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  1. #11
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    Thank you NewHope...what a long and difficult time you have had. I am so glad that you were finally able to get your little Bub.

    Thank you for sharing your experience...it really helps.

  2. #12
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    Monnie, I do see have acupuncture and take a whole lot of vitamins which helps. I hear you on the diet problems...had a flare up last week and have been only able to tolerate rice and bananas...urgh! Glad to hear you got your beautiful babies!

  3. #13
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    ICanDream, your story certainly gives me hope my fs didn't think Ivf was required too...like you say the problem is with staying pregnant, not getting pregnant.

  4. #14
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    Patience86: is Dex an option? It is another type of steroid.

  5. #15
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    Bbhope...I haven't heard of Dex...but ny immunologist has said any steroid that goes into the blood****** is likely to cause problems. Spent months in hospital after days on a full dose of Prednisone because I reacted so badly. They are not willing to take tge risk...

  6. #16
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    Oh...no idea. If u read through the NK cell thread, a lot of women take Dex because it is a lot stronger than prednisolone and mainly prednisolone does nothing for them. But they have to switch out to pred sometime in the pregnancy because Dex can cross the placenta to the baby.

    I don't know if anyone on that thread can suggest an alternative. I read the book "if your body baby friendly" by Alan Beer. He has a lot of suggestions on immune treatment, although i haven't come across what you have. I think the key is getting the auto immune disease under control during pregnancy. Sorry to hear that U have to go through this.

  7. #17
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    Thank you bbhope...I have heard of that book so may give give it a read!


 

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