Mama, thanks for your recommendation. We are now being tested for EDS, the genetic counsellor I saw last week says that with my family history, symptoms and my sons symptoms we must absolutely be checked out of it!
A few of the red flags are - I have early onset arthritis, Iwas very double jointed as a kid and also very accident prone- lots of breaks, sprains and tendon problems. I have esonphilic esophagitis (you have an 8 fold increase of that in EDS patients), I look much younger than I am, hardly any stretch marks etc, my dad died young of an aortic aneurysm and had "marfanoid features" (ticks a large number of the marfans, vascular EDS boxes), all of my sons are double jointed and one has chronic joint pains.
So thanks again for mentioning it, I doubt I would have connected the dots to be honest.
Good you're being tested @beebs
I visited a Rheumatologist this morning. He is 99% sure I've got early stages of Rheumatoid arthritis and Fibromyalgia.
I'm going for a MRI to help him confirm it is RA. I also have to get more bloods.
I actually had a inkling the increased pain and fatigue was RA so good in a way that it's basically confirmed.
I've started a medication to see if that will help. If it does help at all he said he will try me on the stronger and longer lasting medication for the RA.
I've gotta go back in a month to see him.
I will pop in here and say hello.
I have the double whammy of EDS type 1 and also Marfans syndrome. I don't like talking about my issues much but quite often i am in a lot of pain.
Nice to see some other EDS sufferers.
Feel free to come here for support or a vent anytime. Gentle hugs to you
Just stumbled across this thread and SO excited to find other EDS Warriors!
Little bit about me:
23, TTC# 1 Miracle Baby.
Ehlers Danlos Syndrome-Type 3(Hypermobility)
Postural Orthostatic Tachycardia
and most recently Polycystic Ovary Syndrome
(these are just my main ones)
Been TTC since October 2013.
just finished 1st cycle of Provera & Clomid 50mg but no Ov.
Really looking for people who have experienced Pregnancy with illnesses experiences and advice!
Anyway Thanks for having me!
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