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  1. #781
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    Quote Originally Posted by MGC Bertie View Post
    Unfortunately.... HPT says BFN. Today is 10dp6dt. AF is due today, just tiniest colour so far. Phoned and made a new appointment with Dr M (shaking head, really wondering why).
    No no noooo!!! I'm so sad for you MGC, really thought it'd be your winning cycle. This sucks balls

    Sending huge hugs and hope Dr M has answers for you xoxo

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    MGC Bertie  (24-07-2014)

  3. #782
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    Just a quick reply. @Hopefullyanotherbaby: what u r describing is standard bondi protocol. I am not with dr sack but my FS at IVFA has been great. One extra that I have from FS is aspirin. DrM does intralipid. That's the different for me. DrM suggested the same meds to me. So makes me feel better that both opinions match. Well, i still think it is a bit of luck of all these. There is no guarantee that it will work on first goes. They are all starting with less strong med until it fails. Unless your NK cell off the roof to begin with. If you haven't noticed, the bondi protocol sheet says "experimental trial".
    Last edited by bbhope; 24-07-2014 at 11:38.

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    @bertie: oh gosh. I am so sorry!!!!! Hugs. Wait for BT.......

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  6. #784
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    Quote Originally Posted by bbhope View Post
    Just a quick reply. @Hopefullyanotherbaby: what u r describing is standard bondi protocol. I am not with dr sack but my FS at IVFA has been great. One extra that I have from FS is aspirin. DrM does intralipid. That's the different for me. DrM suggested the same meds to me. So makes me feel better that both opinions match. Well, i am still think it is a bit of luck of all these. There is no guarantee that it will works on first goes. They are all starting with less strong med until it fails. Unless your NK cell off the roof to begin with. If you haven't noticed, the bondi protocol sheet says "experimental trial".
    Thanks so much @bbhope I really appreciate your reply.. fantastic I will also ask if I can start taking asprine as well!!! My FS did say 20% is high NK cells.. do you think thats really high? I am still freaking out a bit to be honest!!

  7. #785
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    Quote Originally Posted by Hopefullyanotherbaby View Post
    I have been reading along the last few days and thankyou all for those who share their stories.. I am feeling a lot more informed from this thread regarding my high NK cells.

    I have decided that we are going to try 1 or 2 cycles with IVFA using the normal IVF drugs, plus the Immune protocol and see what happens.. I was ready a study (I think Gavin Sacks did) who said 80% of ladies under 38 would fall within 3 cycles so I am going to wish like hell I am in that bracket!!!

    if not then I will definitely go and see Dr M... to be honest we just cant afford it right now with $1000-$2000 infusions here and there etc thats a lot of money and we will need to build up to it I think...

    I am taking a stack of viatmins - CQ10, Vit D, Vit E, Vit C, Zinc, Fish Oil, and melatonin

    If you ladies where only going to go through the FS (and what they will prescribe) what would your advise of what drugs I should be on?? They said high dose progestrone, celxane and a steriod (he didnt say what it was called) But would you push for anything specific?????

    hopefullyanotherbaby, Sacks will prescribe clexene and prednisolone with the usual progesterone for transfer. Also you have to remember that there are a lot of Sack patients myself included you saw him for ivf and said yes to his Bondi protocol but were really following Dr M protocol. I feel very guilty for this as his research on the Bondi protocol (steroids plus clexene) prob includes me as a success stat. I always intending to tell him that I was on stronger drugs but I will wait till I actually have my baby here and can believe it.

    regarding Dr M costs
    First consult most expensive about $300 but you get medicare rebate
    other consults $150 and you get rebate
    for many women strong steroids (cheap), clexene (cheap) and intralipids ($650 every 4 weeks) will work. I ended up on very strong and expensive immune meds but I really pushed for it and it was not my starting point.
    One extra ivf cycle costs far more than a visit, testing and the above immune meds to Dr M. Dr Sacks will also push you towards ivf even if you can get pregnant naturally where as there are several Dr M ladies who were unsuccessful with ivf and then get pregnant naturally on immune meds.
    even if you end up being a more complicated and expensive immune case, doing ivf without immune treatment is just throwing money away.

    Hopefully the Bondi protocol will work for you but don't waste time and money on multiple cycles, you are better off getting a comprehensive immune treatment protocol. Good luck

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  9. #786
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    Quote Originally Posted by Chiefsgirl View Post
    Yep another one here with an apt with dr m. Mine is tmw. Follow up from our failed fet. I'm pretty much going to be begging for Chicago bt's. I don't want to do any more transfers till we have so e answers.

    I'm also going to ask about neupogen for egg quality and I've heard clexane can help with that too. Have appt with new FS tmw as well. Will be interesting to see what he says and if he has any suggestions.
    Hi Chiefsgirl,

    Sorry for your failed FET, sending big hugs to all the ladies in this thread, seems like we need some good luck and baby dust - too many BFNs

    Just wanted to clarify Clexane does not help with egg quality, it is just a blood thinner to ensure there is maximum blood flow to the uterus and to ensure no clots occurring during implantation (cutting off nutrients to the embryo/fetus). Once a pregnancy is established ongoing use of Clexane ensures no blood clots in the placenta and umbilical cord. Most girls being treated for immune related infertility will stay on Clexane until their third trimester, but if you have an ongoing blood clotting issue (like MTHFR homozygous or Protein C/S, Factor V Leiden etc.) you will need to continue throughout pregnancy and 4-6 weeks after delivery to ensure no DVT.

    Egg quality can be improved through DHEA and Neupogen.


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    MGC Bertie  (24-07-2014)

  11. #787
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    Quote Originally Posted by Nidhulaine View Post
    hopefullyanotherbaby, Sacks will prescribe clexene and prednisolone with the usual progesterone for transfer. Also you have to remember that there are a lot of Sack patients myself included you saw him for ivf and said yes to his Bondi protocol but were really following Dr M protocol. I feel very guilty for this as his research on the Bondi protocol (steroids plus clexene) prob includes me as a success stat. I always intending to tell him that I was on stronger drugs but I will wait till I actually have my baby here and can believe it.

    regarding Dr M costs
    First consult most expensive about $300 but you get medicare rebate
    other consults $150 and you get rebate
    for many women strong steroids (cheap), clexene (cheap) and intralipids ($650 every 4 weeks) will work. I ended up on very strong and expensive immune meds but I really pushed for it and it was not my starting point.
    One extra ivf cycle costs far more than a visit, testing and the above immune meds to Dr M. Dr Sacks will also push you towards ivf even if you can get pregnant naturally where as there are several Dr M ladies who were unsuccessful with ivf and then get pregnant naturally on immune meds.
    even if you end up being a more complicated and expensive immune case, doing ivf without immune treatment is just throwing money away.

    Hopefully the Bondi protocol will work for you but don't waste time and money on multiple cycles, you are better off getting a comprehensive immune treatment protocol. Good luck

    Thank you for your reply - I am not actually seeing Sacks I am seeing another FS at IVFA however I assume it will be the same protocol... Thanks for your advise I think I will give one more cycle a go and then will go and see Dr M if it doesnt work and see what he says. Although we fell pregnant with my daughter naturally we do need some assistance with IVF as I have irregular periods (PCOS) and a year of trying has put a strain if you like with hubby so IVF at this stage is our option.

  12. #788
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    Quote Originally Posted by Galea View Post
    Question.... should I expect to be in pain after my biopsy?
    I had biopsy and hysteroscopy and had zero pain afterwards. Just some bleeding. I stayed overnight an got a flight home the next morning. Hope all is well with you.

  13. #789
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    Quote Originally Posted by MGC Bertie View Post
    Unfortunately.... HPT says BFN. Today is 10dp6dt. AF is due today, just tiniest colour so far. Phoned and made a new appointment with Dr M (shaking head, really wondering why).
    Big big hugs Bertie. I hope somehow you still get a bfp at your blood test. I don't know why we can't get any implantation. Do you have endometriosis at all? Thinking of you.

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    MGC Bertie  (24-07-2014)

  15. #790
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    @MGC Bertie so sorry to hear that.

    Sent from my SM-G900I using The Bub Hub mobile app

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    MGC Bertie  (24-07-2014)


 

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