I'm not sure if this would be the most relevant spot to put this.
My name is Ki Wolf and I write for The Bub Hub.
Lately I've been looking into the facts and statistics of the chromosomal syndrome, Trisomy 18 (Or more commonly known as Edwards Syndrome).
I've been putting together a research based, informational support piece for families and couples who are faced with the heart breaking news that their unborn child has Trisomy 18.
For part of the article, I want to reach out and find families who have been through/are going through the reality of the syndrome and hear their stories so I can include some quotes for our readers describing the emotions they've gone through and how they've coped, showing others they are not alone.
Of course I understand this is a highly emotional, personal and painful subject for those who would rather not be involved. However, if you are comfortable with sharing your story, (with whatever degree of anonymity you choose), Please contact me.
If possible, I would also love if I could get in contact with a practitioner or psychologist who has dealt with families coping with this and has some advice they could share with others who may need mental or emotional guidance.
Even if you are not involved, please help me keep this post visible so I can find the people I'm looking for and create something that could help those in need x