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  1. #301
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    Hi helenmac, my FS has been a bit difficult with trying anything new and doesn't believe the fact I have arthritis, iBS, asthma etc etc as issues that can affect my ivf cycles, so I have only had gonal f and lucrin followed by crinone, this last time I insisted on hgh and pregnyl which she allowed! She puts my failures down to being old (I turned 40 last week) and my low amh/egg quality!

    The only surprising thing was when we had our follow up after this last cycle she spent 10 mins trying to convince me that autoimmune and nk cells had no bearing on your ability to conceive, but when pushed said she would work with whatever protocol dr m wanted me to go on! Bizarre but at least I don't have to find a new FS, I couldn't go through a cycle without everyone being aware what I was taking, I'd be too scared!

    It's thanks to women like you, festivalgirl and kiwi who started this thread that I even made the first appointment to see dr m. I thought the fact that I do get sick would mean I can't have issues that are affecting my cycles, but this thread and the dr beer book certainly opened my eyes! So thank you very much for being so open, and congrats again on your bfp, what a wonderful time it must be for you and your family xxx

  2. The Following 2 Users Say Thank You to Chiefsgirl For This Useful Post:

    helenmac  (01-01-2014),MGC Bertie  (30-12-2013)

  3. #302
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    Quote Originally Posted by Chiefsgirl View Post
    Hi helenmac, my FS has been a bit difficult with trying anything new and doesn't believe the fact I have arthritis, iBS, asthma etc etc as issues that can affect my ivf cycles, so I have only had gonal f and lucrin followed by crinone, this last time I insisted on hgh and pregnyl which she allowed! She puts my failures down to being old (I turned 40 last week) and my low amh/egg quality!

    The only surprising thing was when we had our follow up after this last cycle she spent 10 mins trying to convince me that autoimmune and nk cells had no bearing on your ability to conceive, but when pushed said she would work with whatever protocol dr m wanted me to go on! Bizarre but at least I don't have to find a new FS, I couldn't go through a cycle without everyone being aware what I was taking, I'd be too scared!

    It's thanks to women like you, festivalgirl and kiwi who started this thread that I even made the first appointment to see dr m. I thought the fact that I do get sick would mean I can't have issues that are affecting my cycles, but this thread and the dr beer book certainly opened my eyes! So thank you very much for being so open, and congrats again on your bfp, what a wonderful time it must be for you and your family xxx
    I feel like I am reading a post I have written I am in the same boat and it's frustrating and exciting at the same time to finally have an idea of what our issues are! Good luck xo

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  5. #303
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    I remember you updating another thread nattie about your first appointment with dr m and then how long it was in between! It was the incentive i needed to make my first appt, I have my follow up appt booked in already! The lady on the ph thought I was a nutter! Thanks for the tip!

    It's a little sad that I just blindly trusted my FS and didn't do more research before embarking on such a hard year of failures, but I can't dwell on coulda beans, just gotta focus on the now.

    Fx you get some answers and a protocol that works for you. If anything I've learnt from reading this thread, dr m works miracles and in a few short cycles too! Good luck xxx

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  7. #304
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    LIBELLE, how are you going? Did you have another scan since??

    I'm thinking of you

  8. #305
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    LIBELLE, how are you doing? Did you have another scan since??

    I'm thinking of you

  9. #306
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    Quote Originally Posted by Chiefsgirl View Post
    I remember you updating another thread nattie about your first appointment with dr m and then how long it was in between! It was the incentive i needed to make my first appt, I have my follow up appt booked in already! The lady on the ph thought I was a nutter! Thanks for the tip!

    It's a little sad that I just blindly trusted my FS and didn't do more research before embarking on such a hard year of failures, but I can't dwell on coulda beans, just gotta focus on the now.

    Fx you get some answers and a protocol that works for you. If anything I've learnt from reading this thread, dr m works miracles and in a few short cycles too! Good luck xxx
    Don't beat yourself up about it Chiefsgirl - we all walk into this strange world pretty innocent and naive. I had absolutely no clue about immune issues and fertility until my FS told me my test results came back very high for antinuclear antibodies. If she didn't I wouldn't have been any wiser and may not have been lucky enough to be pregnant now.

    We should all be able to have complete trust in our specialists - that's what we pay them for isn't it? Unfortunately not all FS share the same views or put their faith in some of the research and developing protocols to help people like us.


    Sent from my HTC One X using The Bub Hub mobile app

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  11. #307
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    Quote Originally Posted by helenmac View Post
    Soclose - Humria removes all inflammation and you need 'some' inflammation for implantation to occur so the best time to transfer is between 2-3 months after the last humira injection.
    Thank you! I do actually remember you saying this is an earlier post regarding needing some inflammation.

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  13. #308
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    WOW - A huge congratulations helenmac! Such fantastic news.

    MGC - Good luck with your blood test - a week to go!

    Hi to everyone else - hope you all had a fantastic Christmas.

    AFM - my HCG levels have finally come down and I have bled - yet another chemical pregnancy on steriods, clexane and intrallipids. This was cycle 8 - the last 2 of our 6 CGH embryos. One ectopic and 2 chemicals from our CGH cycle. So disappointing since we know our embryos were 'normal'. This makes me believe something else is up as we concieved our DD on our first IVF transfer and no issues what so ever.

    We do our bloods tomorrow for Dr M - DH is only being tested for Allo-immune issues (HLA A, B, C) and (HLA DR, DQ Alpha, DQ Beta) - does this sound right?

    I should be starting another CGH cycle at the end of the month with Saizen and Luveris for egg quality as FS firmly believes this is our issue (at 31 years old with AMH 14) but willing to give it everything.

    I might call Dr M tomorrow to get an appt in a few weeks time for the results as he sounds like he's been very busy!

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  15. #309
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    MCG Bertie, how are you travelling??? great progesterone levels I reckon... thinking of you and hoping you get your well deserved BFP soon - the TWW is so tough, especially around 10dpo I find, the worst!!!

    Chiefsgirl, hope Dr M sorts things out for you, I get so sad and cross seeing what seems like embryos being wasted, I'm sure two of mine were wasted this way earlier this year before I found out about my NK cells, and it's so hard to create them in the first place too...so easy for the FS to blame our age. Really happy you've found out about immune issues and hope you get your BFP in 2014!

    Sooty, I didn't get such bad issues coming off the dex but was only on 1.5mg for 2 weeks, sounds awful!... am on it again but this time instead of taking 1 x 0.5 three times in the morning, I have been taking 1mg at 7am and then 0.5mg at 10pm... if I get to transfer I'm going to increase the 10pm dose to 1mg. It seems to have less effect on me this way (I chose to do this timing myself) maybe it's less effective overall but it's much better than feeling manic and hyper and snappy all the time, this time is different.. plus it's not affecting my sleep as much either, weird... I keep checking to make sure I'm actually taking Dex!!! maybe the first time on it is the worst? I do high doses of magnesium and zinc all the time so I'm positive that helps as well. Glad to hear of your good news moving forward to the next cycle!

    elarwood, oh so sorry to hear of this heartbreaking result for you ... I truly hope Dr M will help you, I'm sure he will... have you been taking CoQ10 for egg quality (I've been taking bioceuticals 150mg x 6 a day, self medicated for 18 months now and no side effects that I know of anyway - google a Toronto University study, I think they were proposing 600mg a day, it greatly helps with the mitochondria and ICSI too - strengthens the egg shell) Also Dr M told me to take myo-inositol powder, I take the Musashi one, 2g twice per day as I found a study on it too. Ask him about it when you speak to him next. I assume you're taking all the other supps like E, InNatal multi, selenium, C, D, calcium, zinc, magnesium, fish oil, all the Bs etc too? Hope something there helps you... also a friend of mine suffered poor quality and she was always on skim dairy and not eating fats etc as she was trying to lose weight, and she believes that this contributed to brittle, poor egg quality - we need the fats to manufacture hormones etc, maybe look into it???

    Hi soclose, stillhope, timetoshine, nattie, simpson, libelle, helenmac, nidhulaine, pihu and everyone else reading along!

    Only one more sleep til 2014!!!!!!!

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  17. #310
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    AFM - my HCG levels have finally come down and I have bled - yet another chemical pregnancy on steriods, clexane and intrallipids. This was cycle 8 - the last 2 of our 6 CGH embryos. One ectopic and 2 chemicals from our CGH cycle. So disappointing since we know our embryos were 'normal'. This makes me believe something else is up as we concieved our DD on our first IVF transfer and no issues what so ever.

    We do our bloods tomorrow for Dr M - DH is only being tested for Allo-immune issues (HLA A, B, C) and (HLA DR, DQ Alpha, DQ Beta) - does this sound right?

    I should be starting another CGH cycle at the end of the month with Saizen and Luveris for egg quality as FS firmly believes this is our issue (at 31 years old with AMH 14) but willing to give it everything.

    I might call Dr M tomorrow to get an appt in a few weeks time for the results as he sounds like he's been very busy![/QUOTE]


    hi Elarwood,

    Just wanted to say that I am really sorry it's another chemical which is really a very early miscarriage, you poor thing! My heart goes out to you. It's very difficult to say whether it's worse never to see a positive pregnancy test or to get the positives and keep loosing them. It's obviously immune issues. I have had 7 miscarriages since I had my 3 year old daughter. My problem is implantation and Dr M reckons that leads to my miscarriages. Next time I try, he has recommended Neupogen as it's supposed to produce more good immune cells and aid implantation. Helen has used it in this cycle as part of her protocol and got her BFP. I know there's not a lot of positive things people can say when your waiting for your hcg to drop but I just wanted to offer some support and at least your on this forum where can get hope and strength from others who have eventually got their BFP when they got the correct immune protocol. Take care

  18. The Following 6 Users Say Thank You to Nidhulaine For This Useful Post:

    elarwood  (31-12-2013),Gentay  (31-12-2013),MGC Bertie  (31-12-2013),PreciousHeart  (30-12-2013),sootymay  (01-01-2014),StillHope  (31-12-2013)


 

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