Thanks meridithgrey I am trying 😊
Thanks meridithgrey I am trying 😊
Why can't they do a cvs? Why are they making you wait for an amnio?
Well I asked about the cvs, the OB advised that if the cvs came back positive we would need an amnio too, so due to not having the money to spend on various tests, the OB said the amnio was the better one plus has less risk of miscarriage. I know it's going to be a killer wait, but I'm feeling a little more positive tonight, just trying to not stress too much. I'm looking at it like my odds coukd be much much worse. Having said that, at the same time I'm trying to prepare for the worst too. It's how I cope.
There was a thread recently on here, someone had a 1 in 2 risk. Turned out fine
I had a 1:5 of downs with DS1. Ended up with cvs and amnio plus a foetal echo but all is normal and he turns 5 in a month!
I know exactly how you are feeling right now. I too had a high risk for trisomy 18 due to my blood test. Initially I was told 1 in 16 but than my weight was factored in and I was up to 1 in 140.Other than ultra sounds, I did not have a amino or any other testing so I spent my whole pregnacy totally freaking out the way you probably are right now.
One reassuring factor was that every ultra sound ( and i had one a month) there were no markers, but it still drove me absolutely crazy. I even had to have Counciling.
My baby was born 3 week ago and I am happy to say that she does not have trisomy 18. When the paediatrician was checking my baby out, at my request, I told her about the high risk for Trisomy 18 and she so casually said it is only a risk factor it is not a diagnosis. Omfg if only I thought of it as just a risk factor because I totaly freaked out, cried and stressed out,tired not to bond with my baby my whole pregnacy for a risk factor. I am glad my baby is healthy but I wish I had never had the test because of all the stress that it has caused me.
Good luck with your amino (I could not go threw with one because I am needle phobic) please, as hard as it is, try not to stress to much. XxxoooO.
Thanks skye baby. I think I'm over the initial shock now, I've done heaps of research and feeling better about my odds. I have decided that even though there is that one chance, I will not let this stop me bonding with my baby. I spent a good hour before bed lastnight rubbing my belly, thinking positive and telling him/her how much I love her. I am a great believer in what's meant to be will be, and as hubby put it, we can't change anything now, we just have to wait and see. One day at a time!!
I have no experience with high risk results. But I just wanted to send you love, I hope the next two weeks go fast and you can have some answers x
I had a 1:79 chance of Downs with ds due to my bloods (very high hcg). Physically baby looked fine. It was a stressful time but I had the amnio and results were fine and I have a very healthy boy turning 2 today!
All the best
my first son I had a high risk for T13 and T18, with T18 at 1/81 risk factor. I also had low papp-a (even lower than yours), which was the main reason why it increased the risk factor.
Baby had no markers for either of the trisomies, but we did go ahead with an amnio. That came back clear but our specialist did tell us that low papp-a is often associated with a higher risk for possible placenta issues/prematurity/low birth weight (really as he described it, any of those factors contribute to each other, ie low birth weight docs will take baby out early which equals prematurity lol). He made me go on a low dose aspirin which improves the blood flow from placenta to baby. Anyways, long story short we did end up having complications with the pregnancy and baby DID come out early at 32 weeks (prematurity ha ha) but he did well and is now 2+ years old with no lasting complications.
So anyways, we were lucky that we went to a specialist in fetal medicine identified the papp-a risk and helped reduce risk of future issues.
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