

    My DS2 has had molluscum contagiousum for at least 2 years. It started on his arms which have mostly healed. About a year ago he got some on his legs. When they started getting 'bad' I took him to the dr (2 actually, the 1st didn't believe me), and he recommended some acid stuff, which turned the spots into huge painful weeping craters. Argh. They have now just spread soooooooo much, all up his thighs and down to his knees, and a couple now on his groin. There are at least a hundred.
    I have tried lemon myrtle, tea tree, strong steroid, popping them, tape over them, that horrid acid stuff, probably other stuff as well.
    He is very prone to eczema and I see that they love his eczema spots, probably because he scratches his eczema and then they spread that way. So I've been trying very hard to keep that under control with lots of steroid creams.

    Since they've been bad I have been so thankful it's been winter so they've been covered, but the warmer weather will be coming and I don't want other kids seeing them, plus the contagious aspect of it too. I want them gone!

    My DD now has them too, she has about 15 of them on her thighs. I want them gone too as little girls can be so cruel.

    HELP??? Is there anything else I can try? Are there any specialists that might have a better idea on what to do? I am so over it. They are supposed to be self-limiting but so far that is so not the case in this house!!

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    Default Molluscum nightmare!

    That's awful. You have my upmost sympathy. I had these when I was a teenager and they were just horrendous. I got them frozen off by a doctor, I think in the same manner that warts are treated. The treatment was painful but it worked. It did leave scars though, which I still have now ~12 years later. Every now and again for a few years after I would get one or two when I was sick. I think they used to pick on me when my immune system was down. These went away by themselves and did not leave scars.

    I don't know what advice to give except a super healthy diet to boost their immune system and keep pestering the doctor about different treatments.

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    My ds2 and ds3 have them too. Ds3 that to have 4 cut off his testicle as they kept getting infected. His started in his grin and speak down his legs. He still newish lumps coming up at 20 months after the first spot.

    Ds3 has only had them for 2 months but all his are on his neck and face. Those ones I have pick out making sure I have got the whole thing. They bleed like nothing on earth. So far we have had no scars. I try and get as soon as a new one comes up. It hurts but he doesn't like them on his face.

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    Is it worth getting a referral to a dermatologist?

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    LittleBug'sMum  (11-08-2015)

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    I don't have any experience with this, but would think a dermatologist would be your best bet.

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    Quote Originally Posted by amyd View Post
    Is it worth getting a referral to a dermatologist?
    Snap!

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    Quote Originally Posted by babyno1onboard View Post
    That's awful. You have my upmost sympathy. I had these when I was a teenager and they were just horrendous. I got them frozen off by a doctor, I think in the same manner that warts are treated. The treatment was painful but it worked. It did leave scars though, which I still have now ~12 years later. Every now and again for a few years after I would get one or two when I was sick. I think they used to pick on me when my immune system was down. These went away by themselves and did not leave scars.

    I don't know what advice to give except a super healthy diet to boost their immune system and keep pestering the doctor about different treatments.
    Thanks for the tip on overall health; DS2 doesn't eat the best, he is pretty fussy, so I might have to start him back on a multivitamin. And I need to really keep up on his eczema.
    The ones I did with the acid have left some scarring, it is getting lighter though so hopefully they will completely go away.

    Quote Originally Posted by LoveLivesHere View Post
    My ds2 and ds3 have them too. Ds3 that to have 4 cut off his testicle as they kept getting infected. His started in his grin and speak down his legs. He still newish lumps coming up at 20 months after the first spot.

    Ds3 has only had them for 2 months but all his are on his neck and face. Those ones I have pick out making sure I have got the whole thing. They bleed like nothing on earth. So far we have had no scars. I try and get as soon as a new one comes up. It hurts but he doesn't like them on his face.
    Oh no on his face. That's what I worry about, them spreading to faces. They are such horrid little things!!


    To PP's re. a dermatologist, I have thought about it, but all the literature I have read said it's self-limiting, and that there's not really a cure. So that's why I haven't bothered. But geez I'm getting desperate, and surely they'd at least have a better idea than the GP's??

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    Quote Originally Posted by CMF View Post
    Thanks for the tip on overall health; DS2 doesn't eat the best, he is pretty fussy, so I might have to start him back on a multivitamin. And I need to really keep up on his eczema.
    The ones I did with the acid have left some scarring, it is getting lighter though so hopefully they will completely go away.



    Oh no on his face. That's what I worry about, them spreading to faces. They are such horrid little things!!


    To PP's re. a dermatologist, I have thought about it, but all the literature I have read said it's self-limiting, and that there's not really a cure. So that's why I haven't bothered. But geez I'm getting desperate, and surely they'd at least have a better idea than the GP's??
    There may also be some new treatments available that GP's aren't up to date with. I have also heard great things about a cream available from the pharmacy at the Royal Children's in Melbourne.

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    CMF  (11-08-2015)

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    Quote Originally Posted by amyd View Post
    There may also be some new treatments available that GP's aren't up to date with. I have also heard great things about a cream available from the pharmacy at the Royal Children's in Melbourne.
    Hmmm ok thanks! I think I'll go back and ask the GP for a referral to a specialist. What's another specialist to add to the list of my kids' specialists?

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    Have you thought about a good naturopath at all? Worth a shot.

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    misho  (11-08-2015)


 

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