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  1. #11
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    Quote Originally Posted by Tamtam View Post
    Sorry I didn't see your reply. My daughter has Smith-Lemli-Optiz syndrome.
    Wow ok never heard of it will do som reading thanks tamtam!

  2. #12
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    Quote Originally Posted by mam83 View Post
    Wow ok never heard of it will do som reading thanks tamtam!
    I had never heard of it either. My daughter doesn't really fit the mold of SLOS and all that you read online. She's mild with it and is doing far better than predicted.

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    On reflection it is probably the hyper mobility plus family history that caused them the refer on.

    Quote Originally Posted by mam83 View Post
    That's so interesting beebs, you are the second person I have been speaking to whose child was referred on when the doctors were afraid of something more. My paed and physio are not concerned at all and say it's quite common. Maybe because he is younger though?
    Does he have any other symptoms?? How is he mobilising at 3??


 

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