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  1. #371
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    @Gelati it tests for cystic fibrosis, fragile x syndrome (development delay, epilepsy etc) and spinal muscular atrophy which means weak neck and spine I think. He said this one generally means very short life, will die early and no quality of life. There is no cure for it yet. You can still test them now if you want although he said test it during week 10 then we can make informed decision if needed (touch wood). Both parents need to be the carrier. If only one of you is a carrier then baby will be fine.

  2. #372
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    I did all the vitamin, iron etc BT around 8w. That's when they picked up high glucose level in both blood and urine. My stored iron level was incredible high. The note says i might have infection but OB wasn't worried. He thought it will correct itself when the baby needs more. I know elevit has super high iron so I decided to only take it every two days and take pure folic acid on off day. Iron is poison if overdosed.

    I am taking calcium supplement because i was taking steroid. It depletes calcium. I started to eat yogurt and drink milk just to be healthy. Baby needs the calcium.

    I didn't do the NIPT (aka harmony/verifi test). There are several variations of it. The detailed version also test Y chromosome (if it is a boy) etc. DH doesn't see the point as he wont' terminate. I just didn't want to think about it and went with his decision. The basic BT and 12w scan come back low risk for 3 trisomies so no point in pursuing the NIPT. If it has medicare rebate and everyone is doing it, I would be up for it. Ha...i guarantee you that only us IVFers know about all these and all my other friends who have naturally pregnancy won't have a clue about this and that.

    Did you and DH test CF while going through IVF? We did for medical reason. If none of you have CF, baby shouldn't get CF.

    As long as you did the big scan before 13w5d (??), you will be OK. Otherwise, the NT will be absorbed by the baby.

  3. #373
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    @bbhope we haven't done the cf test for our ivf
    So this time we will do normal 12 week blood test not nipt and will also do the genetic carrier screening. Hopefully all tests come back with loe risks. OB did mention if the normal 12 week bt return low risk no need to do nipt. I'll get the pregnancy bt and urine test tomorrow hopefully my calcium level is ok. I know last time my vit D was pretty much gone as soon as I got pregnant. This time I've been taking 3 tablets a day. I might start drinking milk next week or have some hard cheese.

    Apparently nipt test is becoming quite common. 2 of my friends, non ivf, have also done it so they got the bonus of finding out gender early.

  4. #374
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    As long as the BT is done before the scan, no problem. They need both to calculate the risk. Nah...we can wait to find out the gender. $500 just for that isn't worth it.

  5. #375
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    BT is week 10 so scan is 3 weeks later. Plenty of time. My ultrasound place has asked for egg collection date, embryo freezing date, etc

  6. #376
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    Hi Ladies

    Sorry to jump in - but so many names I recognise. Hope you are all well and best of lucky with this cycle!

    @Minib - I did the VCGS on my doc's recommendation, even tho there was no probable cause. (My mum said I was wasting my money, as I wouldn't have it done if I fell pregnant naturally. True - but anyway...) Listen, it was a lot of money, but I suppose when you invest so much what is another few hundred for piece of mind. Unless you have a family history of any, or certain heritage which would make you more susceptible, then you can probably pass. The good thing is it's a once off test, and your partner / hubby won't have to be tested until/unless you come back as high risk in any category. If I had more time to think about it, I'd probably not have done it until we'd been through multiple miscarriages (which luckily we haven't...)

    By NIPT do you mean NIPS? Assume so. Did that too. That test was well worth the money, and we got the sex at 14 weeks. My only but with this one is that the test itself is not diagnostic, so the foetus can come back high risk but have no issues at all. The more invasive tests done later (CVS and one other I can't think of the name of) are the diagnostic ones.

    That said, if you come back low-risk, you are over the moon.

    So if you have the money, go for it. But don't stress if you don't. And if it's one or the other, do the NIPS.
    Last edited by ilex; 08-05-2015 at 07:20.

  7. #377
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    @lileitak thanks for all the info. You are right. There are a lot of tests available and they add up really quickly. A lot of my friends didn't do any of these tests, the ob didn't offer them the tests. Weird. I have time to decide so will think about it over the weekend.

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    ilex  (08-05-2015)

  9. #378
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    No worries @Minib The other thing I forgot to mention regarding the NIPS would be age. If you're 34+, it's probably worth it. I actually just found out a girlfriend of mine recently terminated due to a trisomy 18 (they were natural conception). While is was incredibly hard, it was better for her and her husband to know, and make the informed decision - as opposed to an unexpected MC or possible stillbirth. She is now 18 weeks with a healthy bub.

    The other thing to consider is what you will do with the info once you have it. We were pretty sure we'd terminate with trisomy 18 and 13 (only after a follow-up diagnostic test), but would keep the baby if they came back high risk for downs.

    It can be confronting.

    Anyway, best of luck!
    Last edited by ilex; 08-05-2015 at 07:28.

  10. #379
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    @lileitak I'm 32. That's so sad re your friend. I actually don't know what trisomy 18 or 13 impacts are. I've had 1 mmc and 1 chemical so far. We will most likely terminate if our bub has spinal issue which is what the VCGS test. It doesn't look like a lot of people do this test so maybe it's not as common. I also like to know more so I can make informed decision. But have to convince hubby on spending the money.

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    ilex  (08-05-2015)

  12. #380
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    I don't remember which one is which. The basic test for down, patau and edward syndromes. I explained to DH that it is better to know because having the last two and other trisomies can be hard for the quality of life bub would have. Because DH won't terminate so no point for me to do it. He said nature will take it cause in those cases. Thanks goodness that it is low risk. It is not about the $, though.

    Just like lilitek said, it is confronting what if something is wrong. Good luck deciding.


 

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