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  1. #1
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    Default 4 yo daughter,monthly recurrent serious chest infections for past 2 half yrs.

    Hi I am wanting to find if there is anyone who has a child that has a similar problem like my 4 yr old daughter. My daughter Sheri was born with silent reflux (is on no medication as doesn't for reflux as doesnt seem to help)developed asthma when she was about 18mths since then she is quite severe every 3-4 weeks and needs to stay in hospital. She has had pneumonia and is quite often in ICU/HDU when admitted. She does have steroids at home for when she starts to get ill and they don't seem to help any. She is on preventer seretide and has been on others and they are also showing no improvement. She has had many tests and she may have Bronchilitis Obliterans but cannot be certain specialist said and we have been told to just see what happens wether it goes away or gets worse. On CT it shows small airway disease and patchy on bottoms of lungs. I just feel that this is not good enough and the thought of waiting to see if it goes away or she gets more damage scares me. We are quite sure it is virus related as when her older brother is on holidays from school she goes well but when he is at school he brings home viruses. she is not allergy prone and can go days without any asthma. I worry that I am doing wrong by wanting more answers and help or am I really just meant to go along with this? We live in Tas and have been to Royal childrens in Melbourne (june)and I am taking her to see another paediatrician in Hobart (5 hrs drive away) in august and I feel that he is also going to say that Melbourne know what they are doing and you should just wait and see what happens. Sheri's illness has not got any better in the last 6 months and infact I and her local paed agree it has gotten worse. Her local paed has not given us anything knew or even an appointment I feel his hands are tied and he cannot offer anything. Am I being just a silly mum?

  2. #2
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    Me! I did! I had bronchitis every month as a 4 year old. In the end my mum took me to a naturopath and I was put on a restricted diet for a while from memory. I believe the main culprit was dairy.
    My mum went to alternative medicine because she wasn't getting answers from western medicine, I just kept getting the symptoms treated, but a month later I'd be sick with bronchitis again.

    The good news is, I have had no long term damage from my repeated bouts of bronchitis, and have actually never had any type of chest infection in my life since then. I do have dairy in my diet...but I know when I have had too much of it and get a sore throat, blocked sinuses and a bit of chest pain. I cut out all dairy for a week and then I'm good to go again. The main instigator for me is ice-cream and milk. Cheese seems to cause no issues, unless I have it in excess, but I can have some on a salad wrap every day, and parmesan cheese with dinner etc. with no problems. If I have an ice-cream I cut out all dairy for a few days afterwards.
    Your daughter's case sounds quite serious, and maybe it's not as simple as dietary changes for her, but it would be worth looking in to if you're not finding answers elsewhere. Unfortunately, there is no test for intolerances, it just involves an elimination diet to work out what is and isn't affecting her.
    Also sulphites can make people more susceptible to asthma triggers. I know removing sulphites from my oldest's diet meant we could take her off her asthma preventer as she no longer needed it.

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    Quote Originally Posted by Party of Three View Post
    Me! I did! I had bronchitis every month as a 4 year old. In the end my mum took me to a naturopath and I was put on a restricted diet for a while from memory. I believe the main culprit was dairy.
    My mum went to alternative medicine because she wasn't getting answers from western medicine, I just kept getting the symptoms treated, but a month later I'd be sick with bronchitis again.

    The good news is, I have had no long term damage from my repeated bouts of bronchitis, and have actually never had any type of chest infection in my life since then. I do have dairy in my diet...but I know when I have had too much of it and get a sore throat, blocked sinuses and a bit of chest pain. I cut out all dairy for a week and then I'm good to go again. The main instigator for me is ice-cream and milk. Cheese seems to cause no issues, unless I have it in excess, but I can have some on a salad wrap every day, and parmesan cheese with dinner etc. with no problems. If I have an ice-cream I cut out all dairy for a few days afterwards.
    Your daughter's case sounds quite serious, and maybe it's not as simple as dietary changes for her, but it would be worth looking in to if you're not finding answers elsewhere. Unfortunately, there is no test for intolerances, it just involves an elimination diet to work out what is and isn't affecting her.
    Also sulphites can make people more susceptible to asthma triggers. I know removing sulphites from my oldest's diet meant we could take her off her asthma preventer as she no longer needed it.
    I have done the dairy free with her quite a while ago with no luck. I might try again although it doesn't seem to make sense for that to be a trigger as she is fine in between attacks and I am not sure but would think dairy would give some sort of reaction in between. I understand that when she would have virus it would be worse if dairy intolerance but surely there would be small reaction other times and there isn't. I am going to organise to go see naturapath I have done other things like got Himalayan salt lamp and salt inhaler, raised her bed give her plenty vitamins, fish oil, ivy leaf and probiotics daily. We are also going to try the buteyko breathing method. willing to try anything.

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    Oh mummycrocker, I'm feeling your pain. My 4yr old DS is exactly the same. I'm just starting on the path to find out what is going on in his little body to cause him to get sick so often and so badly.

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    I had no symptoms from my dairy intolerance as a kid, except chronic bronchitis. In between I was a happy and healthy 4 year old. However, it may not be that if you've tried it before. I would try a naturopath, ask around and get the name of a reputable one.
    Good luck xx

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    mummycrocker  (20-07-2014)

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    My dd is 4 soon.
    She is an asthmatic, we just got over pneumonia and she now has bronchitis.
    Right now dd is on
    Flixotide Jr
    Singulair
    Redipred
    And ventolin every 4 hours.
    And we just started on durotuss for all the congestion yesterday with tremendous effects.

    It's only just taking the edge off in regards to the asthma.

    The thing with asthma medication is it takes time to build up in the system to reach full effect, which makes the whole trial and error thing a lengthy, confusing process so I feel your pain

    Dd has had some trouble actually taking the preventative puffer and ventolin correctly (even with a spacer and mask) she will pull her head away and take short breaths, like she will fill her mouth with the product then blow it out (if that makes sense?)
    We asked our dr about a nebulizer, we were told it was an option but the drugs in a nebulizer were stronger and they used it now days in more sever cases.
    It was something that popped into my mind when reading you post, perhaps the drugs you are using to treat are the right ones, but not strong enough?

    We also just invested in an oxygen machine, the moment the ambos come out that's the first thing they put her on and she improves.
    We are waiting for it to arrive but we will be putting her on oxygen in the morning, right before bed and when she needs it.
    It can't do any harm, it's more to have a back up at home as we live rural and ambos do take a while to get here.

    I have asthma too, as a child it was chronic bronchitis, I never improved until I went on a turbuhailer
    http://www.asthmaaustralia.org.au/Turbuhalers.aspx
    Pretty sure children under 6 can't go on it, but they have been offered to dd as the pros out weigh the cons, it's also our next step if dd doesn't start actually breathing in the preventative and ventolin properly.

    I don't think you will be wasting your time getting a second opinion.
    If he tells you nothing more than what you already know, well you are where you are now, but he might offer something excellent and it could be worth the trip.
    I would take the trip to see him, no harm can come by getting a second opinion.

    As for allergies, dd is anaphylaxis with egg, she also gets eczema, we have seen naturopaths and done restricted diets, it did help her eczema but not the asthma, nothing helps the asthma except warmer weather.

    We are also having the flu shot done next flu season for dd.
    She caught the flu before the phenomena and bronchitis and it's what set everything off.
    Not risking it next year.

    I've also found with dd we need to suggest things to her dr after reading about things or hearing others experience, the dr will then usually get more suggestive himself about types of medication.
    It's a pain in the A** but I now read up about different drugs before we go to see him and ask a a thousand questions.

    Good luck, I hope you find that right combination soon


    Edited for all my spelling errors.
    Last edited by Liddybugs; 20-07-2014 at 10:00.

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    Wow thanks, Liddybugs, they told me here and in Melbourne that there is nothing stronger that Sheri can take they said she has tried them all. She was on singulair over a year ago but after a few months we realised that this was why she was having nightmares and was self harming and very aggressive. She has had flixotide, singulair and Alvesco and like I said Pred doesn't help at all and like you said oxygen does as she is often low. Even at home she is normal at 95/96 and about half hour ago was 89 as she had been outside for a few minutes and I think cold air got to her even though I gave her ventloin before she went out. Took about 30 sprays in about 30 minutes to help her and now she at 93. We have asked and begged for oxygen at home and the Dr's say no bring her in and I try to explain that if she knows she is going to hospital she immediately gets worse. Where did you get oxygen from?? Oh and as far as the spacer I know what you mean with them wiggling around why giving it and I brought a nebuliser and dr's wont give me nebules as they say spacer is much better as they get more in and nebuliser lets too much out. I have been told this by Melbourne dr and also one in Brisbane... I have seen a few specialists and the one in Hobart we have seen before but over a year ago and I want his input now. I feel that when she is bad she is aspirating but this is extremely hard to prove or find....

  11. #8
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    Dd6 used to be constantly sick at that age. Ear, throat and chest infections one after another. It would start with a cold, degenerate into an infection and she'd be sick for 2-3 weeks. Then she'd recover, be OK for a couple of weeks before she caught the next thing and went downhill again.
    It turns out she had chronic congestion/inflammation from a wheat intolerance. So every time she got a bug her body couldn't handle it. We took her off wheat and she has never had a recurrence, not one single infection, no antibiotics, no fever, nothing. A bug now is just a bug, she coughs and sneezes then gets over it.
    So I second the dietary approach, if the doctors haven't been able to find a cause then you have nothing to lose by trying it. A short elimination diet of one week to a month won't hurt your daughter nutritionally and you might be amazed at the change in her. I know I was. There is a lot of info out there so I'll send you a link to a reputable one.

    Also re the asthma, certain additives are suspected to trigger asthma, I'll see if I can find some info and link that too.

    It's horrible feeling so helpless but there are lots of things you can do if you become your own detective. I hope you find some answers soon

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    Here's some reputable information on asthma
    http://fedup.com.au/factsheets/sympt...sthma-and-food

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