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    Sending prayers your way xx

  2. #142
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    LifeInShadesOfGrey is offline Just a little bit silly :)
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    Thinking of you xxx

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    Thinking of you and sending big big hugs xxxxx

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    Sending all my love your way xx

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    Thinking of you and your little man xx

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    Biggest hugs to you at this awful awful time!

    We went through something very similar almost a year ago - my five day old son had an unexplained bleed on the brain. We were in the hospital for about 2 months. I think that as soon as the brain word comes in everything gets that huge amount more scary too! I have no doubts that you are in a zombie type world at the moment and can only tell you to keep on breathing through it and know that the hospital is full of amazing people who are great!

    The overwhelmingness of the hospital is huge and, as someone else said, write things down and ask again and again if you don't understand. Get the nurses to help you ask the doctors things and get them to help explain things to you. There are no questions that you can ask that are dumb and they have time to talk you through things.

    I faced similar vagueness from everyone about what the long term results would be with my DS and his brain - actually, to be honest I still do and he is just about one now! The brain is such an amazing organ and it has a large degree of 'neuro-plasticity' which does mean that there is scope for great improvement but of course it is unknown until it all happens.

    Finally, my other kids were 3 and 4 when DS was born/got sick. The upheaval of a new baby was then multiplied by a gazillion when we didn't see them for days at a time. They were confused and irritated but completely fine. I found that I didn't want to see them at all because I couldn't enjoy being with them when I felt like I should be at the hospital all the time. I don't feel guilty though because you really need to do whatever you can do to get through. I didn't stay at the hospital overnight either (which sounds strange even to myself now!) but we live close and I could make it back quickly if I needed to. Though I didn't sleep well at home either, it at least gave me some space away from the constant hustle and noise of the hospital.

    Anyway, biggest hugs to you Monnie. Hang in there and make sure you go outside and sit in the sun at times. Look after yourself and be brave!

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    Thinking of you, your family and your baby xxx

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    Sending lots of positive vibes. Come on lil man!

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    Thinking of you all at this awful time. Sending hugs and hope for a speedy recovering. Xox

  10. #150
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    Oh monnie, I am so so sorry this is happening. I hope your little man is ok, you are all in my thoughts. I wish I lived closer and could offer more practical support. I hope you get some more answers today


 

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