Hi Miss Sagi, I hear you re Dr M and the neupogen consult!!! Wow that's great your CD57 have gone down that much, it's a shame you didn't ask him how or why that can happen... I have them at 30mm2 and am interested to do a biopsy again to see if they have changed... basically I really don't want to take any more dex if I can avoid it... I booked in to have a bone density test as I'm worried about having been on it for the most part of 6 months now with only about two breaks of 3 weeks due to all the weaning off etc. If your bone density has reduced to a certain level my GP said you have to take some kind of medication for the rest of your life to stop further bone loss... and I was only alerted to test it by a pharmacist I got the dex from... not Dr M, not GP, not FS. So I'm hoping it will be fine. Just a note to everyone, you should get yours tested too especially if you've been on and off steroids for several cycles. I'm also getting my fasting blood sugar tested to check on any diabetes signs from dex. FUN.
With the neupogen Miss Sagi, I know you shouldn't take it on the same day as IVIG but I'm really not sure about intralipid... I forgot the first time and took it same day as IVIG and DR M said don't worry about it, but there was nothing to be done anyway so who knows. Can't believe he didn't give you a dex dose! I do find that I have to lead the way and bring things up a lot. Doesn't give you the confidence you want in the whole process does it?!!
I live in Sydney so will have MRI here... Repromed nurse called me today after she asked Dr T what I should do and he said MRI, so I got my GP to send me a referral in the post. No idea how much it costs or what the risks are... do you? have you been tested with an MRI? No one is telling me to do it, just me as my FS said a scan mentioned possible adenomyosis but that's all I've got to go on really so it could be completely unnecessary.
You must be really looking fwd to SA, you will have quite an adventure there