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  1. #1
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    Default Hypermobility/hyperflexibility and low muscle tone

    Hi all!

    I began to become a bit concerned as my son is not crawling at almost 14 months. I know some kids crawl later than others etc etc but he won't even try. He can't sit up from lying down or get on his knees or move at all really. His development otherwise seems ok. He has excellent fine motor skills, is eating well, is interactive and good at problem solving.

    Anyway after approaching the doctor about it she was a bit concerned too - so we have been referred to a physiotherapist.

    Apparently he is extremely hyper-flexible with low muscle tone. The physio is great and has given us a bunch of exercises to do and things to work on to use and improve his muscles. He is putting more weight on his legs when you hold him. Although he still doesn't really attempt to move. I've been told to expect a large delay in his walking, which is so frustrating for both of us because you can see on his face how much he really wants to be able to move around with the other children and play, and I am getting really tired from having to lift him up and carry him everywhere

    Anyway just wondering if your child has this problem and how long it took for them to walk, and if they had any other problems associated with it. My son is also chronically constipated which they say is linked to this.

    Thanks!!

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    Well my daughter has a syndrome where this kind of thing is very common.
    She has hyptonia/low muscle tone. And yes. ..chronically constipated due to the low muscle tone.
    Because we knew she'd been working with a physio since about 6 weeks old.
    She commando crawled from about 10 months. .. Finally up on all fours at about 14 months. She walked without help. .. All on her own at about 20 months.
    She wears little leg braces to help as the low muscle tone made her feet roll. She walks very well now. .. And once she was up and walking there was no holding her back!
    Sounds like the physio you have is really helping. We did weights on her legs too.

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    Thanks tam tam!!
    What is the syndrome called? Is it that ED somethingorother??

    Yeah he is nowhere near going on all fours yet. Hopefully soon. He does put more weight through his legs when standing now so that's something! Can't step though or hold onto things. One day at a time! Xx

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    My daughter is 13 months and isn't sitting either but she does army crawl and get on hands and knees she started off with fluctuating high muscle tone but since turning one her tone is going more weak

    all I can suggest is keep up the pt improvement won't be today but you will see it over time you will find you will find great pleasure in the small achievements

    3 months ago I never imagined my daughter pulling to stand let alone getting on all 4 but she did

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    Is he being referred for further testing? My DS 3 is hyper mobile so they referred him to a geneticist, heart specialist etc to rule out vascular EDS, they still aren't sure what is going on so now he has been referred to a paed rheumy.

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    My DS1 is 5 and has hypermobile joints and low muscle tone. However his is quite mild/ possibly still in the realms of the normal range (per the physio).
    He was actually quite an early walker (10 months) but was very clumsy/ fell over all the time. We only realised at about 4 years old that he had problems when he was complaining of leg pains.
    He also suffers a bit from constipation.

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    Quote Originally Posted by mam83 View Post
    Thanks tam tam!!
    What is the syndrome called? Is it that ED somethingorother??

    Yeah he is nowhere near going on all fours yet. Hopefully soon. He does put more weight through his legs when standing now so that's something! Can't step though or hold onto things. One day at a time! Xx
    Sorry I didn't see your reply. My daughter has Smith-Lemli-Optiz syndrome.

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    My dd has mild hyper mobile joints mainly and low muscle tone in her core. Which wasn't picked up until she was 5. She walked early but with a really weird gait. She did 4 years of physiotherapy along with speech and ot. She has aspergers. She doesn't have a syndrome as such.

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    Quote Originally Posted by b4us View Post
    My daughter is 13 months and isn't sitting either but she does army crawl and get on hands and knees she started off with fluctuating high muscle tone but since turning one her tone is going more weak

    all I can suggest is keep up the pt improvement won't be today but you will see it over time you will find you will find great pleasure in the small achievements

    3 months ago I never imagined my daughter pulling to stand let alone getting on all 4 but she did
    Thanks so much b4us!
    He stayed on his knees for 5 min today! Totally enjoying the small things!

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    Quote Originally Posted by beebs View Post
    Is he being referred for further testing? My DS 3 is hyper mobile so they referred him to a geneticist, heart specialist etc to rule out vascular EDS, they still aren't sure what is going on so now he has been referred to a paed rheumy.
    That's so interesting beebs, you are the second person I have been speaking to whose child was referred on when the doctors were afraid of something more. My paed and physio are not concerned at all and say it's quite common. Maybe because he is younger though?
    Does he have any other symptoms?? How is he mobilising at 3??


 

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