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  1. #191
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    Hi Sooty, so sorry to hear this news... very glad that you are on top of the CA125 testing and with a top specialist, hope he gets all the answers you need and quickly and that they are good news and you can move on to your next cycle. Thinking of you, let us know how you're going and have a wonderful Christmas

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    sootymay  (17-12-2013)

  3. #192
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    Gentay, I had intralipids rather than ivig but dr m told me to get them on bfp. I started all other meds from ovulation but he said its different for ivf ladies as they are guaranteed to have a fertilised egg in there whereas when trying naturally you only have a 20% chance each month. Not sure if it would be different for ivig but I imagine the cost would be prohibitive if you had to try for a few months before being successful. Best of luck.
    Sooty, sorry to hear of your test results. I don't know anything about that but wanted to wish you luck that its just to do with the ivf and so happy you have a great specialist to help you xx

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    Gentay  (16-12-2013),sootymay  (29-12-2013)

  5. #193
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    Sooty: i know these test results can rise if you have endometriosis and also if you have cysts on your ovaries. Do you think the pain you had could have been a cyst popping? That is bloody pain full!
    Hope your dr will find out thats its nothing serious!

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    sootymay  (29-12-2013)

  7. #194
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    PreciousHeart I'm not sure about your question but I would assume that is what Dr M would test for at biopsy. It all gets a bit confusing doesn't it!

    Libelle congrats! Now you can relax for Xmas.

    Sooty I haven't heard about what you mentioned but gee I hope this doctor can get it sorted for you so you can get into a cycle in the new year. Please keep us updated.

    AFM I am having my biopsy this week. For those of you who had theirs with Dr M how did it take to get the results back? I'm guessing it will be after Xmas and was also wondering how long his office closes for over Xmas?

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    sootymay  (17-12-2013)

  9. #195
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    Sorry I meant 'how long does it take'.

  10. #196
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    Sooty- what a worry for you! im hoping its the nasty ivf drugs, and hope you can get to the bottom of it. if you'fe in brisbane a gynae/oncologist specialist Dr Perrin is amazing.

    I had my phone consult with Dr M on Friday. Such a lovely man! He assured me the immune treatment wouldn't have done any harm on our last & current cycle. Doing the first round of blood tests if beta is negative on Tuesday. However I have to wean off prednisone first.

    Soclose - he mentioned it would take a few weeks to get biopsy results.

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    sootymay  (17-12-2013)

  12. #197
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    Thanks Elarwood

    Good luck with your BT. I hope you get good news!

  13. #198
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    Sooty really hoping you get some answers soon and that it's just all the drugs and nothing sinister. Just another thing that you didn't need. So sorry

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    sootymay  (17-12-2013)

  15. #199
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    Quote Originally Posted by timetoshine View Post
    Gentay, I had intralipids rather than ivig but dr m told me to get them on bfp. I started all other meds from ovulation but he said its different for ivf ladies as they are guaranteed to have a fertilised egg in there whereas when trying naturally you only have a 20% chance each month. Not sure if it would be different for ivig but I imagine the cost would be prohibitive if you had to try for a few months before being successful. Best of luck.
    Hi timetoshine, I truly appreciate your considered response.
    I am in a precarious situation. I have had 5 early pregnancy losses (conceiving naturally 3 times and twice via IVF) - the first 3 without any medication, the fourth on the Bondi protocol with Prednisolone, Clexane and Progesterone and the fifth on the Bondi protocol again but with IVIG infusions at about weeks 4 and 7 to try to save the pregnancy, without success.
    I stumbled across Dr Matthias and had my first telephone conference with him just after I discovered I was pregnant for the fifth time. My husband and I had our blood sent to Chicago for testing after my last miscarriage. I am now on Dexamethasone which Dr Matthias advises I require as apparently Prednisolone is not strong enough, having highly activated natural killer cells and low leukocyte antibodies against my husband's blood (in addition to Hashimoto's Thyroiditis with elevated TPO antibodies for which I take Thyroxine, the MTHFRa1298c homozygous gene mutation for which I take various forms of folic acid and B vitamins and untreated endometriosis). He also advised me that intralipids would not be suitable - that I require IVIG.
    I am truly scared to risk getting pregnant again without having had an IVIG infusion prior to trying to conceive in light of my last experience, even though Dr Matthias advised that Dexamethasone should be sufficient with an IVIG infusion after a positive pregnancy test.
    *Wondering if there is anyone else on this thread in the same position as me?
    *Also wondering has anyone done a stimulated IVF cycle with immune treatment and, if so, what was the immune treatment?
    Gentay
    Last edited by Gentay; 16-12-2013 at 13:03.

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    sootymay  (29-12-2013)

  17. #200
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    Hi Gentay don't worry about not having IVIG before a positive, my last pregnancy (no 8) and my first under Dr M care was a natural pregnancy and an accident as I was not on any immune drugs and only started after Bp including getting intralipids. I lost that baby at 12 weeks after seeing a heartbeat at 11 weeks 5 days but that baby was triploid (3 copies of chromosomes) and incompatible with life. Before that pregnancy I had lost 6 all before 6 weeks in a 2 year period and any D&C pathologies I had came back as normal fetuses. Ironically with Dr M I was able to carry a weaker unhealthy fetus to 12 weeks compared to no meds and losing healthy fetuses at 6 weeks. I felt very unlucky at the time but I do now 100% believe the meds work. Also I didn't start any meds till 4 weeks and they still worked so I think the IVIG as soon as u get a positive for someone like yourself who can conceive naturally will definitely work especially as IVIG is stronger than intralipids. dr M has also recommended Neupogen for me because of the 7 miscarriages.

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    Gentay  (16-12-2013),sootymay  (29-12-2013)


 

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