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  1. #11
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    I got a devastating phone call today from my OB. When I saw his number on the screen it surprised me because my results are not due until next Tuesday for the CF. my FISH results were back! Something I hadn't even really worried or thought about as the CF results seemed my biggest hurldle.
    i was told that my baby has Trisomy 13 or Patau syndrome. One of the trisomies that usually are not compatible with life. I was told that I'm lucky my baby has survived this far but tht all indications from my blood work and ultrasound is that the baby will not make it for much longer. Slow fetal heart rate, small placenta, small and low fetal growth rate with excess amniotic fluid were all indications evidentially.
    Im in shock! I never even thought about a chromosome problem. I've never had one before. At best I am being told if the baby makes it to 38 weeks I will need a c-section as the stress of delivery will kill him/her. If the baby survives it average life expectancy outside the womb will be 2.5 days.
    it will have severe congenital heart defects, a Brain the does not separate and form properly resulting in sever mental disability. Will be deaf, have spina bifida not not be able to ever walk, kidney function issues, have extreme facial deformities and limb deformities!
    I am having trouble digesting this news. I have been advised that termination would be in the best interest of us both. I'm so devastated I can't stop crying. How does anyone get past this and keep going. I can't think straight. I soooo wanted this little surprise baby but no matter my decision this little one seems destined to go to heaven no matter what.

  2. #12
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    Quote Originally Posted by Shankat19 View Post
    I got a devastating phone call today from my OB. When I saw his number on the screen it surprised me because my results are not due until next Tuesday for the CF. my FISH results were back! Something I hadn't even really worried or thought about as the CF results seemed my biggest hurldle.
    i was told that my baby has Trisomy 13 or Patau syndrome. One of the trisomies that usually are not compatible with life. I was told that I'm lucky my baby has survived this far but tht all indications from my blood work and ultrasound is that the baby will not make it for much longer. Slow fetal heart rate, small placenta, small and low fetal growth rate with excess amniotic fluid were all indications evidentially.
    Im in shock! I never even thought about a chromosome problem. I've never had one before. At best I am being told if the baby makes it to 38 weeks I will need a c-section as the stress of delivery will kill him/her. If the baby survives it average life expectancy outside the womb will be 2.5 days.
    it will have severe congenital heart defects, a Brain the does not separate and form properly resulting in sever mental disability. Will be deaf, have spina bifida not not be able to ever walk, kidney function issues, have extreme facial deformities and limb deformities!
    I am having trouble digesting this news. I have been advised that termination would be in the best interest of us both. I'm so devastated I can't stop crying. How does anyone get past this and keep going. I can't think straight. I soooo wanted this little surprise baby but no matter my decision this little one seems destined to go to heaven no matter what.
    I have to give some hugs , I'm so sorry.

  3. #13
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    I am so sorry. What an awful thing to happen. There are a few women on here who have had trisomy 13 pregnancies. Hopefully you will find some support with women who have been through it too.

    Quote Originally Posted by Shankat19 View Post
    I got a devastating phone call today from my OB. When I saw his number on the screen it surprised me because my results are not due until next Tuesday for the CF. my FISH results were back! Something I hadn't even really worried or thought about as the CF results seemed my biggest hurldle.
    i was told that my baby has Trisomy 13 or Patau syndrome. One of the trisomies that usually are not compatible with life. I was told that I'm lucky my baby has survived this far but tht all indications from my blood work and ultrasound is that the baby will not make it for much longer. Slow fetal heart rate, small placenta, small and low fetal growth rate with excess amniotic fluid were all indications evidentially.
    Im in shock! I never even thought about a chromosome problem. I've never had one before. At best I am being told if the baby makes it to 38 weeks I will need a c-section as the stress of delivery will kill him/her. If the baby survives it average life expectancy outside the womb will be 2.5 days.
    it will have severe congenital heart defects, a Brain the does not separate and form properly resulting in sever mental disability. Will be deaf, have spina bifida not not be able to ever walk, kidney function issues, have extreme facial deformities and limb deformities!
    I am having trouble digesting this news. I have been advised that termination would be in the best interest of us both. I'm so devastated I can't stop crying. How does anyone get past this and keep going. I can't think straight. I soooo wanted this little surprise baby but no matter my decision this little one seems destined to go to heaven no matter what.

  4. #14
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    thinking of you xx

  5. #15
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    Lots of love being sent your way. There is a very good trisomy support page on facebook with some beautiful information and beautiful supportive people. I know because I have a translocation that makes us prone to trisomy 13.


 

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