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  1. #1091
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    I'm sorry to hear the news Monnie. PP was right, babies do amazing things! And whether Hugo's amazing thing is recovering from this ordeal, he's sure to be amazing.

    Can I make a suggestion though? Maybe you and other family members need some counselling with someone who specialises in families who are faced with such prognosis? I know there is genetic counsellors when pregnant couples receive abnormal test results. Maybe there is someone in this area. You may need it more than you think. And then again, you may not need it at all because Hugo decides to be amazing!!

    Hugs and love from my family to yours. I am happy you finally got some answers.

  2. #1092
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    I'm sorry to hear, and I understand totally why you'd be feeling depressed. I don't know if this will help, but I've always believed knowledge/information is power. Now that you have something concrete, you can start to educate yourselves about the road ahead. The more you know, the more you can continue to advocate for your super little fighter. I'm so glad he's still with us, and that he has you in his corner x

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  4. #1093
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    Thank you girls. They havent even mentioned physio? Should I call him back and ask that I want to start it.

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    Quote Originally Posted by monnie24 View Post
    Thank you girls. They havent even mentioned physio? Should I call him back and ask that I want to start it.

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    You may need to see your paed and get started on referral services to see a physio at the hospital or other services like your state's disability network.
    My paed organized our referral to disabilities Queensland and that's where my DD sees her physio (though we also see one privately). You should be entitled to services through the hospital. . you could call them back and ask what you should do.

    However. .I wouldn't stress about it this week. .. You've got a lot to digest and think about. As a pp said. . seeking some counselling support might be very helpful for you and your family. The social worker at the hospital may also be able to refer some services for you that can support you and your family through diagnosis and moving forward.

    I know it's not the same. . I've been on a different journey. .. but we received the diagnosis of the rare syndrome my dd has at 4 weeks old right after her first open heart surgery. It was a lot to digest and honestly still is an ongoing thing. I know a little of how you feel. Massive hugs and don't forget to take care of yourself too.

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    No mum wants to hear her child isn't perfect in every way. But there are so many levels of CP. As others said they can work on his weak spots, and hopefully it won't be much of an issue for him. And if it is an issue he has a loving and supportive family to help him in every way possible.

    Big hugs

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    Quote Originally Posted by monnie24 View Post
    Thank you girls. They havent even mentioned physio? Should I call him back and ask that I want to start it.

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    I think once he has the follow up scan things will go from there. In the mean time just encourage him to use his muscles, especially the weaker ones. If the mention of physio isn't brought up at your next appointment maybe you could ask about it.

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    I cant get him to ve on his belly any advice he hates it!! I might take him swimming today with dd

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    I used to do tummy time on my chest with dd and that worked well

  10. #1099
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    My bub doesn't like tummy time much either, in fact will last about a minute on a flat surface before screaming the place down. But as pp said, putting them on your chest works well. Hubby does that with our bub and he doesn't mind it.

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    I do that lots. Today I decided to get a pedicure and my hair done. I havent had any me time since he was born. Im looking forward to.

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