My 7.5mo son has hypotonia and attends physio once a fortnight. We are still waiting on answers as to the reason behind his condition. He tires very easily and we are told that physio will need to continue indefinitely.
He is scheduled for an MRI but there is a 6mth wait. He also had bloods done which apparently came back with some irregularities and are being sent from further testing.
I would love to talk to someone who is going through something similar. This whole experience is very stressful and also isolating as my son does not look any different to anther baby so even my friends will dismiss me and say things like "every baby develops differently" or "ohhh but my baby was slow too"