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  1. #831
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    MGC Bertie..... I was referring to the level of subsidisation the Govt pays for all drugs when they are released to the market. Some drugs get nothing (those are the $100k per year of treatment usually considered experimental drugs that hopefully very few people ever need) down to the fully subsidised PBS drugs at $8-$10. If the drug gets a Medicare item number for a particular use then it is heavily subsidised (or free in some cases). IVIG costs about $6000 to produce around 20g in Australia so if the average fertility patient pays $2500 - 3000 then we are getting it roughly 50% subsidised by the Fed Govt. The patients that have specific Immune diagnoses that are covered by Medicare item numbers usually pay no more than about $100 per treatment which is just as well as there are people out there having IVIG monthly for their entire life. IVIG is considered a wonder drug around the world and Australia can't make enough of it to meet our needs so we import about 40% of what we use from other countries. With demand so high there is no way the manufacturers are going to reduce the price so we are always going to pay a lot for it no matter the degree of government subsidisation !

    Try not to get too worried about Dr M's 'cash' etc workings, he isn't cheating the system it is just that a lot of his therapies (like the IVIG and Intralipids) are not Medicare covered items and as most of us have found out talking to other FS's, his work is considered fairly 'left field' in Australia. G claims the cash system is because she doesn't like technology which also fits with their manual receipt system. At the end of the day he is a business who has enough clients that he doesn't have to offer an EFTPOS payment option and have the added cost of that. I have another doctor who only accepts cash or cheques and also does manual receipts! At least Dr M accepts bank transfer.

    I

  2. The Following User Says Thank You to Cathy69 For This Useful Post:

    MGC Bertie  (02-04-2015)

  3. #832
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    Default High Natural Killer Cells #6

    Quote Originally Posted by miissalina View Post
    @Bella978 I've wanted to join the FB group for a while i just get worried others may see I'm a part of the group or they'll see what I post, it's good to no it's confidential 😊 when I feel ready I'll inbox you too add me 😊
    Definitely let me know if you want to join. Heaps of ladies on this forum are on it. As @Chiefsgirl said it is most definitely totally private. The only way anyone would know you're a part of the group is if they are reading your fb over your shoulder! Or you could even hide it from your newsfeed and just go on the page at home in private

    It's an awesome group and of the 50 or so ladies in there I've probably met about 15 in person. We now often have Dinners together (at least I know the sydney and Melbourne girls meet up frequently) and those of us lucky enough to have bubs have play dates every couple of months.

    As I said in my previous post, just pm me your email address as I can only add people that way (unless they are my fb friend).

    Thinking of all those currently cycling and planning their next step and hoping the next wave of BFPs rolls in soon!
    Last edited by Bella978; 02-04-2015 at 13:02.

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    Fiona2  (04-04-2015),Pauli77  (02-04-2015)

  5. #833
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    @bbhope they don't make it easy for us do they!!! @eveclo I have recently changed clinics and now use Genea and see dr gee in Kent street I haven't actually started my cycle with her yet but In my appnt she was very informative and listened to everything I had to say and didn't laugh at my worries she actually took me seriously she wants me to do the estrogen primming protocol to help with quality, although I'm abit worried about this because it's ment to be used for poor responders which I am defiantly not!!! I always over respond so I'll let you no how I go with her 😊
    Have any of the ladies here done the estrogen primming protocol not as a poor responder but to help with the quality I can't seem to find anyone who has done it for that reason @Bella978 I think you've convinced me lol but I'll pm you after the long weekend we are going away and if I get added now I'll just spend the whole holiday looking through the page haha

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    Bella978  (02-04-2015)

  7. #834
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    Hi ladies,
    Quick question... How important is it that infusions are slow? Just had my IVIG in Perth and I was in and out in 1.5hrs 😦 Very small amount of saline pre and post. They said they follow the Red Cross Protocol. I just hope after paying all that money that the speed is not a huge factor?!?

  8. #835
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    Default High Natural Killer Cells #6

    Scruffy: bertie and other probably can tell u more about ivig. I don't fuss much about the infusion rate on intralipid as long as it isn't like a factor of two faster, which it hasn't been in my case (like an hr?). Maybe it is faster than what DrM does. Just as we all said earlier, it is not a precise science, we all absorb the fluid differently.

  9. #836
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    @eveclo I can also vouch for Dr Gee at Genea, she was great with me, gave me every test under the sun to figure out why I kept having failed transfers. And she does believe in immune treatment & was more than happy to work alongside Dr M, she actually recommended I go and see him. I didn't get along with Dr Lok too well, but know some girls who like him. His speciality area is male factor infertility which wasn't applicable to me and my partner. I think it's good to go with a FS who specialises in your particular problem area.

  10. #837
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    Scruffy.... as a rough guide as to what Dr M does -

    Intrallipids (500ml)
    - 2pm arrive, 3pm saline (1 litre at 900ml/hour, then 20ml/hour until Dr M arrives - so take about 2 hours), 5pm Dr M arrives and hooks up Intrallipids (110ml/hour - usually about 5 hours, but this last time, he pushed it up to 125ml/hour - so only took 4 hours), then saline (250ml at 500ml/hour so takes half an hour - though this last time, they did it at 1000ml/hour so only took 15 minutes), normally leave at 10.30pm

    IVIG (I have 15g, so one and a half bottles)
    - arrive 2pm, exactly the same pre and post saline rates, but the IVIG takes an hour longer (about 6 hours), so usually leave at 11.30pm

    Dr M is the only one sticking to a slow infusion rate. Other clinics who are taking it on, are either doing smaller doses, or doing it at much faster rates (such as yours). Unfortunately there is no accessible data as to dosages given, rates of infusion and corresponding success rates. Wouldn't that be interesting to see?

  11. #838
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    Hi ladies,
    Sorry for being slack on the posts. I've been exhausted the last week or so, get home around 7pm and in bed by 9.30pm. Up again at 6.30am not wanting to leave bed. Needless to say my house is ferral, haven't done dishes or house work....Lucky it's just me!

    Hi to the newbies, @Cathy69 we meet again, we seem to be in the same boat😆

    I had intralipids last Saturday and I've come to realise the speed of the infusion depends on the nurse I have on the day. Last week my 500mls was done in 1.5hrs. They mix the intralipid with the saline so i don't have any before or after saline.

    I had my 10wk appt today and it went well. I went in with empty bladder expecting an internal scan again, but they wanted to do an external, even though I had no water in me. Photos and video weren't as good as previously with internal, so hopefully next time with water they may be better. My babies are still there in perfect size and good heart rates. Had all my pregnancy blood tests and urine sample. I told my OB that I had spotting last week for 4 days, it was brown discharge once a day, not extreme enough to call Dr. Anyway, he decided that I should have my Anti D injection today as it may have been from that.

    I finished on the Neupogen and have my next appt with Dr M next Thurs to see how my CD markers are going.

    Hi to everyone else 🙋

  12. #839
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    Thanks MGC. I have also done IVIG with Dr M and this was WAY faster. Interestingly even the bottle was different (I did double check it was immunoglobulins!) and very little saline before and just a syringe flush at the end.

    I have a cracking headache now though... I think the slow speed is also to decrease side effects

  13. The Following User Says Thank You to Scruffy For This Useful Post:

    MGC Bertie  (04-04-2015)

  14. #840
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    Just a quick line to say my 20 week scan went perfect today, everything normal looking, and the genetic specialist said that my chromosome issue will not affect the genes of the baby. And... we're having a baby girl :-))

  15. The Following 5 Users Say Thank You to MGC Bertie For This Useful Post:

    bbhope  (08-04-2015),Bella978  (09-04-2015),ladybug14  (08-04-2015),Little Ted  (09-04-2015),Miss Sagi  (08-04-2015)


 

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