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  1. #11
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    Quote Originally Posted by HappyBovine View Post
    @CMF how are things going?

    I took DD2 for a follow up xray and appointment with the GP today. The mass hasn't moved like I thought it had. I was told to either let her have a week off school and give her 6 satchets of Movicol a day or 4 a day until the school holidays and give her the 6 a day in the school holidays.

    She is horrified and I've had to stoop to paying her $5 a week to drink it.
    How's it going? It's driving me insane!
    I don't know if she's any better or not. She goes to the toilet every day, sometimes 2-3 times, all types 5-7. Yet when we went back to the paed a few weeks ago, he says she's still blocked up, by having a feel of her abdomen.
    This paed is a dipsh!t, so we are changing. Unrelated, but we went and did his requested asthma testing, so that he could prove to me that she's making up her asthma symptoms. And surprise surprise, she has moderate-severe asthma. So that was the last straw.
    We are seeing one that has been recommended (he specialises in asthma, so I hope he can figure out the gut stuff as well), but he's in the same practice, so I hope they don't get together to discuss DD, I want some fresh ideas.

    Anyway when I go I am going to ask for an xray, so that we can be sure how her constipation is going.
    If she's still blocked up, I wonder if he will suggest similar to what your DD needs to do.

    I'm going to ask him about food intolerances as well. But other than that everything seems to be physically fine. She had an abdo ultrasound the other week. I don't yet have the report, but the doctor who did the u/s said all her organs are healthy. She did have a lot of air spaces in there though. But he couldn't really tell me what that meant, as he couldn't pick up on u/s if she was constipated.

    I also asked my DS1's psych yesterday about her symptoms, she said all of it could be caused by anxiety. I hope not. So that's another thing I could look into if we have no joy at the paed.

    *sigh* sorry for the massive vent!

    So what have you and your DD decided? Is she going to wait til the holidays? Even 4 a day sounds a lot! How much is she on at the moment? I feel so bad for these kids, having to give them so much laxatives. It must be a horrible feeling, to wonder if you're going to make it to the toilet on time.
    What are your plans re. preventing this happen in the future? Are you looking into food intolerances for your DD2 or was that your DD1?
    Or do you think it's just gotten out of control from early years and maybe once it's cleared she'll be ok?

  2. #12
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    @HappyBovine I thought about the col0noscopy clean out too, and I have wondered why it's never been mentioned. Surely it would be easier than doing what we're doing. And yes we fret about the school thing as well, gosh can you imagine if something happened.
    I am also thinking of seeing a dietitian about doing a proper elimination diet. It's also something I'll ask the paed about. I did just try the dairy elimination diet, which made no difference to her, but I'm not sure if I did it properly as I didn't seek advice about it I just did it myself.

    Edit- why on earth is col0n a banned word? lol

  3. #13
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    Default Hospital clean out for severe chronic constipation

    My DS who is 6 has had severe and chronic constipation for over 3 years and had been on movicol half for about 2 years. We struggled through kindy and prep with leakage in his pants every day and at prep the teacher aside would shower and change him if necessary. We thought it had settled down but it seemed it was growing worse and this year in grade 1 he has had leakage through most of term 2 and 3.
    We returned to his pead. Gastroenterologist who sent him to a surgeon to do biopsies. We were taking 2 adult movicol daily in the weeks leading up to the surgery and had a enema in the hospital prior to surgery.
    The surgeon did the biopsies but could not use the camera to have a look for inflammation as he was so clogged with poo.
    So after 6 weeks off school he and I ate spending a few days in hospital. He Haas a nasal gastric tube with the medicine you take before a colonoscopy going in to remove the large mass.
    This should stop the anal leakage and then he can go back to school. The school has been great and week help him to catch up on work. They have agreed that he would be teased at school and it is better to keep him at home at this stage.
    I was told the medicine used for colonoscopies is not to be used in children under 12 unless supervised by a doctor (the pharmacist looked it up after I worked then about it)
    We were given the option to try stronger medication but were warned that due to the size of the mass it could be a month before out moved. I wanted him back at school and he missed his friends that we opted for the hospital option.
    Sorry for the essay. We have been battling on for 3 years and I am so over poo in undies and cleaning it of the floor and wiping bottoms!
    Last edited by DaneRuth; 27-10-2015 at 23:46.

  4. #14
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    Hi, just wandering what the outcome was with your daughter @CMF
    My daughter is 9 y.o with the exact same symptoms with the same diagnosis and treatment as yours
    Last edited by Salrose; 22-03-2016 at 20:09.

  5. #15
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    Quote Originally Posted by Salrose View Post
    Hi, just wandering what the outcome was with your daughter @CMF
    My daughter is 9 y.o with the exact same symptoms with the same diagnosis and treatment as yours
    Oh gosh, it's been a never ending saga! So basically, the main issue was anxiety.
    This was causing her constipation, nausea and tummy pains. She has been seeing a psychologist for about a year who has done wonders. Constipation is gone. Nausea and tummy pain is significantly reduced but still there a little.

    Second issue which is ongoing is reflux. She is under the care of a paediatric gastroenterologist now, and has had numerous tests, with the latest being a gastroscopy, which showed eosinophilic esophagitis. She has been taking pulmicort slurries for that which has helped quite a bit but not totally. So she's going to have another scope next month, and may add another med into her regime.
    She's also on a (very long) waiting list for an allergist to try and find a cause for the esophagitis.
    Interestingly, the pulmicort has also helped her asthma considerably.

    But definitely the #1 thing to help was a diagnosis and treatment of anxiety! Poor little thing. It's been such a long journey.

    I hope you can find some answers for your DD Salrose.


 

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