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  1. #801
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    Discharge you from hospital or discharge you from ICU?

    If he is breathing up on his own, you could quite easily move to the wards. It would be more calm and relaxing for everyone involved. Being in ICU is stressful and awful.

    They can't discharge you from hospital if he isn't breathing up and feeding, that would be negligent.

    Monnie, don't let them push you into anything you are uncomfortable with. There is no harm in requesting another opinion and there is definitely no harm in asking question after question until you fully understand what's going on.

    I tell my patients and their families if they can't get an answer they understand, to ask the doctors to explain it to them "as if they were a child", it sounds awful but it makes them take out any medical jargon and put it in the most basic forms.

    Remember doctors generally give the worst case scenario but your little man is a battler, he has come so far already.... Breathing unassisted, opening his eyes.... Doesn't sound like he has any plans to give up soon.

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  3. #802
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    Is he feeding on his own now?? If not, how can they possibly discharge him?

  4. #803
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    Monnie, no advice but just another mum thinking of you all and hoping against hope that things turn out ok. Big hugs to you all

  5. #804
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    Keep him in hospital for now, and get the 2nd opinion.

    Keep fighting Monnie xxxx

  6. #805
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    My sister in law is a nurse at flinders but she's away in Europe. If he stays another week - which I hope he does (can't believe they are thinking of sending him home!) I'll get her to pay you guys a visit and see if she can help you make sense of this all.

    Here's to hoping he makes a full recovery.

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  8. #806
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    Don't let them make you go home sweetie. Stand your ground. That's all I can say. Best wishes to you and your little family xxxx

  9. #807
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    Any news Monnie?

  10. #808
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    Staying in for now I said I wasnt ready to go home. Hes off all ventilating etc hes drinking 75mls but the part of vrain goes to your legs and muscles to arms is damaged. He was realistic doesnt think it will heal just because he is newborn.

    We have a lot to think about.

    Sent from my GT-I9195T using The Bub Hub mobile app

  11. #809
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    Glad to hear you are staying in the hospital and that he is breathing well on his own. Still hoping for a miracle for beautiful little Hugo. He has shown amazing strength so I have every hope that he comes through ok. How are you going Monnie? I can't imagine how you must be feeling through all of this

  12. #810
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    Is there anything any of is can do for you monnie?

    I'm in Sydney but can try and help in some way?


    Sent from my iPhone using The Bub Hub mobile app

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