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  1. #1
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    Default Reflux after 12 months

    So my DS who is almost 12 months still has severe silent reflux. I'm looking for other parents who are having or had the same issue with reflux so i can chat to other people who have or are going through silent reflux after the "normal" cut off time. I was told when he started sitting and solids he would get better but he didn't. He doesn't sleep well and is always in pain I knew it would be hard and I think I've done well to help him through this painful and challenging time in his young life. But I want it to end for him already I want his pain to go away so that he can eat sleep and play happily. This reflux has caused us so many issues with feeding aversions and weight loss and sleeping. It feels like it's never going to go away 😔

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  3. #3
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    My daughter was on losec from 8 weeks to 12 months but she has always been a bad sleeper. She recently had a sleep study & has been diagnosed with reflux again at almost 2.5yrs. She's been on Somac (normally for over 5yr olds) for a few weeks and she has been sleeping better. More importantly we were referred to a paediatric gastroenterologist. Maybe this is something you can look into to find the cause/foods that may be causing it.

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    Is he on any medication for it? I chose to go this way with my daughter because she was in so much pain. Losec was a god send for us, the amount the dr prescribed didn't do much but once we upped the dose through a paediatrician she was a different baby. She also had dairy and soy intolerance and a severe lip tie that contributed to her reflux, but that's another story :-/

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    He is on losec has been since 3 weeks old it never has done much at one point he was on losec, Zantac and Gaviscon for adults all doses where above those of the normal range. He as a cows milk protein allergy its non-ige mediated so he doesn't have anaphylaxis. We are super careful about what he eats, he has soy formula. He spent quite a lot of his first 6 months in the hospital with feeding aversions, ng tube and because they needed to keep an eye on his sleeping and reflux. Lots of dosage adjustments. We live in a rural town with a population of around 40,000 people and still do not have a gastroenterologist! Not only that but they refused to admit that I was right all along when I told them he needed to see someone that further specialises in those areas! Needless to say at now 1 year old he still has very severe silent reflux and we still have no referral

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    Hi there, I am onto my fourth reflux bub now. My last two were not able to come off meds until they were three. If you haven't already join the RISA- reflux infant support association. They have a great facebook group, people are on there everyday asking questions, you won't feel so alone. Pm me if you need to now anything else.

  7. #7
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    I also see a gastro paed who does Skype consults from Brisbane, let me know if you want his details.

  8. #8
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    My 20 month old son still has sevwre reflux and relies on nexium and zantac twice daily for each and also mylanta during break through pain and flares. We don't see an end in sight at tgis stage and his gastro pead said he may be in medications until he is 4 or 5yrs. We are booked in for an endoscope to check for structural issues, just waiting fir a date.
    RISA- reflux in fant support association is a great support network and you will find LOTS of families on the members facebook page with older kids going through reflux. They have a public facebook page too.
    gastro peads you will generally only find in major cities and mainly at childrens hospitals. Not sure what your location is but you could get a referral to see a gastro pead at whatever your nearest children's hospital is (syd, melb etc) and travel to be seen. Our gastro pead is brilliant. We are in melbourne to go to Melbourne royal chilsrens hospital and they are brilliant.

    Sent from my GT-I9505 using The Bub Hub mobile app

  9. #9
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    Thanks ladies I will definitely be joining RISA I meant to do it ages ago. We've just had a massive flare its been horrible babywearing and gaviscon (adult) have been our lifesavers but he is barely getting a wink of sleep not that he usually does anyway but its worse atm. We are travelling Aus atm too we don't see an end in sight either so decided it was time to stop putting plans on hold. He seems to really be enjoying the great outdoors but is mostly attached to me too. I am worried not so much about the reflux but his lack of "social" skills he has been carried and held so much by me since birth that if anyone even says hi to him he freaks and has a complete melt down anyone else have this issue? I am hoping to see a specialist when we get to Brisbane where we will most likely settle. Its been a hard 12 months so far I don't know how you ladies have done it! I guess when you love your children this much you would do anything for them

  10. #10
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    Forgot to add he wont go to or settle for his dad during flares or on bad days so im pretty much doing it on my own he has been like that since birth wont feed for him either not sure why or if anyone else has that issue too?


 

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