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  1. #341
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    Quote Originally Posted by PreciousHeart View Post
    Hi Bella, yes someone told me that Dr Benny does them and I called them a few months ago - they said he does them on a Friday, takes 3-4 hours and costs $350… only thing in I have to get a referral from my Genea FS for him to do them and my FS refused twice saying that I don't need them and that there is no proof of it working la la la… So I will stick with Dr M, I was just trying to lower costs a bit… haven't told my FS I've already had 2 intralipids already! I just can't seem to stand up to him, and he says that google is the worst thing that ever happened to medicine - all I know is I wouldn't know half of what I know and have met all you lovely ladies without google

    Frances, I'm so sorry about your result, very hard, keep trying, stay strong

    Re the subchorionic haematoma, I had one with my second pregnancy I think and I clearly recall my FS saying that he wasn't worried - he said there was some bleeding around the sac at 6 weeks - and that he saw that in 30% of pregnancies… unfortunately I lost that pregnancy at 7/8 weeks… that was my second miscarriage (no immune treatment I wasn't looking into that then)… then I had two embies transferred and lost one and bled with my son up til 15/16 weeks and the OB didn't know why and was quite concerned… I had heaps of scans up til then… and the bleeding stopped and I had my beautiful son. Again I wasn't on immune treatment and I think the second embie was sacrificed and that my son was just a real stayer.

    I hope that helps, I would get the intralipids if I was you… although the flying is a tough call, but if Dr M says it's ok, is it ok??? Why can't you get them in Perth, have you tried everything to find them, do they still not do them there??? What about Dr Nick L in Melbourne, will be a shorter flight for you??

    Big hugs to everyone, stay strong!!!!!!
    Hi Precious Heart

    I saw your comment about Dr. Nick L in Melbourne. Is it an IVF specialist? I am looking for a good doctor in Melbourne to help me with ANA+. What is Dr. Nick's last name and contact details?

    Your reply would be appreciated!
    Thank you

  2. #342
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    bbhope,

    I did do biopsy and my nk cells were normal. I only have ANA positive. I am getting very concern considering I am on the same meds again the 4th round so I am thinking of going up to Sydney to see Dr. M.

  3. #343
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    Quote Originally Posted by Babychino View Post
    Hi Nidhulaine,

    Thank you for your message. I am on 2mg Prednisone once a day. ANA level is 1: 640 like yourself but NK level is normal. I have started a new cycle this week and will be transferring 1 of day 5 embryo in next week. I have been putting 2 in the last 2 thaw cycles so doctor recommending putting 1 in this time for a change. He does not want to change my medications though so I am a little concern. I think if this cycle fails, I will change doctor. I am in Melbourne, do you or anyone knows a good doctor in Melbourne?

    I would love to see Dr.M as everyone seems to be talking highly of him but I am in Melbourne
    Is 2mg a typo? We have the same ANA titre and Dr M has me on 25mg of prednisolone a day so I am thinking you mean 20? I will all going well start weaning at 16 weeks, I am now almost 14 weeks.

    As bbphope said it's the steroids for the ANA's and intralipids/IVIG for the kiler cells.

    The biopsy for the killer cells test must only be done after day 25 after ovulation at normal implantation time as this is when they are highest. I was told I didn't have killer cells as the FS did it on day 7 and then one year later Dr Sacks who was a colleague of my original FS did it on day 25 and my results were through the roof. Very few FS are experience at doing these biopsies.

    dr M does phone consults or Dr Nick seems to be the guy in Melbourne. Dr M trained under Dr Beer so he is definetely the first pick. Have u read dr Beers book? Good luck

  4. #344
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    Chiefsgirl.... Dr M has always said that the Intrallipids stay in your system for about 4 weeks or more, so you should be right. I thought he says it does start to diminish, so he's always said he likes it normally done between 3-14 days before the transfer. Is there some reason that you're having it done earlier?

    Also, I re-read your info about claiming back non-claimable medical expenses, but got confused about what you mean about claiming back amounts the following year, and claiming back other amounts the following year after that. Sorry, can you explain that again? Thanks.

  5. #345
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    Quote Originally Posted by MGC Bertie View Post
    Chiefsgirl.... Dr M has always said that the Intrallipids stay in your system for about 4 weeks or more, so you should be right. I thought he says it does start to diminish, so he's always said he likes it normally done between 3-14 days before the transfer. Is there some reason that you're having it done earlier?
    Good to know that intralipids stay in your system that long. Dr M said that I should do it 1 or 2 week before the transfer. Because FS wants to do a natural cycle, meaning I might O late and am worried it won't be in my system anymore. If I don't O, no transfer and will do a medicated cycle.

    Does anyone on vit D, CoQ10, fish oil, elevit (mainly for folic acid) or royal jelly? Do you stop any of them when you start the med?

  6. #346
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    Quote Originally Posted by MGC Bertie View Post
    Chiefsgirl.... Dr M has always said that the Intrallipids stay in your system for about 4 weeks or more, so you should be right. I thought he says it does start to diminish, so he's always said he likes it normally done between 3-14 days before the transfer. Is there some reason that you're having it done earlier?

    Also, I re-read your info about claiming back non-claimable medical expenses, but got confused about what you mean about claiming back amounts the following year, and claiming back other amounts the following year after that. Sorry, can you explain that again? Thanks.
    I can't get in next week which wd be ideal as they are booked out. It's either this Thursday or the 15th which would be too late as it will be too close/after transfer. I'm on a natural fet and AF is late!

    If you claimed out of pocket medical expenses last year you can claim them in this financial year (2013-2014), of you didn't claim last yr then you can't now. If you claim this year you can claim next financial year (2014-2015) and that will be the last year you can claim. You get about .20c in the dollar over about 1800 oop medical expenses, but it is means tested on your annual income.

  7. #347
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    Bbhope, I'm doing a natural fet, which is why I wanted to have the infusion next week, to cover the bases in case of a late o and my AF which is late. But they can't fit me in, so I would work out your rough dates and book in ASAP. Unfortunately that wd mean having it done before you O, but otherwise you might miss out.

  8. #348
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    Quote Originally Posted by bbhope View Post
    Babychino, ivig and intralipid help NK Cell. Steroid helps ANA from my understanding. Did u do NK cell blood or biopsy?
    Morning ladies! Just wanted to say that steroids are definitely also for NK cells as they suppress the immune system. I have high uterine NK cells rather than blood and I am on 2mg of dexamethasone after BFP - 1.5mg before BFP from day one of stims with IVF.

    Also Dr Nick in Melbourne is Dr Nicholas Lolatgis at Monash IVF

    Have a lovely day!!!

  9. The Following User Says Thank You to PreciousHeart For This Useful Post:

    MGC Bertie  (28-05-2014)

  10. #349
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    Quote Originally Posted by Chiefsgirl View Post
    At my first appt I went in armed with each of the different immune issues outlined in the dr beers book and the tests done for each. I had a full medical history written down along with what meds I was on (ivf protocol and results and vitamins and dose ages). He didn't tell me the name of all the tests, but I had 8-12 vials taken (I can't remember) and it took about 3 weeks to get the results. I also booked in for the nk biopsy for the following week (suited my cycle).

    I think the blood tests came in around 400 and I got a cpl hundred back from Medicare. Biopsy depends on your medical insurance. I had a small oop for dr m and that was it.

    AFM- have had a totally stressful day trying to work out if I do intralipids this thurs even though it will end up being more than 10 days before transfer (more like 16-20) and worried about whether it will work. Have decided to do it anyway.
    Hey chiefsgirl...which day of your cycle you are booked for biopsy?

  11. #350
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    Pihu I had mine done in late jan and it was about 25/26 I think

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    Pihu  (29-05-2014)


 

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