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  1. #681
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    Thanks for the info girls. I'll definitely be pushing for dex and maybe neupogen if it helps the lining that's a bonus for me! I have been doing medicated FET's with a high level of estrogen (3 tabs 3 x day) plus a couple of cycles with estrogen injections too! Will ask my FS about Viagra pessaries
    @ladybug I definitely didn't pay Dr M a pregnancy management fee. I only paid for phone consults and infusions.

    I do go gluten free when I cycle but haven't tried dairy free - oh man these people who get pregnant at the drop of a hat have no idea what we do! I loved my pizza and wine last night

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    ladybug14  (15-10-2014)

  3. #682
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    Just spoke to G and the $650 isn't a mistake. She's getting the accounts lady to call me back though. She said it's not new either. Not sure why no one else has had to pay it. Can't claim anything back either. Grrrr! lol!

  4. #683
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    Hi ladies, I'm new to this thread. So sorry for everyone's struggles and losses! I'm 24 and I've had two back to back miscarriages this year. The first at 9.5 weeks and the second at nearly 12 weeks. All the doctors in my area told me it was just "bad luck" and wouldn't do any testing despite my numerous requests. Since then due to frustration with my local doctors I have become a patient of Dr Sacks in Sydney - 3 hours away. After lots of tests everything came back normal apart from Nk cell levels which are 19.6%. I know normal should be less than 12% but I'm not sure how high 19.6% is in the scheme of things. It appears most doctors don't really know either as the relevance of Nk cells for recurrent miscarriage is so controversial rather than universal (trust me to have something like this lol).

    I'm really happy with Sacks so far but my concern is that doesn't think I should be given anything other than progesterone pessaries and I'm worried this just won't be enough to avoid another miscarriage. I do agree with him that steroids aren't a good idea for me. I'm not really sure about HIS reason for it - he cited my age? But after reading the possible side effects I personally feel steroids aren't for me anyway. I have anxiety and a history of depression.

    My ovarian reserve came back at above average - 92 pmol/L. I assume that's a good thing? Feeling a little overwhelmed and unsure about everything. My husband and I desperately want a baby. We've decided we'd put off trying until the new year to give my body a rest and make sure I'm as healthy as possible. After doing some research on NK cells I've started taking high dosage fish oil tablets.


    I guess my question is are there any other ladies out there in my situation and have any of you gone on to have a healthy baby from simply using progesterone pessaries (not steroids or IVig). Can anyone suggest anything else I can do to lower my NK cells naturally? Or does anyone have a theory of why our NK cells are elevated in the first place? With my first miscarriage my d&c results came back showing low grade chronic endometritis (NOTE: not endometriosis). All doctors I have brought it up to have shrugged it off but from my own research chronic endometritis is due to an infection of the uterine lining. I've started thinking maybe my first miscarriage was just bad luck and the second one was due to elevated Nk cells that were on the warpath so to speak after having to eradicate an infection in my uterus. Meh I don't know. Feeling defeated that there's no real solution to all this. It's so trial and error

    Any advice much appreciated. Thanks in advance xxx

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    PreciousHeart  (16-10-2014)

  6. #684
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    Quote Originally Posted by Nidhulaine View Post
    precious my Neupogen dose was high starting at 100mcg or 1/3 of a vial but I ended up on a dose of 60mcg or 1/5 of a vial. I am also 6ft and 80kg per pregnancy. My Dex dose was always 2mg but I have very high. ANAs and hence need the high steroids.
    Another thing is with immune meds is they sort of build up. I did an (PGD embie) on the Neupogen and intralipids but no luck but very next cycle got pregnant on the same drugs and quantities doing an iui. So don't give up if the first attempt doesn't work.
    With regard to the price difference of the IVIG between Melbourne and Sydney I did some investigation and dr M only uses Grifols which is very expensive where a lot of Melbourne ladies seem to go with octagam. Now there is nothing wrong with either brand now but I did find that octagam has only re-entered the market in the last two years in the EU as they used to use a different purification process and there were cases of thrombosis. Octagam have now changed their purification process to bring it in line with Baxters and Grifols and I suspect that re-entering the market is linked to their more competitive pricing. I don't doubt that dr M is making a tidy profit but from ladies who have had the option of purchasing both from Slades in Melbourne I know the octagam is definitely cheaper.
    Hi Nidulaine and @PreciousHeart...It's true that at Mel at Slades Phamarcy, they no longer carry Grifols and we are using Octagam. Howver, the price for Grifols is still quite cheap here and it's only $860/10gm. Whereas, Grifols is $660/10gm. I weigh 70kg and just paid $1980 for 3 bottles. Very expensive!!!!

    Ladies!!
    I want to share this new treatment I'm doing with Dr. nick for immune therapy which is not yet commonly used in Australia yet but some of you may be aware or heard off. It's called " LIT x2 ( lymphocyte immunisation Theraphy ). Its when they take out white blood cells from my husband and inject it into me twice over a month before starting the cycle. The idea is it would reduce the NK cells killing power and blocking anti bodies. This treatment sounds very interesting and one of Dr. Beer's immune theraphy. Has any of you done it?

    On top of that, I'm on 2mg of Dex, 1 x Clexane daily, 1 x 100 mg of Aspirin, Estradot patches, 2 x pessaries daily. Melatonin ( this is so awesome taking with Dex, it approves egg quality and makes me sleepy! ).

    i hope I'm on the right part with this, I'm so tired
    Last edited by Babychino; 15-10-2014 at 20:05.

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    PreciousHeart  (16-10-2014)

  8. #685
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    @ladybug: are u sure that it isn't for intralipid? The price seems to be that. I have never heard of a management fee. I just asked someone from Perth who is also DrM patient and has her own OB. She flew to syd for intralipid early on. She didn't pay any management fee. Only intralipid and consultation.

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    PreciousHeart  (16-10-2014)

  10. #686
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    @thirdtimeclucky sorry to hear that you have gone through miscarriages but a lot of us here also have high NK cells. My previous FS did not believe in NK cells and I soent 4 cycles with him. Now I'm treating my NK cells and high ANA condition with intralipid and IVIG. In short, NK cells can be elevated anytime when your immune system mistakes the embryo as cancer! It often happens when you and partner share same gene ( eg; DQ Alpha gene as my case ). It is hard to say when and how it can get elevated. I guess mine got elevated after my first miscarriage and I haven't been able to get any implantation afterwards. Other ladies here have more knowledge than me and would be able to explain In more detail!

    I recommend end you read " Is your body baby friendly by Dr. Alan Beer ".. It has everything you need to know and explains very well. All I csn say is to find FS that believes in this immune system therapy! Good luck

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    PreciousHeart  (16-10-2014)

  12. #687
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    Thirdtimeclucky sorry to hear your troubles... Those miscarriages are not normal & shouldn't be shrugged off, how appalling! I'm sorry you've suffered that... I also question progesterone alone helping you, esp at 9 or 12 weeks... Sounds like you should consult with Dr Mstthias as well as Dr Sacks... Perhaps intralipids or IVIG are needed but Dr M will take all the right tests for you. Take care

  13. #688
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    Is anyone else on 60 clexane? Starting a week before transfer? What's the reason for 60?

  14. #689
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    Quote Originally Posted by PreciousHeart View Post
    Actually PIHU, we've mostly all used the ovidrel pen with IVF cycles - ovidrel is HCG and is used to trigger ovulation at high doses but the 5 or 6 clicks is just to boost your lining and I've only ever used that a few days after embryo transfer - what protocol has he given you for using the gonal f and ovidrel? also are you not using the neupogen anymore? did Dr M say for you to stop using it?
    Thanks everyone!!!

    Yes he has put me on small dosage of IVF injection from my day 2-12 next month. He had asked me to try it for 3-4 months & thn go for IVF if they won't work. Dr M has asked me take neupogen after positive result & I have 20 injections & might need 10 only.

  15. #690
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    Precious... I'm also on 60 Clexane, both the last cycle and this upcoming cycle. To be honest I can't really remember why - he did say though to cut the aspirin out, as it doesn't do anything except cause bruises! Happy with that.

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    PreciousHeart  (16-10-2014)


 

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