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  1. #1
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    Default Autoimmune disease and Recurrent Chemical pregnancies

    Hi everyone, just wondering who has had treatment for recurrent miscarriage/chems potentially due to autoimmune disease?

    I have had eight chems and one take home baby. I bled a lot during my first trimester with DS1 too. Last year I was diagnosed with an extremely rare autoimmune disease which I have probably had for a decade or so.

    I saw a fertility specialist last week who diagnosed me with recurrent miscarriage. He thinks I have progesterone issues/ luteal phase defect as well as I have short cycles and lots of spotting. Next cycle they will monitor and then he talked about clexane, progesterone, ovulation induction injections, asprin. I can't take prednisolone as I have a very severe reaction to it. I am already on high dose folate.

    I have no idea what to expect and would love to hear from other people who have autoimmune disease, or who have taken these medications. Feeling a bit overwhelmed as I will have a high risk pregnancy anyway due to bipolar disorder and concerned about the drugs messing with my mood!

    Thanks in advance

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    I suggest you to head over to the NK cell thread there. Everyone there is on these drugs including myself.

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    Thank you!

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    I think it can depend on the autoimmune disease - can you share what you have?

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    I have Eosinophilic Gastroenteritis. .it's pretty rare unfortunately. Hardly any of my specialists had heard of it :/ so I cant find any information on how it may affect fertility.

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    Sorry that is a tricky one. I have sarcoidosis and I suffered a missed miscarriage at 10 weeks and 3 chemicals but I can tolerate steroids so when I'm flaring I can get it slightly under control.

    I have an awesome gastroenterologist in Melbourne if you need another opinion. He was happy to work with my ob/gyn when I needed steroids whilst pregnant - I was 20wks and had put on only 2kg due to bowel issues.

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    Thank you for your story Icandream..im sorry that you have had such a difficult time!

    The gastro team I saw were hopeless but my immunologist is great. The biggest problem I have is not being able to take steroids (I get severe steroid psychosis)...so I don't really have aby way to control it other than diet.

    Can I ask what other drugs other than steroids you took to get and keep pregnant (if there were any) and how they affected you?

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    I have an auto immune disease which was diagnosed when I was pregnant with my first son.
    It took me so long to conceive for my second that I saw a FS who recommended IVF. I did fall pregnant after 2.5 years using IVF but sadly that pregnancy ended at 16 and a half weeks when I delivered my baby boy. More tries of IVF, and still nothing then 2 years later, I delivered my beautiful baby boy. A little early but was doing brilliantly.
    All of my specialists believe I had fallen pregnant many times but due to my auto immune disease I had lost these pregnancies.
    I think if you have a great immunologist that is a great start because they have a wealth of knowledge. I was on fragmin (similar to clexane) and aspirin before, during and after my pregnancy. Also steroids when my blood counts drops.
    I wish you luck, it is such a trying time when you have health problems to deal with as well.

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    By any chance do you see a naturopath? It might not be something your interested in.

    I have an autoimmune disease and 2 x pregnancies lost. Then by some miracle I ended up with back to back pregnancies!

    I changed my diet to max. I have IBS too atm it's so bad I'm not tolerating food at all. Just soup fx you get a bfp soon x

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    I didn't do anything to be honest. When I fell pregnant with DS I'd just finished 8 mths of steroids so was feeling the best I ever had in ages. I had a chemical then fell pregnant. In between him and DD is just over 3yrs as it was then I struggled but as my condition is relatively unknown if you fell out of the normal boundaries of it which I did there wasn't much to offer. They felt ivf was not worth it as my body was rejecting embryos so even if it worked to get pregnant they didn't believe I would hold on to it. As I was on and off steroids already there wasn't any point doing that either. We basically were about to give up when I finally fell pregnant. I have a number of other syndromes so it all got too hard to figure out what might be causing what.


 

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