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  1. #751
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    Great news Monnie.
    Hope you and your DD have a good outing today.

  2. #752
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    I have been sharing your story with my DH... We both are soooo happy that things are looking up. We send love & strength your way. Xx

  3. #753
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    Loving reading your updates monnie, keep them coming when you have the time make sure you take care of yourself too x

  4. #754
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    Fabulous news!!!!

  5. #755
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    Tearing up with relief. Keep fighting little man

    Sent from my GT-I9195T using The Bub Hub mobile app

  6. #756
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    Please no horrible comments.

    They are now saying there is severe damage to his brain. Mri every 2-3 days & ultrasounds. They will determine in a month then if we will stop care. Wtf. Why so long. Why cant they gibe us answers now. Im so angry. My poor boy looks so normal. I took a healthy baby home & he looks normal. They said they couldnt live with themselves if he had a severe disability and it impacted our lives. (Df and I have made our choice om what we want to do). But it would kill us tk see him starve to death I wish they made this decision when he was much sicker & could of stopped breathing on his own with nature taking his course. Hes the most beautiful boy and they have no answers WHY! why no effing answers. Why no answera to an illness. Do I get a second opinion? How do I go about that?

    Sent from my GT-I9195T using The Bub Hub mobile app

  7. #757
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    Quote Originally Posted by monnie24 View Post
    Please no horrible comments.

    They are now saying there is severe damage to his brain. Mri every 2-3 days & ultrasounds. They will determine in a month then if we will stop care. Wtf. Why so long. Why cant they gibe us answers now. Im so angry. My poor boy looks so normal. I took a healthy baby home & he looks normal. They said they couldnt live with themselves if he had a severe disability and it impacted our lives. (Df and I have made our choice om what we want to do). But it would kill us tk see him starve to death I wish they made this decision when he was much sicker & could of stopped breathing on his own with nature taking his course. Hes the most beautiful boy and they have no answers WHY! why no effing answers. Why no answera to an illness. Do I get a second opinion? How do I go about that?

    Sent from my GT-I9195T using The Bub Hub mobile app
    Oh Gods. I can't even give you enough hugs for this. I wish I could. I have no practical advice thoufh, I'm sorry.

    Sent from my GT-I9505 using The Bub Hub mobile app

  8. #758
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    I am so sorry Monnie.

  9. #759
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    Oh monnie I'm so so sorry I hope the mris give good results

  10. #760
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    Oh my goodness Monnie what sort of severe brain damage is shown already on the scan? Can it be reversed at all with his healing or is it permanent?

    How is he feeding at the moment? Are they giving him milk or TPN via IV?

    I really hope you get some positive news.


 

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