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  1. #741
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    Quote Originally Posted by ladybug14 View Post
    Thanks ladies. Such a crappy journey. No one should have to suffer this horrid pain.

    Galea-good luck wth the biopsy. I hope it gives you some answers.

    MGC Bertie-I really hope the IVIG is the key for you. Will have fingers and toes crossed for BT.

    SoClose-Sounds like a constructive consult with Dr M. I think neupogen will be in our next plan so really keen to know more too. Maybe we can get get a 2for1 or bulk deal!!!! Did Dr M say how often the blood monitoring is and why dose you'll be on? When do you start? Pretty sure @Nidhulaine is a good source of info for the neupogen??
    Soclose and ladybug14, yes I used Neupogen for 2 cycles and got BFP on second cycle. With regard to the IVIG I believe it's cumulative and builds up in your system and even though I was on strong immune meds it still took two cycles in a row for me to get a BFP so please don't despair if you didn't get success on the first try. Neupogen is a component of IVIG there is no harm in throwing it into the mix and it will either work for you or won't.

    Neupogen works for about 75% of women. You do a total blood count before you start and then every two weeks. The monitoring is really important particularly if your doing IVIG as well and my dose went from 100mcg (1/3 of a vial) to 60mcg (1/5 of a vial) over the 12 weeks I was on it. Dose is based on weight, immune issues and your total blood count results. My starting dose was particularly high but I am 6ft and 80kg(before pregnancy and 8months of steroids lol!).

    Other stuff, you don't take Neupogen the day you do IVIG and it's very important to shop around because I know Sydney prices vary from $1300 to $1600 for 10 vials (aprox 50 shots for the average 60kg woman). Most pharmacies do not stock it and it takes about a week to get in so make sure you reorder in time if you get your BFP on it.

    You can't stop taking it till 10 weeks as there is a study where women had to stay on it till at least 9 weeks. You start it just before ovulation and it usually improves your lining even if you had no prob with it. It also appears to improves egg quality if you are taking it in a cycle prior to egg collection.

    Ladybug I am sorry for your bfn, it's so crappy. For me I had a failed FET with a PGD embie in feb and my husband convinced me it was like gambling and to give it one more shot on all the same immune meds in March and I am pregnant from an iui, so go figure why my perfect PGD didn't work and an iui with no embie did ? Personally I think the immune meds build up in your system. For me my last PGD embie, and failure on the strong immune meds along with my blood test on my 38 birthday was a really low point but then next month I was incredibly lucky to get a BFP on the same meds. Hopefully your BFP will happen very soon.

    Oh I ordered it once from India from medicine+house which was cheaper but he (Atul) is so incredibly unreliable and it ended up in storage so out if the fridge for two days so even though it costs more I would source it in Australia. I am still fighting with Atul.

    let me know if there's any other questions that I might be able to answer on Neupogen. I know about 4 ladies who have used it lately and it worked for 3, one got a chemical and is still cycling and one lady it didn't work for even after multiple cycles. Dr M is having some pretty good success with it.

  2. The Following User Says Thank You to Nidhulaine For This Useful Post:

    MGC Bertie  (21-07-2014)

  3. #742
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    I was the fifth woman! I can actually count

  4. #743
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    Sorry ladybug and galea. It's so exhausting and crushing.

    thank you everyone for your advice. I am in perth so wouldn't be able to get to Dr M for treatment with this natural bfp but I am speaking with dr braverman in the morning and will call Dr M after that if I need. Still waiting on HCG results.

  5. #744
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    Hi ladies, wow this thread has been moving quickly lately.

    Ladybug and Galea, I'm so sorry for your news. This journey can be soul destroying but don't give up.

    Bbhope, I took 25mg of pred first thing every morning and found itevery night I was wired and could not sleep. I would be lucky to drop off by 3am, it did my head in so much I actually tried a different method and started taking it right before I went to bed so it would give me time to get to sleep and I found it much better. Dex wasn't as bad, i didn't have a problem getting to sleep but would wake up religiously at around 3.30am an could't et back to sleep until about 6am. They're just horrid drugs and we won't talk about the weight gain with all the food you want to consume!

    Soclose, there seems to be a few of us with an appointment this week. I'm in the same boat as you and my biggest fear with my appointment on Thursday is he'll tell me i need ivig, which i can't really afford either as i'm trying to save for south Africa and a bfp would mean having it every 4 weeks, but on the other hand i know i need it if i have any chance of getting pregnant. I wonder if he'll suggest Neupogen for me....interesting.

    Nidhulaine, you're so full of information, what would we do without you...our little immune encyclopedia!
    I hope you and Kiwi76 are having easy pregnancies and everything is going to plan.

    MGC Bertie, good luck, not long to wait now.

    Snowy12, congratulations, i hope Dr M was able to help you today. Let's pray your embie sticks.

  6. The Following User Says Thank You to Miss Sagi For This Useful Post:

    MGC Bertie  (21-07-2014)

  7. #745
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    Yep another one here with an apt with dr m. Mine is tmw. Follow up from our failed fet. I'm pretty much going to be begging for Chicago bt's. I don't want to do any more transfers till we have so e answers.

    I'm also going to ask about neupogen for egg quality and I've heard clexane can help with that too. Have appt with new FS tmw as well. Will be interesting to see what he says and if he has any suggestions.

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    MGC Bertie  (22-07-2014)

  9. #746
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    Quote Originally Posted by MGC Bertie View Post
    Ladybug... very sorry about your BFN. I so know how you feel. I too have put such a lot of hope into Dr M - first three times on his protocol I did Intrallipids, but all BFN, so this time did IVIG as I really wanted to give it my best shot, just like you. My BT is not until next Mon, so still a bit to go.

    Galea... again, I'm close to that road. We have two more of my sister's frosties so will use those, if this one doesn't work, and then will try a couple of goes with younger eggs from SA. Have seriously thought about surrogacy, but then realised that I'm using both donor eggs and donor sperm, so may as well look into adoption instead.

    SoClose.... I'm rather relieved at how your appointment with Dr M went - I pretty muh asked for much of those things, and he said no, so maybe you've broken the ice for me next time :-) I'm also very interested about having the two lots of intrallipids (3 weeks before and just before transfer), as I've been reading a little bit in the past week about doctors in the USA saying that really the intrallipids and IVIG should be done 2 weeks before ET as it takes that amount to do what it needs to do in your body. Dr M has always said to me 3-10 days before ET, but I'm wondering whether the 2 week thing is newish research and he's catching onto that.
    Yeah I haven't heard of Dr M doing two lots of intralipids before transfer but I may be wrong. Anyone else had two? I pushed him too because this is our last embryo and he knows that. Good luck thinking of you.

  10. The Following User Says Thank You to soclose For This Useful Post:

    MGC Bertie  (22-07-2014)

  11. #747
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    Quote Originally Posted by Nidhulaine View Post
    Soclose and ladybug14, yes I used Neupogen for 2 cycles and got BFP on second cycle. With regard to the IVIG I believe it's cumulative and builds up in your system and even though I was on strong immune meds it still took two cycles in a row for me to get a BFP so please don't despair if you didn't get success on the first try. Neupogen is a component of IVIG there is no harm in throwing it into the mix and it will either work for you or won't.

    Neupogen works for about 75% of women. You do a total blood count before you start and then every two weeks. The monitoring is really important particularly if your doing IVIG as well and my dose went from 100mcg (1/3 of a vial) to 60mcg (1/5 of a vial) over the 12 weeks I was on it. Dose is based on weight, immune issues and your total blood count results. My starting dose was particularly high but I am 6ft and 80kg(before pregnancy and 8months of steroids lol!).

    Other stuff, you don't take Neupogen the day you do IVIG and it's very important to shop around because I know Sydney prices vary from $1300 to $1600 for 10 vials (aprox 50 shots for the average 60kg woman). Most pharmacies do not stock it and it takes about a week to get in so make sure you reorder in time if you get your BFP on it.

    You can't stop taking it till 10 weeks as there is a study where women had to stay on it till at least 9 weeks. You start it just before ovulation and it usually improves your lining even if you had no prob with it. It also appears to improves egg quality if you are taking it in a cycle prior to egg collection.

    Ladybug I am sorry for your bfn, it's so crappy. For me I had a failed FET with a PGD embie in feb and my husband convinced me it was like gambling and to give it one more shot on all the same immune meds in March and I am pregnant from an iui, so go figure why my perfect PGD didn't work and an iui with no embie did ? Personally I think the immune meds build up in your system. For me my last PGD embie, and failure on the strong immune meds along with my blood test on my 38 birthday was a really low point but then next month I was incredibly lucky to get a BFP on the same meds. Hopefully your BFP will happen very soon.

    Oh I ordered it once from India from medicine+house which was cheaper but he (Atul) is so incredibly unreliable and it ended up in storage so out if the fridge for two days so even though it costs more I would source it in Australia. I am still fighting with Atul.

    let me know if there's any other questions that I might be able to answer on Neupogen. I know about 4 ladies who have used it lately and it worked for 3, one got a chemical and is still cycling and one lady it didn't work for even after multiple cycles. Dr M is having some pretty good success with it.
    Thanks so much you have helped so many of us here and it's appreciated. So is the neupogen as hard to inject and prepare as Dr M said it would be. Injections don't bother me but I'm hopeless if I have to prepare it! I'm sure I will have more questions as I go along! Again thanks!!

  12. #748
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    Quote Originally Posted by Miss Sagi View Post
    Hi ladies, wow this thread has been moving quickly lately.

    Ladybug and Galea, I'm so sorry for your news. This journey can be soul destroying but don't give up.

    Bbhope, I took 25mg of pred first thing every morning and found itevery night I was wired and could not sleep. I would be lucky to drop off by 3am, it did my head in so much I actually tried a different method and started taking it right before I went to bed so it would give me time to get to sleep and I found it much better. Dex wasn't as bad, i didn't have a problem getting to sleep but would wake up religiously at around 3.30am an could't et back to sleep until about 6am. They're just horrid drugs and we won't talk about the weight gain with all the food you want to consume!

    Soclose, there seems to be a few of us with an appointment this week. I'm in the same boat as you and my biggest fear with my appointment on Thursday is he'll tell me i need ivig, which i can't really afford either as i'm trying to save for south Africa and a bfp would mean having it every 4 weeks, but on the other hand i know i need it if i have any chance of getting pregnant. I wonder if he'll suggest Neupogen for me....interesting.

    Nidhulaine, you're so full of information, what would we do without you...our little immune encyclopedia!
    I hope you and Kiwi76 are having easy pregnancies and everything is going to plan.

    MGC Bertie, good luck, not long to wait now.

    Snowy12, congratulations, i hope Dr M was able to help you today. Let's pray your embie sticks.
    I know exactly what you mean. Doing ivf and immune protocols plus donor is mighty expensive. How are we meant to keep forking out thousands and thousands. We sold everything to keep going, house and all so we've exhausted all avenues. Plus today I found out my dog is very sick with a bad heart so $1000 for todays appointment plus ongoing meds for him ugh!!! It's never ending. I need a big fat money tree out the back!!!

  13. #749
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    Quote Originally Posted by Chiefsgirl View Post
    Yep another one here with an apt with dr m. Mine is tmw. Follow up from our failed fet. I'm pretty much going to be begging for Chicago bt's. I don't want to do any more transfers till we have so e answers.

    I'm also going to ask about neupogen for egg quality and I've heard clexane can help with that too. Have appt with new FS tmw as well. Will be interesting to see what he says and if he has any suggestions.
    Good luck with your appointment. Let us know what Dr M says. I'm always interested in what protocols he puts us all on.

  14. #750
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    Quote Originally Posted by ladybug14 View Post
    Another BFN for me today. Hcg of 3. Had hopes that IVIG was going to do the trick. Follow up with Dr M for our last try on Thurs.
    Big hugs. It's so hard isn't it . I hope Dr M comes up with answers for you. I really thought maybe ivig would get you there.


 

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