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  1. #1
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    Default Does this sound like endometriosis ?

    I've suffered with stomach and bowel issues for at least 4 yrs, and extremely bad periods since I started them age 10. I'm 26 now. I've always had horrible stomach and bowel issues when I'm on. The pain is so bad that I'd stay off school and now off work. It was always put down to I'm young, or not eating properly. And as for my stomach and bowel issues, it's shrugged off as ibs and gastral problems. The last two years, everything's been a lot worse, it's becoming rare that I have a day where I'm not suffering due to diarrhea, constipation, pain, and I always know when I'm due on as my lower stomach is so achy and it is constant pain in my lower back, shoulder and boobs. I'm constantly tired, headaches and dread everyday sitting on my loo! The period pains make me so weak, sleepy and sick, I can't even stand up without feeling light headed. I've recently lost weight, as I'm daily having diarrhea full of undigested foods. When I'm on, my whole stomach and bowel area is so so heavy and sore to touch, feels like my bowel is going to fall out!! My legs ache with every period I get. I get a horrid ache and pain down my left shoulder to elbow which wakes me. Ugh. I'd really really appreciate any advice on if this all sounds like endometriosis? I have an MRI scan next Thursday which I hope has answers! Thankyou x

  2. #2
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    Sorry to hear the pain you are going through. Must be really difficult when it's stopping you every month from leading your normal life.
    I was diagnosed with endo when I was 19/20. Your symptoms were very similar to mine with the irritable bowel and pain. I couldn't stand for long periods of time either. After 6 months of zoladex implants (these put you into premenopause which try stop the endo) things improved and I've since had 4 daughters that I believe also helped.
    Have you seen a gyno yet? The best option is to see a gyno, have a laparoscopy and see if you actually do have endo and whether they can remove any whilst they are in there. With your bowels I would also recommend a *****oscopy to make sure your bowels are ok. I have had both procedures more than once which gave me a lot of answers.
    All the best, hope you find some answers.

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    Wow what an awful lot of suffering you poor thing.
    When I read your post, it sounds like you have a damaged gut with some serious inflammation. Our gut thrives on bacteria and my guess is yours is extremely unbalanced. The good news is you can heal it through cultured foods and drinks like sauerkraut, kombucha and kefir and avoiding ALL processed foods.
    Our body needs nourishment and it's not getting that with diet these days.

    There was an excellent program on catalyst the other night about gut reaction. You can watch it on iView and I highly recommend it.
    Your health and immunity starts in the gut so if it's damaged then you're going to get a string of health problems.

    Food is medicine, not drugs. Good luck. Hope you get some answers soon.

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    I have both endo and I have inflammatory bowel disease (IBD). Please tell the doctors that you are in so much pain that you need referrals to specialists ASAP. I was fobbed off like you as having irritable bowel, anxiety, stress, just "heavy periods" etc etc and for each condition it wasn't until I was in a pretty bad way that anyone listened to me. Losing weight and having diarrohea daily, as well as bad abdominal pain are all signs of IBD and this needs to be ruled out. Since my diagnosis I've read that endo and IBD can go together.

    The gynae issues also need to be sorted ASAP. Ask for referrals to both a gyn and a gastroenterologist.

    Poor thing, I was you not long ago. Once people start listening things start getting sorted quickly. Be pushy if you need to be.

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    I had similar symptoms but nowhere near as bad as yours. Mine would flare up mid-cycle (ovulation) and I would get really bloated, diarrhea, horrible tearing pain etc. My GP sent me to a gastroenterologist to rule out anything too nasty, the gastro thought it was endo so told me to see my Gyno. Saw my Gyno and had a laparoscopy where they found and removed mild endo. I felt so much better after the lap.

    Definitely see a gynecologist and get a lap done, it's the only conclusive way to diagnose endo.

  6. #6
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    Quote Originally Posted by natmodz View Post
    I've suffered with stomach and bowel issues for at least 4 yrs, and extremely bad periods since I started them age 10. I'm 26 now. I've always had horrible stomach and bowel issues when I'm on. The pain is so bad that I'd stay off school and now off work. It was always put down to I'm young, or not eating properly. And as for my stomach and bowel issues, it's shrugged off as ibs and gastral problems. The last two years, everything's been a lot worse, it's becoming rare that I have a day where I'm not suffering due to diarrhea, constipation, pain, and I always know when I'm due on as my lower stomach is so achy and it is constant pain in my lower back, shoulder and boobs. I'm constantly tired, headaches and dread everyday sitting on my loo! The period pains make me so weak, sleepy and sick, I can't even stand up without feeling light headed. I've recently lost weight, as I'm daily having diarrhea full of undigested foods. When I'm on, my whole stomach and bowel area is so so heavy and sore to touch, feels like my bowel is going to fall out!! My legs ache with every period I get. I get a horrid ache and pain down my left shoulder to elbow which wakes me. Ugh. I'd really really appreciate any advice on if this all sounds like endometriosis? I have an MRI scan next Thursday which I hope has answers! Thankyou x
    I had the exact same symptoms as you for the last 18 years or so. Very painful period pains, irregular periods. I would also suffered from bad lower back pains almost everyday. I hated window shopping with friends as I could not walk for more that 15-20 mins without needing to sit down and not move. The first day or 2 when my period starts, would bring diarrhea and constipation at the same time, bloating and gastric reflux. I would also get severe leg cramps, cold sweating, non stop vomitting which will last for days until I go to the emergency department in hospital to stop the vomitting and the dehydration, caused by the vomiting and being unable to eat or even a sip of water.

    Doctors through out the years did not mention I may have endometriosis. They put it down to IBS or gastro. My current doctor send me for an ultrasound where they picked up I had a couple of cysts on my ovaries. It was only when I had keyhole surgery to remove the ovarian cysts that they found I had severe endometriosis. (It does not get picked up on an ultrasound and you need keyhole surgery to confirm it).

    They could not remove the endometriosis when they removed the cysts because my case was severe. I was booked back for laporoscopy to remove the endometriosis on the 5th of August 2014 this year and I cannot tell you how much better I feel!

    I am amazed at the difference. I have had 3 period cycles since August, they have been pretty regular and the pain is gone!

    Since my operation, I have taken one nurofen on my first day of my period and that was all I needed. No more aching legs. No more bad tummy, back ache has significantly reduced. No more vomiting, no more lying in bed for days feeling like I am going to die, or wishing I could kill myself every time my period comes. I have been able to move around and even go to work on my first day of my period since I had the endometriosis removed.

    Please go and check for endometriosis as it sounds like you have it. My surgeon told me that periods are not suppose to be very painful or causes the problems you are having, very likely endometriosis. If it is, and you get the laporoscopy to remove it, you will feel so much better! Good luck and let us know how it goes.
    Last edited by terrastrega; 20-11-2014 at 16:09.


 

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