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  1. #131
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    Unfortunately because I'm in Melbourne I can't suggest anywhere for you to try - but maybe one of the other ladies scan?

  2. The Following User Says Thank You to freakedout44 For This Useful Post:

    ange1111  (21-03-2016)

  3. #132
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    Default Thank You!!!

    Hi Ladies. I have only just joined BubHub after receiving news that I have NK Cells, Hashimoto's Thyroiditis, MTHFR Gene & DQ Alpha Gene Match.
    Hearing success stories has given me a positive outlook for what is instore for us.
    Seeing Nick Lolatgis in 12 weeks.
    Previously with Melbourne IVF - Lyndon Hale ( 7 transfers of 9 5day Embies)
    1x chemical pregnancy on cycle 5.

    I finally made the decision to go to Monash and see Nick after speaking with my gynaecologist (Stan Tsocanos) - Stan has done all of my testings on Nick's behalf including Lap to remove Endo 3 weeks ago today.

    I'm so anxious about LITs , Clexane, Intrepalids etc.

    Thank You for all for being a wealth of knowledge.

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    ange1111  (06-05-2016)

  5. #133
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    Hi @Shakiera, I have no doubt that immune modulation is the missing link for many women (especially when you read studies like these), I'm sorry you've had to go through so much heartache. LIT, Clex & especially Intralipids I've personally found to be a walk in the park, feel free to ask any questions & all the best!

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    ange1111  (06-05-2016)

  7. #134
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    @shakeira I hope that your new diagnosis is the key to success for you. Nick is fantastic at what he does and I hope he gets you your take home Bub.

    I wasn't a fan of the lit treatments, but it is over in 15mins and is really not that bad, so you'll be fine. If you are nervous perhaps have a loved one go with you to talk to you while it's being done. It helped for me. Everything else I found much easier... I even had a nap during one of my intralipid treatments when I was tired during early pregnancy!

    All the best!

  8. #135
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    I appreciate the prompt replies so much. DH is **** scared of needles and blood so the LITs are freaking him out a little but willing to do whatever it takes.
    I bought the book by Alan Beer last night. Can't wait to read it.

  9. #136
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    F
    Last edited by skye76; 19-05-2016 at 20:35.

  10. #137
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    Hi all, Dr Matthias has written a pathology request for HLA Typing and it has the words "coeliac HLA typing DQ DR" some of the girls on the NK cell forum said to get it redone by another GP otherwise we'd be charged full amount.
    Has anyone done that and what does the test cost? Which pathologist did you use (company name). Thanks for help

  11. #138
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    I had my GP rewrite it and I didn't have to pay anything. Unfortunately my husband ended up paying $120 which I can live with.

  12. #139
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    Good plan. Why pay the money if we don't need to.

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    pingc383  (29-09-2016)

  14. #140
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    Thanks ping X and last chance! @pingc383 let me know how you go... The gp I went to write it on a form that clearly stated not Medicare rebate so I won't use that form...I also called the pathologist and they were a little confused by the request, I think it may be two diff types?? Coeliac only tests for two genes whereas we want HLA typing . So yeah I'm a little confused still. I'd rather not pay as we fork out so much!


 

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