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  1. #901
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    Welcome rubylou. I would definitely be speaking with Dr M. I do phone consults with him and at times haven't had to wait too long.

    Have everything crossed for you Francesthecat!

    I think us immune girls have already struggled with ivf for so long that when we get to the immune side of things it's another battle we face and its certainly not made any easier by doctors who are totally ignorant to immune testing. I would love for there to be more research done in Oz. I don't know how they can say its not proven when this thread alone has shown it can and does work! Soooooo frustrating. I'm still butting heads with my fs over intralipids but I think I'm getting somewhere!!

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    Rubylou88  (26-03-2014)

  3. #902
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    Quote Originally Posted by myheart View Post
    Hi Ladies,

    I am new to this thread. I have been reading posts and am interested in your experiences with immune issues. I did three cycles resulting in two chemicals before the fs tested me for NK cells.

    I was told I had high NK cells and started on prednisolne. That cycle I got pregnant but miscarried. Further cycles were mostly chemicals. I moved to another fs but she does not believe in NK cells affecting results.

    I would like to know more...so many of you have had success after using immune protocol...


    Some of you have mentioned Dr Matthias - do you know if he takes phone conferences?
    Welcome myheart. I do all of my consults by phone with Dr M. None of it is covered by Medicare though if its over the phone. Have you read back through all 3 immune threads? I did this when I was new and it helped me so much!!!

  4. #903
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    Quote Originally Posted by francesthecat View Post
    Hello Ladies,


    i had two early blasts transferred Monday hoping, one at least is a sticky bean.
    No idea on any frosties, one dropped off at day 4 and the other 2 were behind.
    I have no bothered for an update, what will be will be.
    As Monday morning, nothing was at freezer grade, so we took the two. I would have frozen one if it was ready.

    Im such a sad case, I POAS today to see the pregnal booster on FER to see what it looks like. Yep if I keep doing that its gonna mess bad with my head. But in another week, if AF has not shown up. With a BFN I've ALWAYS got AF when due no matter how much crinone or pessaries. So have no idea if it will keep,it away.
    Only time will tell.

    Just also wanted to say thank you to you wonderful ladies, for your fantastic support. This cycle has been extremely hard, massive risks just hoping nothing going to go wrong.



    Yay for being PUPO!

    I used pregnyl in my last cycle and it def kept AF at bay till the day of my poas test (My clinic doesn't do bt) which was near on 16dpt whereas I had always gotten AF before test day, so I think it should def help. This time I'm doing pregnyl and 800mg of pessaries per day so the witch should def stay away!

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    francesthecat  (26-03-2014)

  6. #904
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    Rubylou I saw dr m and ttc naturally. I would go to him before you start ivf and have testing done. You don't want to waste a heap of money if it may not work due to immune issues. All the best and welcome to the group xx

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    Rubylou88  (26-03-2014)

  8. #905
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    @Rubylou88 I would def get tested with dr m. I am 40 and my FS has always just said our issue was my age and bad quality eggs, but wouldn't really do much to change things up and try new things, after 4 unsuccessful cycles last year I took it into my own hands after a couple of ladies on here suggested I look into it.

    I have since found out I have issues and probably wouldn't have conceived with ivf let alone naturally. So now I'm thinking that I wasted a year and. $$ doing ivf with little chance of outcome.

    I know it can be hard waiting for appointments, waiting for test results, waiting to start cycling, but I wish I had done more testing at the beginning and I might have had a bubba in my belly now.

    My suggestion is to book a follow up appt now for about 8 weeks after your initial appt with dr m. Do you track your cycle? He'll more than likely want to do a hysteroscopy to check for nk cells in the uterus which can only happen on certain days of the cycle (around 24-26 I think. So if you're at the start of your cycle when you see him you can book in for the op for a few weeks later and then it takes a few weeks for the results to come in, as well as the blood tests which can take 4-6 weeks. I went in armed with a notebook. I had written down all the details of my cycles, what supplements I take, I also wrote down each of the immune issues from the book where I felt like I had symptoms to talk to him about.

    NEVER let anyone bully you in to not doing something. There is absolutely no harm in talking to someone else about your options and as we have all found, it is much better to arm yourself with knowledge of options before embarking on any journey.

    As for it not being tested, apart from intralipids and ivig, most of the things dr m prescribes have been done before, in the colorado protocol/bondi protocol. There are many articles online about the success of this treatment let alone the ladies on here, that was proof enough for me.

    I don't mean to tell you what to do, in the end you have to do what you feel is right for you and DH. But I'd hate for you to waste a year doing ivf like I did, then be facing doing it with older eggs as well. Good luck xxx

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    Rubylou88  (26-03-2014)

  10. #906
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    Good luck francesthecat! FX and a load of babydust!

    rubylou: I found WA specialist conservative. One must be lucky to find FS who believes in immu issue. If you don't mind me asking, (PM me if you want), who are you seeing? To some degrees, I realize that some of the immu treatments invasive. I don't know if my FS believes in it either. It seems like a topic no one wants to talk about. However, she did order a bunch of BT for me and even suggested me to find someone in Perth to do the NK cell biopsy. I did interstate IVF. When my ANA came back positive, I contacted Dr. M for a phone consult. I didn't get much out of my phone consult because he couldn't tell me anything more until more tests are done. It was what I expected anyway and basically a 10 min consult for a referral to follow up on the ANA diagnosis. If your FS/GP is willing to write referral for those basic tests (i am sure that ladies can provide you a list), it is a better idea to get all the tests done in the meantime so you can have a real discussion with Dr. M. Of course, do whatever you feel comfortable with. I haven't made further appointment with Dr. M because I want to do the NK cell biopsy, get the result and talk to him about everything all at once. $$ is tight when I already have 8 consults with different FS just to get me 1 IVF cycle so far. Yup, seeing a new local FS to discuss endo scratch. I can't fly to Sydney for a small procedure each time.

    Good luck Nattie, hope this cycle works out.

    BTW, I wish there is an e-version of Dr. Beers book. Does his book interpret the NK cell blood result? I know I can buy one online. Does anyone know a bookshop in perth that sells it? I travel too much to wait for it to get in. It would be nice to read it on the airplane.
    Last edited by bbhope; 26-03-2014 at 20:32.

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    Rubylou88  (26-03-2014)

  12. #907
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    Bbhope I don't know if you can get the book online but I doubt it. I got mine from the UK and it didn't take long to get here. I recommend everyone should have one if they are going down the immune road.

    Question! I didn't get the time dr Dr M when I should start clexane and antibiotic for a FET. I'm reluctant to ask G and don't want a phone consult just for this. Has anyone done a FET cycle with clexane and antibiotic and when did you start both? Thanks!!!

  13. #908
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    Thank you everyone for your wonderful advice. After discussing it with dh we have decided to go ahead with our appointment with dr m. Now the next hurdle is to ask our gp for a referral. Fingers crossed she has an open mind and can see the benefit of conducting further tests.

    chiefsgirl thanks for the suggestion of booking ahead for the hysteroscopy. I do track my cycle and booking this appt ahead will give me a bit extra time to arrange trip to Sydney from Perth. And yes I did feel bullied by gyno. I can't believe he acted so unprofessionally..totally amazing.

    bbhope I will Pm you the name of my fs. I don't whether to raise the immunotherapy protocol or not with her when we meet...I suppose I should and just brace myself again for a bit of flack. After all, it is my/our choice and at this stage is just some tests. I bought the book from bookdepository.com so not sure if local book shops sell it. I've just done a search on dymocks website and they sell it so maybe give them a bell and see if they have any in stock.

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    bbhope  (27-03-2014)

  15. #909
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    Hi everyone...

    I'm starting my clomid cycle 2 from tomorrow. As someone mentioned it to in my earlier post that need to keep it in fridge. Should I?

  16. #910
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    Rubylou you're def not jumping the gun. Dr M is a miracle worker! I felt the same reading Dr Beers book, lightbulbs lighting up!!!

    My FS told me I was wasting my money, even after 6 failed ivf cycles I got pregnant #7 (#1 on immune protocol) he said it was "just my lucky embryo". Go with your instinct. I truly have every faith in Dr M and if he can't get you your baby I don't know who can! The man is amazing. We have a great FB group for anyone wanting to join, just pM me your email address and I'll add you xx


 

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