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  1. #751
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    Good luck with the consult today @Chiefsgirl. Hope it's constructive and gives you a good direction.

    Thanks so so much for all the info @Nidhulaine. You're an invaluable source of info. Your story has given me some hope that this isn't all pointless too. Made my day yesterday!

    So sorry to hear about your dog @soclose. Big hugs. It's just so frustrating how many wasted $$ go into this whole thing. Makes me even more mad when the Drs and nurses can be so rude and blasé.

    Anyone had really tender uterus/ovaries after failed FET? I had really painful cramps a few days ago and now feel quite tender. Nothing like AF cramps-hard to explain!

  2. #752
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    Quote Originally Posted by soclose View Post
    Thanks so much you have helped so many of us here and it's appreciated. So is the neupogen as hard to inject and prepare as Dr M said it would be. Injections don't bother me but I'm hopeless if I have to prepare it! I'm sure I will have more questions as I go along! Again thanks!!
    Regarding preparing Neupogen, I wouldn't say it's hard to prepare Soclose but I prob have an advantage as my background is chemistry and my DH is diabetic.

    heres how it works,
    you buy the diabetic insulin needles which are fine and so easy to inject compared to clexene.
    you get the 300mcg vials of Neupogen and as I said shop around
    there is aprox 1ml of liquid in a 300mcg vial.
    Dr M will tell you your dose in and around your weight in kg but it also depends on your issues.
    If you are 60kg he might say 60mcg and there is 300mcg in the 1ml of Neupogen ie 300/60 = 5 injections per vial.
    There is 1ml of liquid therefore 1ml/5 injections = 0.2ml or 20 units on the syringe.
    i always opened a vial and measured out all 5 injections together fir the next 5 days, purely because the chemist in me didn't like the idea of possibly contaminating or exposing remaining Neupogen to air.
    also do not shake the vials, Neupogen us biological and delicate.

    The good thing about Neupogen is I didn't experience any crappy side effects to it except maybe a reduction in appetite in the first few days but as I was on dex at the time I was quite happy about that.

    only disadvantage of Neupogen is the cost but throwing everything in Dex, IVIG and Neupogen worked for me so u can't really complain.

    hope my explanation about dosage was clear enough but if you decide to take it, feel free to PM me if you need some help.

  3. The Following 3 Users Say Thank You to Nidhulaine For This Useful Post:

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  4. #753
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    Hi ladies. Well I had a pretty **** day,

    I saw a new FS who told me from my results from dr m (I gave him copies of all dr m's tests) that he didn't believe I had immune/nk issues. I was prepared for that. But he then went on to say that as I have only ever had one or two embies worth transferring and none to freeze ever that it wouldn't be worth my while doing embryo banking to do pgd testing.

    He is doing some tests including his own bt for nk but essentially it's an egg quality issue and my diminished ovarian reserve.

    So then we rush off from there to dr m hi again @Nidhulaine it was great to see you again! And dr m says the immune drugs shd have done their job so he thinks it's all egg quality issues now. He did admit my lining was on the low side (7.6mm before last transfer) but won't commit to giving me neupogen.

    He had already sent me a script for more dhea so I'll be back on that when it arrives in the next few days, he agreed to me using a mitochondrial optimizer with bio pqq that had been recommended to me (don't ask me what it does it's very technical. But the gist is it's a coq10 type derivative that helps cell regeneration, I think!). He also wants us both (read me, I think he just felt sorry for me so said DH shd take it too) to take l'arginine and l'cartinine. Lucky for him, I had already been told DH shd be on those so had ordered it from the us with the mitochondria thingy and some more melatonin, and had self prescribed it for myself!

    In terms of more blood tests we are having the alpha DQ and beta tests done here. Apparently you can do them through the Red Cross. I asked him if we should do the full Chicago testing and he said no. I did stress that with the change in clinics our costs are going up so much more so I can't be testing, cycling and then doing more testing but he was pretty firm he didn't think we need it.

    I guess I'm just in a it's not fair frame of mind. I'm dreading the new amh results,t when it comes in, it was 1.5 a year and a half ago, I dread to think what it is now. How come I have to have ****ty genes that give me earlier menopause? How come I waited so long for Prince Charming and now we may not be able to have a family? Why the hell is it my fault? I overcame a pretty ****ty childhood and finally have a decent life and now I'm being kicked in the teeth yet again.

    Sorry for the downer post. DH is working nightshift and I'm all alone with my thoughts!

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  6. #754
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    Big hugs @ chiefsgirl gitl. What a crappy day.

    We have been told to have the alpha and beta bloods through the red cross too. Goodness knows we cant afford to send them to chicago for $2000/3000.

    Im off to sydney tonight for my biopsy. Im just so sick of this journey.

  7. The Following 2 Users Say Thank You to Galea For This Useful Post:

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  8. #755
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    Chiefsgirl.... I always have such high hopes for appointments, and the last couple of times, doesn't matter what it's been for it's all been negative. I so know how you feel - I was doing the "it's just not fair" thing again last night. It really isn't. Why do we (you, me and others in our same case) have to fork out extreme amounts of time, pain, anguish and money, to get the same thing that others just naturally do with a bit of fun in the bed?? It's just not fair. The amount of money we've spent is making my DH rather depressed and angry (he's an accountant!!) - justifiably so, as our out-of-pocket expenses is now more than what's left on our mortgage, plus the interest would have bought a new car. Just imagine what a financial position we would be in, it's just sad and depressing on every front.

    It is interesting what your new FS said about some of your transfers weren't worth it - looking at your signature you've 5 lots of transfers - did any of them produce a chemical or slight glimpse of hope? I do look at my transfer history, and in hindsight shouldn't have let them push me for those 2dt and even the 3dt, as most of my embies that went for 5dt didn't make it, so really that should have been the way to sieve out those that would make it. A lot of TWW anguishes for nothing.

    Yes the Red Cross bloods were about $340 (non claimable) - some of mine came back elevated. I said that to Dr M last time about doing any tests he can think off, as I'm annoyed that 3 years after starting this IVF journey various spcialists are still saying, oh, let's do this test. All tests should have been done at the start, not added hotch-potch along the way as each cycle failed. I've told my GP over the past couple of years (tactfully) that she sent me to the wrong clinic in the first place (as NGF had no donor sperm!!) and have told her of the important fertility tests that should have been done earlier - hopefully she'll be a little more educated the next time someone comes in her practice. Before me, she'd only ever had one IVF woman, and she got pregnant first go. Then along comes me.....

    Big hugs to all that need them (me included!!) Galea.... I'm sick of this journey too, and I just can't seem to catch a break that others get. I haven't really felt like this before, but at the moment I'm so sure that I'm going to be that percentage that it doesn't work for :-(( I'd so like to be proved wrong. At the moment I'm 9dp6dt and I seriously considered POAS this morning, but chickened out. AF is due tomorrow, so a part of me actually said, don't waste your money on the stick, just wait for AF!! Crazy, I know!! My preg BT is not until Monday, so I think I will POAS tomorrow and at least know.

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  10. #756
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    Quote Originally Posted by MGC Bertie View Post
    Chiefsgirl.... I always have such high hopes for appointments, and the last couple of times, doesn't matter what it's been for it's all been negative. I so know how you feel - I was doing the "it's just not fair" thing again last night. It really isn't. Why do we (you, me and others in our same case) have to fork out extreme amounts of time, pain, anguish and money, to get the same thing that others just naturally do with a bit of fun in the bed?? It's just not fair. The amount of money we've spent is making my DH rather depressed and angry (he's an accountant!!) - justifiably so, as our out-of-pocket expenses is now more than what's left on our mortgage, plus the interest would have bought a new car. Just imagine what a financial position we would be in, it's just sad and depressing on every front.

    It is interesting what your new FS said about some of your transfers weren't worth it - looking at your signature you've 5 lots of transfers - did any of them produce a chemical or slight glimpse of hope? I do look at my transfer history, and in hindsight shouldn't have let them push me for those 2dt and even the 3dt, as most of my embies that went for 5dt didn't make it, so really that should have been the way to sieve out those that would make it. A lot of TWW anguishes for nothing.

    Yes the Red Cross bloods were about $340 (non claimable) - some of mine came back elevated. I said that to Dr M last time about doing any tests he can think off, as I'm annoyed that 3 years after starting this IVF journey various spcialists are still saying, oh, let's do this test. All tests should have been done at the start, not added hotch-potch along the way as each cycle failed. I've told my GP over the past couple of years (tactfully) that she sent me to the wrong clinic in the first place (as NGF had no donor sperm!!) and have told her of the important fertility tests that should have been done earlier - hopefully she'll be a little more educated the next time someone comes in her practice. Before me, she'd only ever had one IVF woman, and she got pregnant first go. Then along comes me.....

    Big hugs to all that need them (me included!!) Galea.... I'm sick of this journey too, and I just can't seem to catch a break that others get. I haven't really felt like this before, but at the moment I'm so sure that I'm going to be that percentage that it doesn't work for :-(( I'd so like to be proved wrong. At the moment I'm 9dp6dt and I seriously considered POAS this morning, but chickened out. AF is due tomorrow, so a part of me actually said, don't waste your money on the stick, just wait for AF!! Crazy, I know!! My preg BT is not until Monday, so I think I will POAS tomorrow and at least know.
    I can completely relate to the part where you say that your sure your in the % it doesn't work for. Me too.
    I have had to have a break from IVF after giving it my all and going to Genea to a FS who promised us we have no issues and he could get us there in 2 to 3 cycles after doing two completely awful cycles with them we are broke, have no frosties and are going to go to yet another FS in another city for another opinion next year.
    It is so freaken hard for some of us and so completely unfair. A huge part of me just wants to give up on the idea altogether after 5 failed cycles and supposedly minor issues I am over it.
    It almost feels like these clinics and these Fertility Specialists just play one big mind fu*k with us. Promising the world but delivering absolutely nothing and after it is all said and done no one is held accountable and they certainly don't give a stuff until you pay them another $10,000 for another false promise.
    My last clinic has a 96% success rate within three transfers. After my last two transfers I just know I am in that 4% bracket but they don't seem to care about the 4% of people who don't have success, they are more interested in the 96% that do.
    Good luck for when you POAS I hope you get the most best surprise of all and get to see those magical two lines.xo

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  12. #757
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    Quote Originally Posted by Nidhulaine View Post
    Regarding preparing Neupogen, I wouldn't say it's hard to prepare Soclose but I prob have an advantage as my background is chemistry and my DH is diabetic.

    heres how it works,
    you buy the diabetic insulin needles which are fine and so easy to inject compared to clexene.
    you get the 300mcg vials of Neupogen and as I said shop around
    there is aprox 1ml of liquid in a 300mcg vial.
    Dr M will tell you your dose in and around your weight in kg but it also depends on your issues.
    If you are 60kg he might say 60mcg and there is 300mcg in the 1ml of Neupogen ie 300/60 = 5 injections per vial.
    There is 1ml of liquid therefore 1ml/5 injections = 0.2ml or 20 units on the syringe.
    i always opened a vial and measured out all 5 injections together fir the next 5 days, purely because the chemist in me didn't like the idea of possibly contaminating or exposing remaining Neupogen to air.
    also do not shake the vials, Neupogen us biological and delicate.

    The good thing about Neupogen is I didn't experience any crappy side effects to it except maybe a reduction in appetite in the first few days but as I was on dex at the time I was quite happy about that.

    only disadvantage of Neupogen is the cost but throwing everything in Dex, IVIG and Neupogen worked for me so u can't really complain.

    hope my explanation about dosage was clear enough but if you decide to take it, feel free to PM me if you need some help.
    Thanks so much. Yep clear as mud LOL. I do kind of understand. G mailed my script today so I will wait to receive that and in the meantime see how cheap I can find the neupogen. My private health covers a bit of my medications like pessaries etc so might get a bit back on the neupogen.

  13. #758
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    I am sorry to hear Galea, soclose and everyone with the down moment. It is just so hard. Nothing I say would make you feel better. So I'll just you all a hug. We all need it.

    Hubby has come to term that it is all false hope for us with his sperms. But I need a closure and move on. After all, I have been avoiding the transfer for nearly 8 months. I am just not mentally ready. I don't think I would ever be ready.......but i've to do it.

    You said it all, Bertie. My close friend doesn't understand why i am still grieving with the loss. "Miscarriage is quite common", she said that while holding a new born in her arm. I was quite upset but I know she didn't mean to say that to make me feel any worse. So yes, life is unfair..........

    I really hope that this is the one for you!!

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  15. #759
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    Chiefsgirl, Bertie and Sharlee I understand 100%. I used to feel guilty saying I've had enough and can't keep going but it's so damn hard. It takes over your life. Can't remember the last time we had any money to go on a holiday, to have a normal life again. I see all my friends going on hols with their kids and think why can't that be us. Why do we have to endure this for 9 years with not a hint of implantation. What more can we do? I feel we've exhausted all avenues now. My body just doesn't want to get pregnant. But I keep going and it never gets easier. The added financial stress doesn't help either. All that money for nothing!! At least we have each other. You guys are the only ones who truly understand. I'm so thankful for that. Bertie I'm so hoping you are wrong I would love a BFP for you. Keeping everything crossed xx

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  17. #760
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    I missed your post sorry Galea. Let us know how you go. We all sound very over it all at the moment. Understandably so!! Good luck xx

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    Galea  (23-07-2014)


 

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