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  1. #1
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    Default Fibroid specialist recommendation Melbourne

    Hello lovelies,
    No kids and not currently ttc, BUT DH and I are planning to in the future. I'm 29 and have a single tennis ball sized fibroid (within muscle wall, encroaching on uterine lining, all the symptoms ever) and suspected endometriosis. So far I have only seen Dr's in the public system who have been very hit and miss; I have been told I will need a lap to check the fibroid properly and check for endometriosis; followed by an open abdo surgery to do a myomectomy (same recovery period as after c section) and planned c sections for any children we have. I'm not about to sign up for multiple surgeries without a second opinion so I'm looking for a gynie / surgeon around Melbourne who specializes in fibroids and, preferably, is sympathetic to VBAC. Does anyone have any good experiences ti relate and names to share? I understand all fibroids are different and I may not be able to avoid c sections due to risk but I really, really want to try for a vaginal delivery after myomectomy. I would really love some recommendations or even happy fibroid success stories

  2. #2
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    Did you ever get any replies Jacqueline85?
    I haven't posted before but I can tell you about my experience - I have known for years that I have fibroids but only now at 40 decided I would try to have a kiddo. My GP sent me off to a fertility specialist (because of my age and being single) but also sent me off for an ultrasound. That came back with the result "more than there used to be and bigger" so my Dr got me an appointment with Dr Samuel Soo. He has access to some technology which, with enough time, can shrink fibroids - I think it might be some kind of MRI or ultrasound treatment. I think it can take between 6 and 12 months. In my case I didn't have that kind of time so I had to have a myomectomy and will also now have to deliver by caesar.

    Given you're a lot younger than me, and while you know about it early, maybe you should get your GP to send you to him and see whether this is appropriate for you? He is in Melbourne.

    Let me warn you now - he's expensive, but good. But then, nothing in this process is cheap (sigh). Consolation - he's nice, smart, and his staff are lovely. Hope this helps. Good luck

  3. #3
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    Hello Jacqueline,

    How is it going??? I am 30 and struggling with Intramural fibroid of 3cm. I got the scan done in the last two years and the fib seems to be growing. I happened to visit Dr.Catarina Ang and Dr.Dennis Price.

    Dr.Dennis Price was too cool and mentioned about stopping the pills I was given for heaving bleeding. Thanks to him. It helped me get back my menstrual flow back and I don't bleed through out the years now.

    The former was good too. She was able to speculate the cause of my symptoms but was more keen on surgery which I and my partner are not happy about.

    I suggest you can try getting one of their opinion. Dr.Dennis Price I suggest

    Hope this helps. Keep us posted.

    Luv
    Pepper

  4. #4
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    Thanks for the replies guys
    I actually looked at Samuel Soo, can't remember why I didn't go with him - but they're all expensive (as I've found out - what on earth do I pay insurance for again? The out-of-pockets are CRAZY) so it wouldn't have been that. Did you manage to conceive, Afseg? I know the MRI treatment you described is not recommended for women ttc so good to go with the myo. How was the recovery?

    Since my original post I've found a private gynae - Dr Emma Readman. She's not the most personable specialist I've met, but she is head of endosurgery at the Austin and has a number of papers on fibroids and endo treatment so I'm trusting to her qualifications. She sent me for an MRI which showed that the position of it is probably causing degradation to a disc in my spine (I showed my osteo to get his opinion), so although I was leaning towards not getting surgery I've decided to go for it. It is also *just* under the limit for keyhole surgery, so provided they don't get in there and change their minds I'm only looking at a weeks recovery

    I'm planning on seeing "vaginal Lionel" as my ob for future pregnancies (if I can afford him!) - he's a high risk specialist well known around Melbourne for being supportive of VBAC. It all really depends on how the surgery goes, if they need to cut all the way through, etc.

    I've also swapped birth control to an implanon, luckily I don;t get periods at all on it so all dramas with excessive bleeding, anaemia and getting sick have faded away.

    So that's my update - surgery in a months time

  5. #5
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    Glad to hear you've got a plan and are carrying it through, Jacqueline. I'm with you on the out of pockets and encounters with un-personable medicos! It's a crazy world, the medical world.
    I had a laparoscopy and actually found recovery more difficult than I imagined. Very sore and tired for weeks. The killer was 3 months off 'strenuous exercise' ... My lazy body did not need the layoff and the comfort eating that went with that!!
    Subsequently i have done 2 rounds of IVF and no joy, sadly. It's an emotional roller coaster, and though the flesh is willing, the spirit is protesting against going through it a third time. Trying to rev myself up.
    best of luck on your journey. Take care.
    x

  6. #6
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    3 months?! I've stepped up my exercise routine to try and get a bit fitter pre-op and I'm now either running / weight training every day and I'm LOVING the endorphins, I don't want to give them up Ah well. Maybe I'll learn to love walking? I can see I'll need to ask my surgeon a few more questions about this stuff before hand.

    How did you go sleeping? Were you limited to sleeping on your back after? I normally am a side sleeper and I was thinking of getting a 'V' pillow if I'm going to be restricted.

    Good luck with your next IVF round!

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    Default update

    So its been a while but I thought i should update: I went with Emma Readman, she was great. Surgery went smoothly, no endo, ended up being keyhole and recovery was super easy, I spent an extra night in hospital but was back at work and exercising again in a week. I haven't noticed improvement to my period because I'm still on bc which solved my issues anyway, but the surgery seems to have helped with my digestive issues - I guess because there's just more space for everything to work properly? Been told there's no avoiding a section in future pregnancies especially because of the type of cut (vertical?) Used on my uterus - but we'll see.

    Good luck to anyone considering surgery - the recovery was easier than I expected, even though it wasn't minor internally, you never know how it will go.

  8. #8
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    Default Dr Emma Readman laparoscopy costs?

    Hi there! Sorry i know this is a late reply to when this thread was last active but im looking for information about Dr Emma Readmans costs for laparoscopy.

    Iv been suffering terrible periods since the beginning of menstruation - 11 years ago - and have finally (after many visits to unhelpful gynaes) found Dr Readman who has been super helpful in just my first visit to her and suggested a laparoscopy to see what's happening inside me. Iv had countless ultrasounds that always come back with the same results - heaps of cysts on both ovaries but no endo on the scans. So iv really been wanting a laparoscopy for a while to know for sure why i get so ill with periods. Dr Readman diagnosed me with PCOS also, after years of not having a definite diagnosis of that.

    Im a little nervous about the laparoscopy now as i haven't ever had surgery. She said she'll book it in our next visit (3 months away) so i have time to think. She also said public hospital would be cheaper than private. I cant work currently due to my very bad health (i have fibromyalgia, cfd and hashimoto) and so being on only one income (hubby) makes things very tight at the best of times. I used the last hundred or so dollars of my savings from when i could work for my appt with her. Now im worried we wont be able to afford the surgery even if it's in the public hospital. We can only afford extras in our private health cover, not hospital.

    Can anyone tell me what the cost might be for Dr Readman to perform this surgery in a public hospital, and any additional costs we might need to expect? I know she works out of Mercy Hospital in Heidleberg so she said that's where it will be done.

    Dont want children, just need help with my health problems. ☺

    Thank you! Xxx

  9. #9
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    Default Dr Readman

    Hi Hannah,
    The best person to ask is Dr Readman herself (or more specifically, her desk staff that manage all that side of things. They're pretty fabulous). I did have health insurance but still paid at least $1500 plus another unexpected $800 (due to the surgery being more complicated than expected) which I mostly got back from medicare. I'm not sure how much it will cost to be private in a public hospital for a lap but for other simple procedures I've had done that included an anaesthesiologist and an over night stay I paid $3000 without insurance.

    Talk to her staff they probably have payment plans, & good luck. She really is a great surgeon she even took care to position the cuts she made around a tattoo I have lol.

  10. #10
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    Default Lap advice

    Re: fear of surgery - it's hard with an exploratory lap because you don't know what you're waking up to. Here's my advice for the surgery
    - write a list of all the questions you wantto ask before your next appointment and ask them
    - follow the prep instructions exactly
    - if you have time/health to get a little fitter - get a little fitter pre-op.
    - don't wear any nail or toe nail polish they'll only make you take it off
    - stay really warm pre-op - ask for as many blankets as you need so your veins don't disappear with the cold
    - if you have asthma ask about whether you should take your preventer / inhaler on the day, same for other meds obvs
    - the worst part for me was the referred shoulder point pain. My nurses were brilliant and knew exactly what is was and what works best for it (heat packs, replaced often) but my bro in law had his appendix out and no one told him about this side effect and he was rushed back to hospital in a panic from the pain
    - do NOT watch vids of a lap on YouTube. Don't do it.

    Good luck; relax, all you need to do is have a nice nap.


 

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