+ Reply to Thread
Page 1 of 2 12 LastLast
Results 1 to 10 of 11
  1. #1
    Join Date
    Dec 2013
    Location
    Brisbane
    Posts
    31
    Thanks
    34
    Thanked
    15
    Reviews
    0

    Default Endo/Fibroids/Adenmyosis/Poor Fertilisation&Miscarriages-What should I do?Pls Help

    Hi, I am hoping to get some advice on what tests I should be asking my FS for? I am 35 and have been TTC#1 for 4yrs, 3 x miscarriages, I have Endo, Fibroids, Adenmyosis & Poor Fertilisation. My currents FS has done 4xIVF on level 5000 (producing zero-one embryos) and 1 x FET and a lap which found the above diseases. He completed the initial blood tests but there have been no other tests. I am pragmatic but am starting to lose hope. I am planning to change to Dr Sterling - Brisbane next month and am wondering what tests I could ask for? I feel as though I've just been given the same routine treatment and am not being further investigated to tailor a treatment program. I'm wondering how do I know when to consider exploring options of donor eggs, surrogacy or adoption, but I can't help but think there should be more being done before now. Any assistance would be greatly appreciated. Thanks B

  2. #2
    Join Date
    Dec 2013
    Location
    Brisbane
    Posts
    31
    Thanks
    34
    Thanked
    15
    Reviews
    0
    Sorry level 500 (not 5000)

  3. #3
    Join Date
    Mar 2015
    Posts
    3,098
    Thanks
    7,209
    Thanked
    13,550
    Reviews
    0
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 posts
    @BlondeinBrisvegas this sounds like your neck of the woods and I'm guessing which FS you're going to suggest!!

  4. The Following 2 Users Say Thank You to Tahli For This Useful Post:

    beej79  (03-05-2015),BlondeinBrisvegas  (03-05-2015)

  5. #4
    Join Date
    Sep 2012
    Location
    Brisbane
    Posts
    8,605
    Thanks
    35,292
    Thanked
    19,726
    Reviews
    7
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Awards:
    Busiest Member of the WeekBusiest Member of the Week - week ended 20/8/15100 Posts in a week - week ended 13/8/15Busiest Member of the Week - week ended 6/8/15Busiest Member of the Week - week ended 30/7/15
    @Tahli I've heard he's a pretty good FS. This makes for interesting reading though:

    http://www.theaustralian.com.au/news...-1111113333976

    Acutally, It's not really in my neck of the woods as I don't have any personal experience with any of @beej79 issues, I only know what I've read/researched myself. But yes, I will recommend WDA to her

  6. The Following User Says Thank You to BlondeinBrisvegas For This Useful Post:

    beej79  (03-05-2015)

  7. #5
    Join Date
    Jun 2014
    Location
    NSW
    Posts
    715
    Thanks
    2,740
    Thanked
    1,154
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Hey Beej. I have endometriosis and adenomyosis. I don't have poor fertilisation rates but likely I have poor egg quality given my age.
    Anyway, I had a laparoscopy two years ago and some endo was removed but not all of it. I have just started with a new FS in Sydney who has referred me for a special ultrasound to check if the endo is in the worst place for implantation, that is the part between the vagina and rectum. The test is called a sonovaginogram and not everyone who answers the phone at women's ultrasound clinics has even heard of it (when I rang to book the receptionist did not know what I was talking about and tried to book me in for something else). After this I am seeing a Gyno who specialises in removal of endo and who apparently is an amazing surgeon, again, in Sydney. Maybe you could try and see a Dr in QLD who's special interest is endo. My FS is not convinced that treating the endo will improve my fertility but he thinks it should be done for quality of life reasons.
    Also your FSH dose seems very high. You could try someone who uses lower doses.
    Best of luck!

  8. The Following 2 Users Say Thank You to Skyler For This Useful Post:

    beej79  (03-05-2015),BlondeinBrisvegas  (03-05-2015)

  9. #6
    Join Date
    Sep 2012
    Location
    Brisbane
    Posts
    8,605
    Thanks
    35,292
    Thanked
    19,726
    Reviews
    7
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Awards:
    Busiest Member of the WeekBusiest Member of the Week - week ended 20/8/15100 Posts in a week - week ended 13/8/15Busiest Member of the Week - week ended 6/8/15Busiest Member of the Week - week ended 30/7/15
    @beej79 Oh Luv, I'm sorry to read about your TTC journey thus far I'm even sorrier for the MC's you've had Nobody should have to go through such heartache

    Firstly, do you have any idea what's caused the MC's in the past?? Was it a chromosomal issue?? My understanding is that the issues that you have can make getting pregnant difficult. I was more under the impression it would hinder implantation of an embryo more than anything else??

    I've seen threads here on BH regarding your issues and will shortly go and see if I can dig them up for you. Have you been tested for immune issues such as Natural Killer Cells or raised ANA's etc?? How's your thyroid/vit D level?? The fertilisation issue is either going to be an egg problem/sperm problem or a combination of both.

    I see you've had a FET before, so at least one of your embryo's has been of a good enough quality to freeze. What day transfer did you have? Deciding on whether to use donor eggs, surrogacy or adoption will prob depend on what the problem is.

    I know you're due to see Dr Sterling next month, I'd also recommend you go and see Dr Warren De Ambrosis who's with QFG in Brisbane (Spring Hill) for a consult. He's the FS that deals with the most difficult or complex cases such as yours as well as being IMO one of the best not only in Brisbane/QLD but in Australia as well which was the reason I ended up transferring to him.

    He does have fairly long wait list, but if you ask to go on the "cancellation list", you will in all likelihood get in to see him much sooner sometimes within a couple of weeks.

    I can understand why you feel like you are losing hope, but there's still a lot of things you can try r,e drugs/drug protocols, procedures such as Endometrial Biopsy and having your Endo/fibroids treated prior to doing anymore Cycles (if that's possible) first before even thinking about heading down the donor egg/surrogate or adoption path.

    Hopefully some of the other lovely Ladies here on BH that have experience in these same issues as you will post some advice for you as well. I'll go have a look for those threads for you now

    ETA- Thank-you @Skyler for helping outxoxo
    Last edited by BlondeinBrisvegas; 03-05-2015 at 20:30.

  10. The Following User Says Thank You to BlondeinBrisvegas For This Useful Post:

    beej79  (03-05-2015)

  11. #7
    Join Date
    May 2012
    Posts
    1,226
    Thanks
    213
    Thanked
    1,428
    Reviews
    0
    Achievements:Topaz Star - 500 posts
    Beej79, sorry to hear you've had such a hard time and are facing these issues. In my time on BubHub I've seen so many women do cycle after cycle with FS's that don't proactively do in depth investigations and just try the same thing over and over. My advice to you would be to go and see one of the top FS's and really get your money's worth. (Everyone raves about Warren DeAmbrosis).

    As for donor eggs, our FS said he'd tell us when he thought it was time to give up on our own eggs. I think if you put it out there that you are considering that then your FS shouldn't be nervous to tell you when it's time. I think some are hesitant if they think it will be really upsetting for you to hear it.

    Best wishes. I hope you have some luck come your way soon. X

  12. The Following 2 Users Say Thank You to MrsErinR For This Useful Post:

    beej79  (03-05-2015),BlondeinBrisvegas  (04-05-2015)

  13. #8
    Join Date
    Dec 2013
    Location
    Brisbane
    Posts
    31
    Thanks
    34
    Thanked
    15
    Reviews
    0
    Hi @Skyler & @BlondeinBrisvegas - wow, thank you so much. My FS has done none of those tests. I do know my Vit D is very low and my thyroids are not great. My MC Test results just indicated that they were not going to ever be a viable baby. It sounds like I need to get more information on that and I definitely want to get those tests. I have heard A LOT about Doc DeAmbrosis. I think I will definitely sign up with him also. I think he has a year waiting list so I try Sterling whilst I am waiting. Wow, you have shredded so much light already that I hadn't known about. That kinda annoys me. I am also keen to see if Sterling knows about that new endo surgery you've referred to. Out of curiosity, I have been recommended to go on a pre-menopausal program for 6mths to dry up all disease in my body. I didn't want to lose 6mths of potential trying but perhaps I may need to go down that path. Has anyone heard much about it. Hank you so so much, I cannot tell you how much it means to have such quick replies with wonderful support and great information. Thanks again Bel

  14. The Following 2 Users Say Thank You to beej79 For This Useful Post:

    BlondeinBrisvegas  (04-05-2015),Skyler  (03-05-2015)

  15. #9
    Join Date
    Sep 2012
    Location
    Brisbane
    Posts
    8,605
    Thanks
    35,292
    Thanked
    19,726
    Reviews
    7
    Achievements:Topaz Star - 500 postsAmber Star - 2,000 postsAmethyst Star - 5,000 posts
    Awards:
    Busiest Member of the WeekBusiest Member of the Week - week ended 20/8/15100 Posts in a week - week ended 13/8/15Busiest Member of the Week - week ended 6/8/15Busiest Member of the Week - week ended 30/7/15
    @beej79 You're welcome Luv Just make sure when you make the appointment with Wazza that you definitely ask to go on the cancellation list and either fax over a copy of your file or take one in with you when you have your appointment.

    I don't know too much about the pre-menopausal program that you've been referred to. I think I have read about it. Are they wanting you to go on medication to put your body into a temporary menopause to try to help with the Endometriosis?? I believe the Endo relies on estrogen to grow, so I think if they suppress it in your body, it may help matters when it comes time for you to do a Cycle and have an embryo transferred.

    Hopefully one of the Girls who reads your post and has taken this medication will let you know I don't know if you're taking a Vit D supplement at the moment, but if not, then start taking one. If there are problems with your thyroids, they need to be sorted out too if you haven't already done that. I think problems with the thyroid could indicate possible immune issues too, but one of the Immune Girls would have to confirm that... @MGC Bertie @Miss Sagi @bbhope or any other Immune Girls following along...is that right do any of you know??

    Am still trying to find those threads for you but not having much luck. Will keep on looking and see how I go. Hopefully Dr Sterling is on top of everything and will do whatever tests/procedures need to be done to find out what the issue is and/or treat your endo/fibroids etc if they can be.

    @MrsErinR Thanks for coming in and helping out too Luv
    Last edited by BlondeinBrisvegas; 04-05-2015 at 14:05.

  16. The Following User Says Thank You to BlondeinBrisvegas For This Useful Post:

    beej79  (05-05-2015)

  17. #10
    Join Date
    Apr 2010
    Posts
    420
    Thanks
    223
    Thanked
    253
    Reviews
    0
    Hi Beej, sorry you are on this roller coaster. I have adeno, fibroids, low egg numbers and poor fertilisation rates. I was on zoladex for 5 months (usual course in 3) which put me into a menopausal state making the adeno inactive and hopefully helping implantation. I wasn't thrilled about waiting those months but I I fell pg first cycle after the zoladex with a fairly fragmented and very average embryo who has just turned 1! I'd had numerous failed cycles. Zoladex worked a miracle for me. Good luck!

  18. The Following 2 Users Say Thank You to Octoberbaby2010 For This Useful Post:

    beej79  (05-05-2015),BlondeinBrisvegas  (05-05-2015)


 

Similar Threads

  1. Anyone out there pregnant with fibroids?
    By linstyle in forum Pregnancy & Birth General Chat
    Replies: 20
    Last Post: 06-12-2015, 13:34
  2. Replies: 5
    Last Post: 26-05-2015, 04:01
  3. Diagnosed with high NK cells after 2 miscarriages. Help!
    By thirdtimeclucky in forum Reproductive Immunology
    Replies: 15
    Last Post: 07-02-2015, 20:04

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
free weekly newsletters | sign up now!
who are these people who write great posts? meet our hubbub authors!
Learn how you can contribute to the hubbub!

reviews
learn how you can become a reviewer!

competitions

forum - chatting now
christmas gift guidesee all Red Stocking
Bamboo Lulu
Super soft, fun prints & basics for baby, made from bamboo & organic cotton plus non-toxic wooden toys. • Hypoallergenic - perfect for eczema relief • Everything needed to shop for a baby shower • 10% off + FREE gift with purchase. Use code BUBHUB
sales & new stuffsee all
Wendys Music School Melbourne
Wondering about Music Lessons? FREE 30 minute ASSESSMENT. Find out if your child is ready! Piano from age 3 years & Guitar, Singing, Drums, Violin from age 5. Lessons available for all ages. 35+ years experience. Structured program.
Use referral 'bubhub' when booking
featured supporter
Maternity Clothes
Looking to buy maternity clothes? :: Check the bubhub directory of local & online maternity clothes shops :: Find preloved maternity wear
gotcha
X

Pregnant for the first-time?

Not sure where to start? We can help!

Our Insider Programs for pregnancy first-timers will lead you step-by-step through the 14 Pregnancy Must Dos!