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  1. #1191
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    Swimming is great! And will help build up muscles.

    If you need any info on cp, let me know. My DD was born prem, had health issues in nicu and scn etc, so If I can help in any way please PM. Xx

    Don't let a paed make u feel bad. Find another decent one

  2. #1192
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  3. The Following 3 Users Say Thank You to monnie24 For This Useful Post:

    Mrs Tickle  (17-04-2015),SAgirl  (16-10-2014),VicPark  (16-10-2014)

  4. #1193
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    Monnie he is so cute and looking very well!!!!

  5. #1194
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    So cute!!!!

  6. #1195
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    Oh my, what a handsome little man! Hard to believe what he went through seeing him grow

    Sent from my HTC Desire X using The Bub Hub mobile app

  7. #1196
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    Awww he's so cute! I'm so happy to see updates of little Hugo after everything you have all been through

  8. #1197
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    Cheeky little thing going after the puppy's tail!

  9. The Following User Says Thank You to VicPark For This Useful Post:

    Eilonwy  (20-10-2014)

  10. #1198
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    Thank you. You have all been great 😘😘 and such a fantastic support network for me since day one of posting.

    I have a fantastic support group with same babies who had same virus so it's been great especially being isolated now. Not having contact with doctors has been hard.

    Next paed app isn't until end of nov I'm still getting used to a different doctors system here.

    It's hard never thinking about it though or still what is going to happen for our future.

  11. The Following User Says Thank You to monnie24 For This Useful Post:

    Eilonwy  (20-10-2014)

  12. #1199
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    Having some personal struggles now.

    I had a seizure last night after being seizure free since feb 😢 continued today with small seizures. They didn't fly me to Brisbane (no neuro here).. Told me to get a referral and adjust my meds! Um ok I don't feel comfortable changing my own medicines or a GP.

    Now hubby is talking about me going home and he stays here. Confused etc don't know what to do 😭

  13. #1200
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    Quote Originally Posted by monnie24 View Post
    Having some personal struggles now.

    I had a seizure last night after being seizure free since feb ������ continued today with small seizures. They didn't fly me to Brisbane (no neuro here).. Told me to get a referral and adjust my meds! Um ok I don't feel comfortable changing my own medicines or a GP.

    Now hubby is talking about me going home and he stays here. Confused etc don't know what to do ������
    That sounds like a really challenging situation. I hope things have settled down in the last few days for you. I can certainly understand you not wanting to adjust your own meds! Would a neurologist in Brisbane do a phone or skype consult with you maybe?


 

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