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  1. #1
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    Default Multi Cystic Dysplastic Kidney (MCDK) and Ibuprofen?

    Hi, I am wondering if mums who have a child with Multi Cystic Dysplastic Kidney have ever been told that their child cannot have Ibuprofen? I have a 1yr old boy with MCDK and have never been told this but whilst talking to another mum she mentioned she was told mcdk bubs should not have Ibuprofen. Should I be concerned? And I intend to ask my sons specialist at his next appointment, am just curious as to what other mums have been told.

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  2. #2
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    I am not entirely sure about MCDK specifically but I can tell you ibuprofen is generally not recommended for patients with kidney problems. Ibuprofen is processed in the kidney thus making it not suitable for renal patients. Definitely speak to your specialist next appointment. HTH.

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    peanutskittles  (14-07-2014)

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    I have an auto immune kidney disease (I got it as an adult) and my renal specialist has always told me to never touch nurofen, stick to paracetamol and codeine if needed (it's quite a painful condition)

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    peanutskittles  (14-07-2014)

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    Thank you that helps alot i will deffinately be speaking with the specialist, i have been giving my son nurofen since he started teething and had never been told otherwise. He only has one functioning kidney and im furious that this wasnt mentioned to me by the specialist beforehand. Thanks again

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    DS has one dsyplastic kidney that has no function and one healthy kidney, and the paed has always advised against using ibuprofen unless absolutely necessary (only to alternate with panadol if needed to keep down a high temp).

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    peanutskittles  (14-07-2014)

  9. #6
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    My son is exactly the same left is non functioning and right is perfectly but what i am not understanding is why i have been left with no information about these sorts of things. Am starting to think i need to get another specialist!

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    I have Polycystic Kidney disease and I have never been allowed to have ibuprofen - I'm cross on your behalf that your specialist has never mentioned it!

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    peanutskittles  (14-07-2014)

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    DS appt is on Friday 18th so I will post what the outcome is. Is there anything else I should be aware of that I should probably ask while im there? Like other medications or foods he shouldnt eat? I am already aware of contact sports and motorbikes when he is older. Thanks for all your help 😊

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    Well it's recommended to have yearly blood pressure and urine protein tests to check kidney function - are those being done? Aside from that, I just make sure that DS drinks plenty of water and does not have too high a salt intake, and also check with pharmacist with any prescribed medications whether they are safe with impaired kidney function.

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    Yeah he is being monitored every 12 months, with a consultation check up every 6 months, he also has a surgeon/team on standby if he has any unusual fevers or infections to have his non- functioning kidney removed if need be, so in that respect they have been on top of that side of things but I was really surprised that there is alot of info that they had left out. I had no idea that things like nurofen/ ibuprofen could effect him in a negative way. I have an almost 3 yr old DD whom is perfectly healthy so the thought never crossed my mind. Thats why im so angry at the lack of information that was offered to me on the subject.

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