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  1. #311
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    Hi sorry stuffed up the reply quote thing while trying to post on the go yesterday, I was trying to post a reply to elarwoods post.

    my hcg is not dropping, I eventually hit zero about 3 weeks ago and now am waiting to ttc when my period arrives. We are away the 16th so I am going to ttc naturally this month with the steroids, clexene, intralipids (9th jan), an endo scratch (at ovulation) and hopefully if I can get it on time the a Neupogen which I would like to start just before ovulation(thanks again Helenmac for the Indian supplier details). Then next month I will try our frostie and if none of that works then I will have to decide where next but I am feeling much more positive after the last couple of months. Wishing everyone a great 2014

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  3. #312
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    Thanks Nidhulaine - I agree it's much harder to see a positive test with low hcg levels as you know it's going to end badly. I'd rather it be a negative so I can grieve & move on. I have 1 more hcg test on 2nd jan to see if its hit zero. dr m's
    tests today so we should have results before I start my cycle later on this month. I will ask Dr M about the neupogen when I speak with him next. All the best with trying naturally this month! Thank goodness for a new year tomorrow!

    Precious heart - thank you for your reply. Yes I'm on all those supplements including myo-insitol & metformin for pco even thou its very mild. We are also on melatonin to help egg quality & aloe Vera juice/goji berries. With the co-enzyme do you take 900mg of the ubiquinol (active form)? I've read that is a better type of co-enzyme.. I'm only taking the usual form. We also drink full-cream milk (I don't usually but have been for fertility) but should include more good fats in my diet. Thank you for all your advice! I appreciate it. All the best with your cycle, hope you get some good eggs!

    happy new year everyone!

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  5. #313
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    Elarwood... so sorry that this cycle hasn't worked for you. I still shake my head in disbelief whenever I think I'm up to 7 cycles. I just never imagined trying to get pregnant would be like this, and you've already done 8 cycles. There is a lady at my work who thought she couldn't get pregnant, did one lot of IVF which ended in an early miscarry, and then easily went on to have 2 natural babies. I remember everyone at work going on about what a hard time this lady had had, but I really think that some of us are in a completely different boat, and that "normal" people just will never understand what we've been through. Thanks everyone for sharing and encouraging xx

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  7. #314
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    helenmac is offline After 3 yrs of tcc I've got a BFP!
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    Elarwood - I'm so sorry to read of your chemical. Life can be so unfair. It's especially hard accepting it's over when you hold onto so much hope believing the pregnancy is ongoing. I hope that you can heal and move forward with a new plan when you feel ready.

    AFM: My 2nd blood test showed hcg levels have increased to 3,254 so we are very relieved to hear.

    Happy New Year everyone!

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  9. #315
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    Soclose - Yes, isn't the forum wonderful. Gosh I was just catching up on the last 3 pages and I don't understand 1/2 of what is going on! The lady I am seeing is Karen Pace, I saw in one of the posts that Helenmac had been to her, so I contacted her and went from there. She's been great to date, just waiting on local blood tests to come back, as she away over Xmas & , I'm hoping we can get all the bloods she needs done before April 18, when we are planning on going back to SA...

    and YES I just found a donor yesterday - New Years Eve, and she has accepted !!! I can't quite believe that I've found someone that I like that fits our criteria almost 100%! and so quickly (thank goodness) she has had 3 successful donations - I'm soooo hoping we with be the 4th


    I didn’t really realise about the Humira either, but think I had read it somewhere else about the dosage. Dr Matthias had prescribed 2 x 20mg injections, 1 to be taken 3 weeks prior to transfer and the other 2 weeks after transfer. Not sure why he does it this way, typical medical world, some believe one way, others the other – just to add to our confusion… nonetheless I have the other $700 injection sitting in the fridge for now.


    Dexmethasone side effects – OMG, you poor thing, with hair falling out and chest pains, that is scary.
    Remember how I mentioned eye infections among other things, well I’ve been having to wear my glasses instead of contacts as they have been so sore and dry. I was reading a few days ago and happened to close one eye and noticed the right was really blurry. I went to my optometrist yesterday and told him about the steroids and he said, they can cause dry eye and change in vision – for 2 to 4 months after finishing them.
    He went through all the testing again and I cant even read the top line at the moment, with what normally is my stronger eye!
    I just burst into tears. I think on top of everything else and the fact I haven’t actually had a proper blow out since our negative that it decided to try and hit me in his rooms!
    He was lovely and I managed to keep it together enough without totally going over the edge, but I was close, it was bad enough as it was. When I came out of there, I felt like I had been run over by a truck.

    Preciousheart – that is interesting re. your dose times of Dex. I may try that next time. Interesting too, that maybe 2nd time round is better… gosh I hope so. I didn’t take the extra zinc, just what was in my multi’s, so thank you, I’ll try that too.

    Nidhulaine – I’m sorry to hear what you’re going through, you are a real trooper. Can I ask what a CGH cycle is?

    Chiefs girl – Gosh you’ve had quite an IVF year for 2013, here’s hoping 2014 is your year. I’m so glad you have found this forum and Dr M. It will be really interesting to see what he finds, I’m sure you are on the right track now too. I was told by him, there was no point at all in doing any more IVF without immune treatment, which I never knew and my current FS said they are only slightly elevated. Good luck and cant wait to hear how you go.
    This may be a silly question but how did you book the timing with a follow up with Dr M? That is a great idea, how did you know when you should book it for?

    You wouldn’t happen to be from the Waikato/BOP would you??!! My DH is a Chiefs man J

    Elarwood – so very sorry to hear your news, why is this journey so hard for all of us, its not fair L



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  11. #316
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    Hi sootymay, yep I'm originally from Tauranga in the BOP! I've been a Waikato supporter since I wagged school to go watch them play Australia - back in the days when international teams played mid week games!

    I think it was Nattie84 advised me to book in my follow up appointment now as it took her a long time to do it after she had had her tests done. I made my first appt on 2 dec and the earliest I could get in was 21 jan for the first appointment!

    I think it was a week later when I asked the lady on the ph if I could get a list of blood tests to do beforehand so dr m would have the results for that first appt and she said no, he asks for different tests for each person. I also asked to book in for the biopsy/lap/hystoscopy as I've heard he sometimes does that and she said no, he might not want to do it - I think she thought I was pushy! But she did let me book in a follow up appointment which isn't until 18 February! So that is nearly a month later and if the bloods don't need to go to Chicago then he should have all the results in. Only spanner in the works will be if he does want tondo the biopsy/lap as I think it needs to be done around cd26 and that will be the week following my first appt, so unless he can squeeze me in, I'll have to wait till the end of feb for that and try and reschedule the feb appt.

    Congrats on finding a donor, wow it sounds complicated that she needs to 'accept' you!

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  13. #317
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    Chiefsgirl - that is dedication for you, make me laugh! We are originally from the Waikato and then later years out at the lakes in Rotorua. Sounds like you and DH would have alot to talk about... I don't really follow the rugby, but with Foxtel, he watches all the local games at home.

    Also sounds like you are a real planner, backup plan person, looking at your signature, last cycle November and back into January apts!... and booking them in ahead if you can. Good on you for asking Gwynth (I'm guessing it was her, as she is usually the one that answers most the time) - in hindsight, you'd be glad you booked that far ahead!

    I think with the donor "accepting" it's more that some of the agencies ask/suggest that you send a letter about yourselves (if you want to) so that the donor knows a little about who they are donating to... which I think is important at the end of the day. So I was able to send her a long (ha ha) letter (as I did our first donor) - tricky in a way how to word it, without been too personal etc, but lovely to be given the opportunity to make contact with donors - as what they are doing is really special and really how can you ever thank them.

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  15. #318
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    Hi everyone - I finally managed to get my account to work.

    I have been following the thread for over a year.

    I have done 4 egg collections & 10 transfers. Transfer 7 resulted in a twin pregnancy which I lost on 4 Jan last year. Prior to that I had a natural pregnancy I lost a couple of days before Christmas in 2010. At least I know I can get pregnant it's keeping them that is the issue.

    I am seeing both Sacks at IVFA & Matthias. I have had 3 intralipid infusions and will be doing an IVIG infusion on 8 March as I am having my egg collection for PGD on 10 March.

    I am having a hysteroscopy on 10 Feb as well as a lining scratch.

    I have found the trick with G at Matthias rooms is for her to know you for some unique reason & to just keep ringing and I haven't had any issues.

    I am seeing a dietitian on 21 Jan same day as I see Matthias to get help with my diet when I'm gluten free as being on Metformin means I can't stomach dairy.

    Oh and I am also TH1/TH2 imbalance confirmed as well as very high NK Cells.

    Helenmac - congrats on your positive its so great to see after so long.

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  17. #319
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    Hello Leebec you've had a long road to get where you are. I hope march is your month!

    Well I'm definitely still having issues with G . She won't let me book a phone app with Dr M in advance for my biopsy results. She said they will when my results come in. Somehow I can't see them ringing me when the results come in!! This is crazy. How do they function like this. It should not be up to me to continually chase these things up. Not happy. Yes she might be busy but that's not the patients problem.

  18. #320
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    Quote Originally Posted by sootymay View Post
    Soclose - Yes, isn't the forum wonderful. Gosh I was just catching up on the last 3 pages and I don't understand 1/2 of what is going on! The lady I am seeing is Karen Pace, I saw in one of the posts that Helenmac had been to her, so I contacted her and went from there. She's been great to date, just waiting on local blood tests to come back, as she away over Xmas & , I'm hoping we can get all the bloods she needs done before April 18, when we are planning on going back to SA...

    and YES I just found a donor yesterday - New Years Eve, and she has accepted !!! I can't quite believe that I've found someone that I like that fits our criteria almost 100%! and so quickly (thank goodness) she has had 3 successful donations - I'm soooo hoping we with be the 4th


    I didn’t really realise about the Humira either, but think I had read it somewhere else about the dosage. Dr Matthias had prescribed 2 x 20mg injections, 1 to be taken 3 weeks prior to transfer and the other 2 weeks after transfer. Not sure why he does it this way, typical medical world, some believe one way, others the other – just to add to our confusion… nonetheless I have the other $700 injection sitting in the fridge for now.


    Dexmethasone side effects – OMG, you poor thing, with hair falling out and chest pains, that is scary.
    Remember how I mentioned eye infections among other things, well I’ve been having to wear my glasses instead of contacts as they have been so sore and dry. I was reading a few days ago and happened to close one eye and noticed the right was really blurry. I went to my optometrist yesterday and told him about the steroids and he said, they can cause dry eye and change in vision – for 2 to 4 months after finishing them.
    He went through all the testing again and I cant even read the top line at the moment, with what normally is my stronger eye!
    I just burst into tears. I think on top of everything else and the fact I haven’t actually had a proper blow out since our negative that it decided to try and hit me in his rooms!
    He was lovely and I managed to keep it together enough without totally going over the edge, but I was close, it was bad enough as it was. When I came out of there, I felt like I had been run over by a truck.

    Preciousheart – that is interesting re. your dose times of Dex. I may try that next time. Interesting too, that maybe 2nd time round is better… gosh I hope so. I didn’t take the extra zinc, just what was in my multi’s, so thank you, I’ll try that too.

    Nidhulaine – I’m sorry to hear what you’re going through, you are a real trooper. Can I ask what a CGH cycle is?

    Chiefs girl – Gosh you’ve had quite an IVF year for 2013, here’s hoping 2014 is your year. I’m so glad you have found this forum and Dr M. It will be really interesting to see what he finds, I’m sure you are on the right track now too. I was told by him, there was no point at all in doing any more IVF without immune treatment, which I never knew and my current FS said they are only slightly elevated. Good luck and cant wait to hear how you go.
    This may be a silly question but how did you book the timing with a follow up with Dr M? That is a great idea, how did you know when you should book it for?

    You wouldn’t happen to be from the Waikato/BOP would you??!! My DH is a Chiefs man J

    Elarwood – so very sorry to hear your news, why is this journey so hard for all of us, its not fair L


    Oh that must have been horrible for you! You know, I had blurry vision after I stopped the pred too. Coincidence?? Who would know! I cannot wait to hear how you go with Karen and so exciting you found your new donor. Must be a relief to have that part done. Such a big courageous journey to take

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