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  1. #251
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    I've just caught up with this thread. So sorry to hear you and your family and especially your DD have to go through something as horrible as a cancer diagnosis and subsequent treatment. Luckily though it's a "good" one to have and it's treatable and survivable. I used to work in adult haematology/oncology so I know how hard it is (second hand of course). I can only imagine how much harder it is when it's a young child. How long are they expecting treatment to take? Are they looking at putting in a central line (PICC, Portacath etc)? I assume they will, hopefully they'll do it soon. They're not as painful as peripheral cannulas and a lot easier to draw blood from (majority of the time at least). Hopefully this will make it less traumatic for your DD (and you!). Does the hospital you're at have a starlight kids section or something similar? Distraction can be a big help when DD is feeling rotten from the treatment or cabin fever from being in hospital. Have some special toys or treats for her for those times when she's immunocompromised (neutropenic) and limited as to where she can go and what she can do. This could be books, toys, colouring in etc. It was not uncommon to find out patients were suffering symptoms of depression because they felt cooped up all the time while they were stuck in hospital and in isolation. Make use of the playground areas when DD is well enough to use them. The fresh air and sunshine will make a huge difference to how she feels and how you feel. The Leukaemia Foundation will be a worthwhile resource as well, not just for information about lymphoma, but also as practical supports and information for you as parents. I hope the next few days go well and DD copes with all the poking and prodding. My thoughts are with you xx

  2. The Following 5 Users Say Thank You to M'LadyEm For This Useful Post:

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  3. #252
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    Quote Originally Posted by M'LadyEm View Post
    I've just caught up with this thread. So sorry to hear you and your family and especially your DD have to go through something as horrible as a cancer diagnosis and subsequent treatment. Luckily though it's a "good" one to have and it's treatable and survivable. I used to work in adult haematology/oncology so I know how hard it is (second hand of course). I can only imagine how much harder it is when it's a young child. How long are they expecting treatment to take? Are they looking at putting in a central line (PICC, Portacath etc)? I assume they will, hopefully they'll do it soon. They're not as painful as peripheral cannulas and a lot easier to draw blood from (majority of the time at least). Hopefully this will make it less traumatic for your DD (and you!). Does the hospital you're at have a starlight kids section or something similar? Distraction can be a big help when DD is feeling rotten from the treatment or cabin fever from being in hospital. Have some special toys or treats for her for those times when she's immunocompromised (neutropenic) and limited as to where she can go and what she can do. This could be books, toys, colouring in etc. It was not uncommon to find out patients were suffering symptoms of depression because they felt cooped up all the time while they were stuck in hospital and in isolation. Make use of the playground areas when DD is well enough to use them. The fresh air and sunshine will make a huge difference to how she feels and how you feel. The Leukaemia Foundation will be a worthwhile resource as well, not just for information about lymphoma, but also as practical supports and information for you as parents. I hope the next few days go well and DD copes with all the poking and prodding. My thoughts are with you xx
    Thank you x
    To answer your question, yes they will be putting in a central line which will remain there for about 6 months.

    She's having a good day today, she's up and about doing laps of the ward in the toy cars and practically running along pushing her drip thingy. They've started her on chemo and steroids which has brought back her appetite, thankfully. She's a bit skinny so I'm hoping she can put a bit of weight on so that she has a buffer for times when she gets sick with treatment.

    A social worker talked to me on Friday before the diagnosis and she said she would be back on Monday once we had a clearer idea of what's going on. The path we go down with the social worker is dependent on the diagnosis.

    Looks like I may possibly be taking the next 6 months off work. In fairness to my boss and for the wellbeing of DD it's probably the only option. We don't want to risk sending her to daycare on and off.

    Thanks again for all the well wishes xx

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  5. #253
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    I'm so sorry you didn't receive better news. Big hugs to you and ur family and ur precious dd. I hope she copes OK with her treatment. Thinking of you 😔

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    Thinking of you, your dd and your family xx

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    Hollywood  (11-09-2015)

  9. #255
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    Thinking of you and your family

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  11. #256
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    SuperGranny is offline Worlds best grandma! Winner 2012 - Most Helpful Member
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    just want to add my thoughts and prayers are with you and your darling daughter, I hope the treatment is not too harsh. im sure you are under a good management team. maybe a journal will help you process all the emotions you will be having to deal with. my love and prayers are with you all. marie.

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    Just checking in to say things are going well with DD. She has just come up from surgery where she had another lumbar puncture today. She has been coping well with the anaesthetics which is good because she's having another procedure tomorrow (PET scan, she's too little to stay still that long) and her central line is being put in on Thursday.

    I'm glad she is getting the central line put in because she absolutely loathes all the blood tests and medicine that has to be put in via the canulars.

    Thank you all again for the lovely messages xx

  14. The Following 27 Users Say Thank You to Hollywood For This Useful Post:

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  15. #258
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    What a brave little trooper.

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    I'm so glad FOB is coming home early. Has he arrived yet? Hopefully it might mean you can have a bit of a break from the hospital if you want/need it. Good luck with all the scans and the central line - will be nice not to have all the needles.

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    Hugs Hollywood. What an awful discovery for you guys, but it sounds like you have a great team looking after you.

    Will be thinking of you and your DD xx

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